Quality of Life Research

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  Publication Venue For

  • Factors associated with quality of life among married women in rural China: a cross-sectional study..  27:3255-3263. 2018
  • Conceptual model for the PROMIS sexual function and satisfaction measure.  22. 2013
  • Reasons for sexual inactivity in a US national survey of adults.  22. 2013
  • The vulvar discomfort domain of the PROMIS (R) sexual function and satisfaction measure.  22. 2013
  • A procedure for obtaining impact of cancer version 2 scores using version 1 responses..  22:103-109. 2013
  • Erratum to: The impact of diabetic retinopathy on quality of life: qualitative findings from an item bank development project.  1. 2012
  • Compared to what? A joint evaluation method for assessing quality of life..  20:1169-1177. 2011
  • Explaining rural/non-rural disparities in physical health-related quality of life: a study of United Methodist clergy in North Carolina..  20:807-815. 2011
  • Progress on the PROMIS (R) Sexual Function Measure.  19:98-99. 2010
  • Abandoning the language of "response shift": a plea for conceptual clarity in distinguishing scale recalibration from true changes in quality of life..  19:465-471. 2010
  • Why should changing the bathwater have to harm the baby?.  19:481-482. 2010
  • Effects of two weight-loss diets on health-related quality of life..  18:281-289. 2009
  • Content validity in the PROMIS social-health domain: a qualitative analysis of focus-group data..  17:737-749. 2008
  • The effects of exercise training on quality of life in HAART-treated HIV-positive Rwandan subjects with body fat redistribution.  17:377-385. 2008
  • Fatigue in breast cancer survivors two to five years post diagnosis: a HEAL Study report..  16:947-960. 2007
  • Documenting the rationale and psychometric characteristics of patient reported outcomes for labeling and promotional claims: the PRO Evidence Dossier..  16:717-723. 2007
  • Performance of a weight-related measure of Quality of Life in a psychiatric sample..  15:587-596. 2006
  • Why are you calling me? How study introductions change response patterns..  15:621-630. 2006
  • Health-related quality of life among self-reported arthritis sufferers: effects of race/ethnicity and residence..  15:451-460. 2006
  • Are chemotherapy patients' HRQoL importance weights consistent with linear scoring rules? A stated-choice approach..  15:285-298. 2006
  • Stated preferences of patients with cancer for health-related quality-of-life (HRQOL) domains during treatment..  15:273-283. 2006
  • Improvements in health-related quality of life following a group intervention for coping with AIDS-bereavement among HIV-infected men and women..  14:991-1005. 2005
  • Whose quality of life? A commentary exploring discrepancies between health state evaluations of patients and the general public..  12:599-607. 2003
  • The health-related quality of life and survival of small-cell lung cancer patients: results of a companion study to CALGB 9033..  11:235-248. 2002
  • Psychometric evaluation of the impact of weight on quality of life-lite questionnaire (IWQOL-lite) in a community sample..  11:157-171. 2002
  • Patient preferences and utilities for 'off-time' outcomes in the treatment of Parkinson's disease..  9:819-827. 2000
  • Social support and quality of life in patients with coronary artery disease..  9:829-839. 2000
  • Towards a composite scoring solution for the Neurobehavioral Functioning Inventory..  8:17-24. 1999
  • Measurement of fatigue in cancer patients: development and validation of the Fatigue Symptom Inventory..  7:301-310. 1998
  • The relationship between visual acuity and functioning and well-being among diabetics..  4:319-323. 1995
  • Comparison of CAT and short forms for PROMIS pediatric pain and physical functioning domains in children with sickle cell disease 2022
  • Health-Related Quality of Life Profiles in Adolescents and Young Adults with Health Conditions and Diseases 2022
  • Impact on caregivers and families of patients receiving chimeric antigen receptor T-cell therapy: a prospective longitudinal mixed methods study 2022
  • Making strides with room to grow: Early evidence for incorporating PROs into an established clinical outcomes registry 2022
  • Quality of Life of Individuals Diagnosed with Unexplained Chronic Cough or Refractory Chronic Cough 2022
  • Swahili Translation and Linguistic Validation of the FACIT-PAL and FACIT-SP for Use with Chronic Illness Patients in Kenya 2022
  • An innovative approach to develop, deploy and evaluate personalised, patient-centred, outcome measurement: an international, multicentered study with the CLEFT-Q Computerised Adaptive Test 2021
  • Exploring Possible Interpretation Differences by Men and Women on the Kansas City Cardiomyopathy Questionnaire (KCCQ) via Qualitative Interviews 2021
  • Feasibility of a patient-reported outcome measure-based symptom monitoring and management intervention to improve adherence to breast cancer adjuvant endocrine therapy 2021
  • Global impressions of change for instrument validation: Adult problems in pediatric samples 2021
  • Health-related quality of life in adults with multiple myeloma 2021
  • Trajectories of symptom and quality-of-life (QOL) recovery after autologous stem cell transplantation (ASCT) in multiple myeloma (MM): secondary analysis of BMT CTN 0702 trial 2021
  • Using Mixed Methods to Evaluate Differential Item Functioning on the Kansas City Cardiomyopathy Questionnaire (KCCQ) Physical Limitations Domain 2021
  • Using PROMIS-preference (PROPr) Scores to Measure Changes in Quality of Life After Tyrosine Kinase Inhibitor Discontinuation 2021
  • Agreement between child-self-report with caregiver-report and clinician-report for symptoms in pediatric cancer treatment 2020
  • Allogeneic hematopoietic cell transplantation (alloHCT) for patients over 65 years old is not associated with worse symptoms/function than younger patients - a Center for International Blood and Marrow Transplant Research (CIBMTR) study 2020
  • Association of physical activity intensity with scores on PROMIS (R) Pediatric measures in children and adolescents with asthma 2020
  • Comparison of PROMIS computerized adaptive testing-administered item banks versus fixed short forms in Juvenile Myositis 2020
  • Decisional Regret Five Years After Couples Experiencing Infertility Seek Consultation from Reproductive Endocrinologist: A Mixed Methods Study 2020
  • Enhancing understanding of Patient-Reported Outcomes Measurement Information System (R) (PROMIS) pediatric measures of symptoms and functioning in relation to disease activity for youth with juvenile idiopathic arthritis and systemic lupus erythematosus 2020
  • Guidance for the use of PROMIS Pediatric measures in ambulatory clinics 2020
  • Perceived value and utility of the PROMIS Family Relationships measure among providers caring for chronically ill children: A qualitative interview study 2020
  • Assessing how a child with cancer functions using patient-reported and objective physical activity data 2019
  • Concept elicitation for the development of quality measures in transgender health 2019
  • Designing measures of communication ability in individuals with Angelman syndrome 2019
  • Development of a composite scoring algorithm for the National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) 2019
  • Evaluating the association between activity and PROMIS pediatric measures in children with asthma 2019
  • Psychometric evaluation of the pediatric patient-reported outcomes version of the common terminology criteria for adverse events (Pediatric PRO-CTCAE) 2019
  • Responsiveness of PROMIS (R) Pediatric measures to changes in health-related quality of life among children and adolescents undergoing treatment for cancer 2019
  • Validation of activity tracker data as a measure of fatigue, symptom burden, physical function and quality of life in adults receiving taxane therapy for treatment of stage I-III breast cancer 2019
  • Decisional regret in the first year after hematopoietic cell transplantation 2019
  • Patient-reported outcomes can inform the severity of light chain (AL) amyloidosis at diagnosis 2019
  • Strategies for implementing and disseminating the tools to optimize PROs in clinical trials 2019
  • Tools to optimize PROs in clinical trials 2019
  • Anxiety, depression, and fertility-specific quality of life among couples experiencing infertility 2018
  • Comprehension of patient-reported outcome items by older adult patients with mild or moderate cognitive impairment 2018
  • Identifying clinically meaningful severity categories for symptom experience or functional impairment for PROMIS Pediatric measures of anxiety, mobility, and fatigue in Juvenile Idiopathic Arthritis 2018
  • Symptom monitoring using patient-reported outcome (PRO) instruments in pediatric oncology patients hospitalized for chemotherapy: a feasibility study 2018
  • Methods for aiding interpretation of PRO scores 2018
  • Psychometric evaluation of the immunoglobulin patient experience with treatment (IgPET) in primary immunodeficiency diseases 2018
  • NRG Oncology/RTOG 0415, hypofractionation in patients with low-risk prostate cancer: are patient reported outcomes the practice change tipping point? 2017
  • Assessing the relationship between self-efficacy and socioeconomic status using the communication and attitudinal self-efficacy general scale 2016
  • Developing content for a PRO instrument for surgical and traumatic scars: qualitative phase 2016
  • Feasibility and added value of meaningful patient involvement in the development of a core outcome set for psoriatic arthritis 2016
  • Patient-reported outcome scores significantly predict overall survival for patients undergoing allogeneic hematopoietic cell transplants 2016
  • Recent sexual function and satisfaction by sexual orientation in US adults 2016
  • Evaluating power in regression mixture models: a simulation study using patient-reported outcome data 2016
  • Are health-related quality of life decrements after breast cancer diagnosis time-limited for women ages 65 and older?: A matched comparative study of medicare beneficiaries 2013
  • Behind the scenes: a review of instruments used in electronic patient-reported outcomes systems 2013
  • Interpretation of patient-reported outcome results in routine clinical oncology practice: a literature review of presentation considerations 2013
  • Mood and Gender Effects on the Accuracy of 30-day Recall of Sexual Function 2012
  • Validating the PROMIS (R) Sexual Function Brief Profile Measures 2012
  • Validity of 1-month Recall for Components of Sexual Function (MT) 2012
  • Development of the Patient-Reported Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) 2010
  • Perceived Barriers to Implementing the Patient-Reported Outcomes-Common Toxicity Criteria Adverse Event (PRO-CTCAE) System in Cancer Clinical Trials 2010
  • Applying item response theory to enhance health outcomes assessment 2007
  • Applying item response theory (IRT) modeling to questionnaire development, evaluation, and refinement. 2007
  • Developing tailored instruments: item banking and computerized adaptive assessment. 2007
  • Enhancing measurement in health outcomes research supported by Agencies within the US Department of Health and Human Services. 2007
  • IRT health outcomes data analysis project: an overview and summary. 2007
  • Methodological issues for building item banks and computerized adaptive scales. 2007