Patient Reported Outcome Measures

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  Subject Areas on Research

  • "Going Flat" After Mastectomy: Patient-Reported Outcomes by Online Survey. 
  • "I wanted to participate in my own care": Evaluation of a Patient Navigation Program. 
  • 'Minimal symptom expression' in patients with acetylcholine receptor antibody-positive refractory generalized myasthenia gravis treated with eculizumab. 
  • 2016 American College of Rheumatology/European League Against Rheumatism Criteria for Minimal, Moderate, and Major Clinical Response in Adult Dermatomyositis and Polymyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheumatology International Trials Organisation Collaborative Initiative. 
  • 2016 American College of Rheumatology/European League Against Rheumatism Criteria for Minimal, Moderate, and Major Clinical Response in Juvenile Dermatomyositis: An International Myositis Assessment and Clinical Studies Group/Paediatric Rheumatology International Trials Organisation Collaborative Initiative. 
  • A 2-Year Holistic Health and Stress Intervention: Results of an RCT in Clergy. 
  • A Cohort Study of Patient-Reported Outcomes and Healthcare Utilization in Acute Myeloid Leukemia Patients Receiving Active Cancer Therapy in the Last Six Months of Life. 
  • A Comparison of PROMIS Physical Function and Pain Interference Scores in Patients With Carpal Tunnel Syndrome: Research Collection Versus Routine Clinical Collection. 
  • A Comparison of PROMIS UE Versus PF: Correlation to PROMIS PI and Depression, Ceiling and Floor Effects, and Time to Completion. 
  • A Comparison of Patient-Reported Outcomes in Bipedicled Total Abdominal versus Unipedicled Hemiabdominal Free Flaps for Unilateral Breast Reconstruction. 
  • A Controlled Pilot Trial of PainTracker Self-Manager, a Web-Based Platform Combined With Patient Coaching, to Support Patients' Self-Management of Chronic Pain. 
  • A High-Sensitivity International Knee Documentation Committee Survey Index From the PROMIS System: The Next-Generation Patient-Reported Outcome for a Knee Injury Population. 
  • A Longitudinal Comparison of Patient-Reported Outcomes Measurement Information System to Legacy Scales in Knee and Shoulder Arthroscopy Patients. 
  • A Multicenter Prospective Investigation on Patient Physical and Mental Health After Girdlestone Resection Arthroplasty. 
  • A National Snapshot of Patient-Reported Outcomes Comparing Types of Abdominal Flaps for Breast Reconstruction. 
  • A Pathway for Developing Postoperative Opioid Prescribing Best Practices. 
  • A comprehensive assessment of patient reported symptom burden, medical comorbidities, and functional well being in patients initiating direct acting antiviral therapy for chronic hepatitis C: Results from a large US multi-center observational study. 
  • A cross-sectional study of patient-reported outcomes and symptom burden using PROMIS and PRO-CTCAE measures in light chain amyloidosis. 
  • A novel patient-reported outcome for paediatric localized scleroderma: a qualitative assessment of content validity. 
  • A novel patient-reported outcome monitoring with clinical feedback system in bariatric surgery care: study protocol, design and plan for evaluation. 
  • A qualitative study of quality of life domains and subdomains relevant to patients with spondyloarthritis. 
  • A review of systematic reviews on the effects of patient-reported outcome monitoring with clinical feedback systems on health-related quality of life-implications for a novel technology in obesity treatment. 
  • A systematic review of measurement properties of patient reported outcome measures in psoriatic arthritis: A GRAPPA-OMERACT initiative. 
  • A systematic review of patient-reported outcome measures patients with chronic limb-threatening ischemia. 
  • A tutorial on the use of exploratory efficacy outcomes in uncontrolled phase I cell therapy trials. 
  • AOFAS Position Statement Regarding Patient-Reported Outcome Measures. 
  • ASO Visual Abstract: "Going Flat" After Mastectomy: Patient-Reported Outcomes by Online Survey. 
  • AUGS-PERFORM: A New Patient-Reported Outcome Measure to Assess Quality of Prolapse Care. 
  • Activities, function, and health-related quality of life (HRQOL) of older adults with cancer. 
  • Adding Centralized Electronic Patient-Reported Outcome Data Collection to an Established International Clinical Outcomes Registry. 
  • Adjuvant sunitinib in patients with high-risk renal cell carcinoma: safety, therapy management, and patient-reported outcomes in the S-TRAC trial. 
  • Agreement of Ocular Symptom Reporting Between Patient-Reported Outcomes and Medical Records. 
  • American Society for Enhanced Recovery and Perioperative Quality Initiative Joint Consensus Statement on Patient-Reported Outcomes in an Enhanced Recovery Pathway. 
  • An Exploratory Factor Analysis of the National Institutes of Health Patient-Reported Outcomes Measurement Information System and the Single Assessment Numeric Evaluation in Knee Surgery Patients. 
  • An analysis of missing items in real-world electronic patient reported outcomes data: implications for clinical care. 
  • An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model. 
  • Analyzing and interpreting patient-reported outcome measures in clinical trials: comment on Collister et al. 
  • Ankle-brachial index in patients with intermittent claudication is a poor indicator of patient-centered and clinician-based evaluations of functional status. 
  • Anterior Cruciate Ligament Reconstruction: A Comparative Clinical Study Between Adjustable and Fixed Length Suspension Devices. 
  • Anterior and Rotational Knee Laxity Does Not Affect Patient-Reported Knee Function 2 Years After Anterior Cruciate Ligament Reconstruction. 
  • Anxiety and Depressive Symptoms Are Not Associated With Future Pediatric Crohn's Disease Activity. 
  • Applying patient-reported outcome methodology to capture patient-reported health data: Report from an NIH Collaboratory roundtable. 
  • Appraisal of Candidate Instruments for Assessment of the Physical Function Domain in Patients with Psoriatic Arthritis. 
  • Are Psychosocial Factors Associated With Patient-reported Outcome Measures in Patients With Rotator Cuff Tears? A Systematic Review. 
  • Are extra-spinal symptoms associated with quality of life in patients with axial spondyloarthritis? A 1-year follow-up study. 
  • Aromatase Inhibitor Symptom Management Practices: A Retrospective Study. 
  • Arthroscopic Surgery or Physical Therapy for Patients With Femoroacetabular Impingement Syndrome: A Randomized Controlled Trial With 2-Year Follow-up. 
  • Articular Cartilage and Meniscus Predictors of Patient-Reported Outcomes 10 Years After Anterior Cruciate Ligament Reconstruction: A Multicenter Cohort Study. 
  • Assessing Patient-Reported Outcomes in Pediatric Rheumatic Diseases: Considerations and Future Directions. 
  • Assessing Patient-Reported Outcomes: A Negotiated Process. 
  • Assessing the impact of a remote digital coaching engagement program on patient-reported outcomes in asthma. 
  • Assessment of variability in motor grading and patient-reported outcome reporting: a multi-specialty, multi-national survey. 
  • Assessment of vulvar discomfort with sexual activity among women in the United States. 
  • Association Between Neighborhood-Level Socioeconomic Disadvantage and Patient-Reported Outcomes in Lumbar Spine Surgery. 
  • Association between patient-reported hearing and visual impairments and functional, psychological, and cognitive status among older adults with cancer. 
  • Association between patient-reported social, behavioral, and health factors and emergency department visits in high-risk VA patients. 
  • Association of Financial Strain With Symptom Burden and Quality of Life for Patients With Lung or Colorectal Cancer. 
  • Association of Opioid Prescribing With Opioid Consumption After Surgery in Michigan. 
  • Association of consistently suboptimal quality of life with consistently poor asthma control in children with asthma. 
  • Association of lumbar spine stiffness and flexion-relaxation phenomenon with patient-reported outcomes in adults with chronic low back pain - a single-arm clinical trial investigating the effects of thrust spinal manipulation. 
  • Association of obesity with patient-reported outcomes in patients with axial spondyloarthritis: a cross-sectional study in an urban Asian population. 
  • Association of step count with PROMIS pediatric health-related quality of life measures in children and adolescents with persistent asthma. 
  • Associations between Patient-reported Outcomes and Death or Lung Transplant in Idiopathic Pulmonary Fibrosis. Data from the Idiopathic Pulmonary Fibrosis Prospective Outcomes Registry. 
  • Baseline Patient-Reported Outcomes Correlate Weakly With Radiographic Parameters: A Multicenter, Prospective NIH Adult Symptomatic Lumbar Scoliosis Study of 286 Patients. 
  • Baseline characteristics of children with juvenile dermatomyositis enrolled in the first year of the new Childhood Arthritis and Rheumatology Research Alliance registry. 
  • Baseline patient-reported outcomes in light-chain amyloidosis patients enrolled on an interventional clinical trial. 
  • Benefits to patient care of electronically capturing patient-reported outcomes in dermatology. 
  • Beyond the Eckardt Score: Patient-Reported Outcomes Measures in Esophageal Disorders. 
  • Biceps Tenodesis Is a Viable Option for Management of Proximal Biceps Injuries in Patients Less Than 25 Years of Age. 
  • Body mass index and patient-reported function, quality of life and treatment toxicity in women receiving adjuvant chemotherapy for breast cancer. 
  • Breast Cancer and Reconstruction: Normative Data for Interpreting the BREAST-Q. 
  • Breast sensorisexual function: a novel patient-reported outcome measure of sexual sensory functions of the breast. 
  • Bridging New Technology Into Clinical Practice With Mobile Apps, Electronic Patient-Reported Outcomes, and Wearables. 
  • Burosumab treatment in adults with X-linked hypophosphataemia: 96-week patient-reported outcomes and ambulatory function from a randomised phase 3 trial and open-label extension. 
  • COMPASS-CP: An Electronic Application to Capture Patient-Reported Outcomes to Develop Actionable Stroke and Transient Ischemic Attack Care Plans. 
  • Can Patient-Reported Outcome Measurement Information System Measures Differentiate Patients Who Will Undergo Hip and Knee Total Joint Arthroplasty: A Retrospective Case-Control Study. 
  • Can Steps per Day Reflect Symptoms in Children and Adolescents Undergoing Cancer Treatment? 
  • Can we agree on patient-reported outcome measures for assessing hematopoietic cell transplantation patients? A study from the CIBMTR and BMT CTN. 
  • Capsule Commentary on Shortell et al., A Multilevel Analysis of Patient Engagement and Patient-Reported Outcomes in Primary Care Practices of Accountable Care Organizations. 
  • Centralized patient-reported outcome data collection in transplantation is feasible and clinically meaningful. 
  • Changes in Infrapatellar Fat Pad Volume 6 to 12 Months After Anterior Cruciate Ligament Reconstruction and Associations With Patient-Reported Knee Function. 
  • Changes in patient-reported outcomes in light chain amyloidosis in the first year after diagnosis and relationship to NT-proBNP change. 
  • Changes in quality of life 5 years after sleeve gastrectomy: a prospective cohort study. 
  • Chiropractic Integrated Care Pathway for Low Back Pain in Veterans: Results of a Delphi Consensus Process. 
  • Clarifying the Meaning of Clinically Meaningful Benefit in Clinical Research: Noticeable Change vs Valuable Change. 
  • Clinical Characteristics and Factors Associated With Disability and Impaired Quality of Life in Children With Juvenile Systemic Sclerosis: Results From the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry. 
  • Clinical Utility and User Perceptions of a Digital System for Electronic Patient-Reported Symptom Monitoring During Routine Cancer Care: Findings From the PRO-TECT Trial. 
  • Clinical and Angiographic Predictors of Patient-Reported Angina 1 Year After Coronary Artery Bypass Graft Surgery. 
  • Clinical events and patient-reported outcome measures during CKD progression: findings from the Chronic Renal Insufficiency Cohort Study. 
  • Clinical trial discrimination of physical function instruments for psoriatic arthritis: A systematic review. 
  • Clinically Meaningful Improvements After Hip Arthroscopy for Femoroacetabular Impingement in Adolescent and Young Adult Patients Regardless of Gender. 
  • Clinically meaningful changes on depressive symptom measures and patient-reported outcomes in patients with treatment-resistant depression. 
  • Cognitive Interview-Based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events in Adolescents with Cancer. 
  • Cohort profile: patient characteristics and quality-of-life measurements for newly-referred patients with atrial fibrillation-Keio interhospital Cardiovascular Studies-atrial fibrillation (KiCS-AF). 
  • Comment on 'Patient-reported outcomes and the patient experience of acute myeloid leukemia among older adults'. 
  • Commentary: Surgery for Degenerative Cervical Myelopathy: A Nationwide Registry-Based Observational Study With Patient-Reported Outcomes. 
  • Comparing New York Heart Association Class and Patient-Reported Outcomes Among Patients Hospitalized for Heart Failure. 
  • Comparing and Contrasting the Clinical Utility of Sagittal Spine Alignment Classification Frameworks: Roussouly Versus SRS-Schwab. 
  • Comparison of New York Heart Association Class and Patient-Reported Outcomes for Heart Failure With Reduced Ejection Fraction. 
  • Comparison of Outcomes Following Anterior vs Posterior Fusion Surgery for Patients With Degenerative Cervical Myelopathy: An Analysis From Quality Outcomes Database. 
  • Comparison of Patient- and Practitioner-Reported Toxic Effects Associated With Chemoradiotherapy for Head and Neck Cancer. 
  • Comparison of Patient-Reported Care Satisfaction, Quality of Warfarin Therapy, and Outcomes of Atrial Fibrillation: Findings From the ORBIT - AF Registry. 
  • Comparison of Patient-Reported Outcomes Measurement Information System Computerized Adaptive Testing Versus Fixed Short Forms in Juvenile Myositis. 
  • Comparison of the Michigan Hand Outcomes Questionnaire, Boston Carpal Tunnel Questionnaire, and PROMIS Instruments in Carpal Tunnel Syndrome. 
  • Composite Metric for Benchmarking Site Performance in Transcatheter Aortic Valve Replacement: Results From the STS/ACC TVT Registry. 
  • Composite grading algorithm for the National Cancer Institute's Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE). 
  • Composite psychosocial risk based on the fear avoidance model in patients undergoing anterior cruciate ligament reconstruction: Cluster-based analysis. 
  • Concordance Between Patient-Reported Health Data and Electronic Health Data in the ADAPTABLE Trial. 
  • Concurrent validity of the single assessment numerical evaluation and patient-reported functional measures in patients with musculoskeletal disorders: An observational study. 
  • Congruence of patient- and clinician-reported toxicity in women receiving chemotherapy for early breast cancer. 
  • Consensus recommendations on the classification, definition and diagnostic criteria of hip-related pain in young and middle-aged active adults from the International Hip-related Pain Research Network, Zurich 2018. 
  • Considerations to Support Use of Patient-Reported Outcomes Measurement Information System Pediatric Measures in Ambulatory Clinics. 
  • Consistent improvement with eculizumab across muscle groups in myasthenia gravis. 
  • Construct Validity and Item Response Theory Analysis of the PROMIS-29 v2.0 in Recipients of Lumbar Spine Surgery. 
  • Construct validity of Patient-Reported Outcomes Measurement Information System Paediatric measures in juvenile idiopathic arthritis and systemic lupus erythematosus: cross-sectional evaluation. 
  • Constructing arguments for the interpretation and use of patient-reported outcome measures in research: an application of modern validity theory. 
  • Content Validity of the LIMB-Q: A Patient-Reported Outcome Instrument for Lower Extremity Trauma Patients. 
  • Content validity of the PROMIS® pediatric family relationships measure for children with chronic illness. 
  • Core Outcome Measures for Chronic Musculoskeletal Pain Research: Recommendations from a Veterans Health Administration Work Group. 
  • Correlation of 2-year SRS-22r and ODI patient-reported outcomes with 5-year patient-reported outcomes after complex spinal fusion: a 5-year single-institution study of 118 patients. 
  • Correspondence Between Clinician Ratings of Vulvovaginal Health and Patient-Reported Sexual Function After Cancer. 
  • Customization of the TRU-PBMT App (Technology Recordings to better Understand Pediatric Blood and Marrow Transplant). 
  • Decision Regret Related to Urinary Diversion Choice among Patients Treated with Cystectomy. 
  • Demographic Factors Associated with Patient-Reported Outcome Measures in Pain Management. 
  • Depression and Pain Interference Correlate With Physical Function in Patients Recovering From Hand Surgery. 
  • Design and Rationale of the Metastatic Renal Cell Carcinoma (MaRCC) Registry: A Prospective Academic and Community-Based Study of Patients With Metastatic Renal Cell Cancer. 
  • Design and analytic considerations for using patient-reported health data in pragmatic clinical trials: report from an NIH Collaboratory roundtable. 
  • Design and rationale for the life after stopping tyrosine kinase inhibitors (LAST) study, a prospective, single-group longitudinal study in patients with chronic myeloid leukemia. 
  • Design of a Study to Measure Patient-Perspectives in Adverse Event Reporting (the PPAR Study): Supplementary Study to the ASPIRe Trial. 
  • Determinants of Patient Satisfaction 2 Years After Spinal Deformity Surgery: A Latent Class Analysis. 
  • Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures. 
  • Determining the Generalizability of the PROMIS Depression Domain's Floor Effect and Completion Time in Patients Undergoing Orthopaedic Surgery. 
  • Determining the Independent Risk Factors for Worse SCAR-Q Scores and Future Scar Revision Surgery. 
  • Development and Evaluation of the Boston University Osteoarthritis Functional Pain Short Form (BU-OA-FPS). 
  • Development and Validation of Cervical Prediction Models for Patient-Reported Outcomes at 1 Year After Cervical Spine Surgery for Radiculopathy and Myelopathy. 
  • Development and validation of a primary sclerosing cholangitis-specific patient-reported outcomes instrument: The PSC PRO. 
  • Development of Reliable and Valid Negative Mood Screening Tools for Orthopaedic Patients with Musculoskeletal Pain. 
  • Development of a conceptual model of patient-reported outcomes in light chain amyloidosis: a qualitative study. 
  • Development of an Item Bank to Measure Medication Adherence: Systematic Review. 
  • Development of an international standard set of outcome measures for patients with atrial fibrillation: a report of the International Consortium for Health Outcomes Measurement (ICHOM) atrial fibrillation working group. 
  • Development of an international standard set of outcome measures for patients with venous thromboembolism: an International Consortium for Health Outcomes Measurement consensus recommendation. 
  • Development of the KOOSglobal Platform to Measure Patient-Reported Outcomes After Anterior Cruciate Ligament Reconstruction. 
  • Differences in Patient-Reported Outcomes Between Anterior and Posterior Approaches for Treatment of Cervical Spondylotic Myelopathy: A Quality Outcomes Database Analysis. 
  • Discrete and Dynamic Postoperative Pain Catastrophizing Trajectories Across 6 Months: A Prospective Observational Study. 
  • Disease understanding in patients newly diagnosed with atrial fibrillation. 
  • Do PRO Measures Function the Same Way for all Individuals With Heart Failure? 
  • Do psychosocial interventions improve rehabilitation outcomes after anterior cruciate ligament reconstruction? A systematic review. 
  • Do the Number of Visits and the Cost of Musculoskeletal Care Improve Outcomes? More May Not Be Better. 
  • Dysregulated Inflammatory Response Related to Cartilage Degradation after ACL Injury. 
  • Early Patient-Reported Outcomes Predict 3-Year Outcomes in Operatively Treated Patients with Adult Spinal Deformity. 
  • Eating self-efficacy as predictor of long-term weight loss and obesity-specific quality of life after sleeve gastrectomy: A prospective cohort study. 
  • Economic Analysis and Clinical Outcomes of Short-Stay Versus Inpatient Total Ankle Replacement Surgery. 
  • Editorial Commentary: Patient-Reported Outcomes Measurement Information System (PROMIS) Needs an Anchor to Correlate Pain and Satisfactory Function in New Patient Orthopaedic Visits. 
  • Effect of Comorbid Knee and Hip Osteoarthritis on Longitudinal Clinical and Health Care Use Outcomes in Older Adults With New Visits for Back Pain. 
  • Effect of Electronic Symptom Monitoring on Patient-Reported Outcomes Among Patients With Metastatic Cancer: A Randomized Clinical Trial. 
  • Effect of Enzalutamide plus Androgen Deprivation Therapy on Health-related Quality of Life in Patients with Metastatic Hormone-sensitive Prostate Cancer: An Analysis of the ARCHES Randomised, Placebo-controlled, Phase 3 Study. 
  • Effect of Gender Differences on Patient-Reported Outcomes and Complications in Total Ankle Replacement. 
  • Effect of High-Grade Preoperative Knee Laxity on 6-Year Anterior Cruciate Ligament Reconstruction Outcomes. 
  • Effect of patient-centered transitional care services on patient-reported outcomes in heart failure: sex-specific analysis of the PACT-HF randomized controlled trial. 
  • Effect of sacrospinous hysteropexy with graft vs vaginal hysterectomy with uterosacral ligament suspension on treatment failure in women with uterovaginal prolapse: 5-year results of a randomized clinical trial. 
  • Effectiveness of a Medical vs Revascularization Intervention for Intermittent Leg Claudication Based on Patient-Reported Outcomes. 
  • Effects of Omecamtiv Mecarbil on Symptoms and Health-Related Quality of Life in Patients With Chronic Heart Failure: Results From the COSMIC-HF Study. 
  • Effects of physical activity interventions using wearables to improve objectively-measured and patient-reported outcomes in adults following orthopaedic surgical procedures: A systematic review. 
  • Efficacy and safety of simeprevir and sofosbuvir with and without ribavirin in subjects with recurrent genotype 1 hepatitis C postorthotopic liver transplant: the randomized GALAXY study. 
  • Efficacy of PROMIS Pain Interference and Likert Pain Scores to Assess Physical Function. 
  • Electronic health record-integrated approach for collection of patient-reported outcome measures: a retrospective evaluation. 
  • Electronic symptom monitoring in pediatric patients hospitalized for chemotherapy. 
  • Elevated C-Reactive Protein and Subsequent Patient-Reported Cognitive Problems in Older Breast Cancer Survivors: The Thinking and Living With Cancer Study. 
  • Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative. 
  • Enabling patient-reported outcome measures in clinical trials, exemplified by cardiovascular trials. 
  • End points for sickle cell disease clinical trials: patient-reported outcomes, pain, and the brain. 
  • Establishing outcome measures in early knee osteoarthritis. 
  • Evaluating the Impact of Patient Social Deprivation on the Level of Symptom Severity at Carpal Tunnel Syndrome Presentation. 
  • Evaluation of Clinical Recovery After Surgical Treatment for Hand Ischemia From Vasospastic and Occlusive Disease Using PROMIS. 
  • Evaluation of PROMIS Outcomes for Surgical Treatment of Cubital Tunnel Syndrome With and Without Carpal Tunnel Syndrome. 
  • Evaluation of PROMIS' Ability to Detect Immediate Postoperative Symptom Improvement Following Carpal Tunnel Release. 
  • Evaluation of different recall periods for the US National Cancer Institute's PRO-CTCAE. 
  • Evaluations of the sum-score-based and item response theory-based tests of group mean differences under various simulation conditions. 
  • Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment. 
  • Experts on their own experiences: the rise of patient-reported outcomes in oncology drug trials. 
  • Factors Associated With Initiation of Biologics in Patients With Axial Spondyloarthritis in an Urban Asian City: A PRESPOND Study. 
  • Factors Associated With Long-term Outcomes After Injury: Results of the Functional Outcomes and Recovery After Trauma Emergencies (FORTE) Multicenter Cohort Study. 
  • Factors Associated With a Discretionary Upper-Extremity Surgery. 
  • Fat Grafting-More Than Just the Hype. 
  • Feasibility and delivery of patient-reported outcomes in clinical practice among racially diverse bladder and prostate cancer patients. 
  • Feasibility of Patient Reporting of Symptomatic Adverse Events via the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) in a Chemoradiotherapy Cooperative Group Multicenter Clinical Trial. 
  • Feasibility, safety, and efficacy of aerobic training in pretreated patients with metastatic breast cancer: A randomized controlled trial. 
  • Femoroacetabular impingement surgery allows 74% of athletes to return to the same competitive level of sports participation but their level of performance remains unreported: a systematic review with meta-analysis. 
  • Financial difficulties and patient-reported outcomes among patients with advanced heart failure. 
  • First-line nivolumab plus ipilimumab versus chemotherapy for the treatment of unresectable malignant pleural mesothelioma: patient-reported outcomes in CheckMate 743. 
  • Five Recommendations to Address the Limitations of Patient-Reported Outcome Measures. 
  • Four Variables Were Sufficient for Low Back Pain: Determining Which Patient-Reported Tools Pain and Disability Improvements. 
  • From obligation to opportunity: future of patient-reported outcome measures at the Veterans Health Administration. 
  • Generating the American Shoulder and Elbow Surgeons Score Using Multivariable Predictive Models and Computer Adaptive Testing to Reduce Survey Burden. 
  • Geriatric Assessment as a Predictor of Tolerance, Quality of Life, and Outcomes in Older Patients With Head and Neck Cancers and Lung Cancers Receiving Radiation Therapy. 
  • HAGOS Could Be Important in the Evaluation of Patients Undergoing Hip Arthroscopy-Why Ignore It in a Sports Medicine Update When the Scientific Data Suggests Otherwise? Letter to the Editor. 
  • Health Equity Considerations for Developing and Reporting Patient-reported Outcomes in Clinical Trials: A Report from the OMERACT Equity Special Interest Group. 
  • Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome. 
  • Health-Related Quality of Life of Patients with Chronic Myeloid Leukemia as Measured by Patient-Reported Outcomes: Current State and Future Directions. 
  • Health-related quality of life in adolescents and young adults with cancer who received radiation therapy: a scoping review. 
  • Health-related quality of life in the randomised KEYNOTE-002 study of pembrolizumab versus chemotherapy in patients with ipilimumab-refractory melanoma. 
  • Hepatitis C in Patients With Minimal or No Hepatic Fibrosis: The Impact of Treatment and Sustained Virologic Response on Patient-Reported Outcomes. 
  • Hip Arthroscopic Surgery for Femoroacetabular Impingement With Capsular Management: Factors Associated With Achieving Clinically Significant Outcomes. 
  • How Many Steps Per Day During the Early Postoperative Period are Associated With Patient-Reported Outcomes of Disability, Pain, and Opioid Use After Lumbar Spine Surgery? 
  • How Should We Use Patient-Reported Outcome Measures at the Point of Care in Hand Surgery? 
  • How are patient-reported outcomes and symptoms being measured in adults with relapsed/refractory multiple myeloma? A systematic review. 
  • Identification of Patient-Reported Outcome Phenotypes Among Oncology Patients With Palliative Care Needs. 
  • Identifying Factors Most Important to Lower Extremity Trauma Patients: Key Concepts from the Development of a Patient-Reported Outcome Instrument for Lower Extremity Trauma, The LIMB-Q. 
  • Identifying clinically meaningful severity categories for PROMIS pediatric measures of anxiety, mobility, fatigue, and depressive symptoms in juvenile idiopathic arthritis and childhood-onset systemic lupus erythematosus. 
  • Identifying symptomatic adverse events using the patient-reported outcomes version of the common terminology criteria for adverse events in patients with non-small cell lung cancer with epidermal growth factor receptor exon 20 insertion mutations. 
  • Impact of Affective Disorders on Recovery of Baseline Function in Patients Undergoing Spinal Surgery: A Single Institution Study of 275 Patients. 
  • Impact of Dominant Symptom on 12-Month Patient-Reported Outcomes for Patients Undergoing Lumbar Spine Surgery. 
  • Impact of Gender Disparities on Short-Term and Long-Term Patient Reported Outcomes and Satisfaction Measures After Elective Lumbar Spine Surgery: A Single Institutional Study of 384 Patients. 
  • Impact of Insurance Type on Self-Reported Symptom Severity at the Preoperative Visit for Carpal Tunnel Release. 
  • Impact of bladder cancer on health-related quality of life. 
  • Impact of enzalutamide on patient-reported fatigue in patients with prostate cancer: data from the pivotal clinical trials. 
  • Impact of pediatric cancer on family relationships. 
  • Impact of port site scar on perception of patients with breast cancer: patient-reported outcomes. 
  • Impact of predominant symptom location among patients undergoing cervical spine surgery on 12-month outcomes: an analysis from the Quality Outcomes Database. 
  • Implementation of Electronic Patient-Reported Outcomes in Routine Cancer Care at an Academic Center: Identifying Opportunities and Challenges. 
  • Implementation of Lung Cancer Screening in the Veterans Health Administration. 
  • Important clinical descriptors to include in the examination and assessment of patients with femoroacetabular impingement syndrome: an international and multi-disciplinary Delphi survey. 
  • Improvement in SRS-22R Self-Image Correlate Most with Patient Satisfaction after 3-Column Osteotomy. 
  • Improving Prediction of Long-Term Care Utilization Through Patient-Reported Measures: Cross-Sectional Analysis of High-Need U.S. Veterans Affairs Patients. 
  • Inclusion of a core patient-reported outcomes battery in adolescent and young adult cancer clinical trials. 
  • Incorporating Multiple Perspectives Into the Development of an Electronic Survivorship Platform for Head and Neck Cancer. 
  • Incorporating the patient perspective in the study of rare bone disease: insights from the osteogenesis imperfecta community. 
  • Inflammatory Bowel Diseases Can Adversely Impact Domains of Sexual Function Such as Satisfaction with Sex Life. 
  • Influence of racial disparities on patient-reported satisfaction and short- and long-term perception of health status after elective lumbar spine surgery. 
  • Initial Content Validation and Roadmap for a New Patient-Reported Outcome Measure of Pain Intensity. 
  • Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson's Disease Research: The Fox Insight Cohort Experience. 
  • Integration of Electronic Patient-Reported Outcomes Into Routine Cancer Care: An Analysis of Factors Affecting Data Completeness. 
  • Integration of Patient-Reported Outcome Measures in the Electronic Health Record: The Veterans Affairs Experience. 
  • Intermediate-term Patient-Reported Outcomes and Radiographic Evaluation Following Intramedullary- vs Extramedullary-Referenced Total Ankle Replacement. 
  • International guidance on the selection of patient-reported outcome measures in clinical trials: a review. 
  • International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials. 
  • Is Traditional Chinese Medicine Use Associated with Worse Patient-reported Outcomes among Chinese American Rheumatology Patients? 
  • Knee Extensor Rate of Torque Development Before and After Arthroscopic Partial Meniscectomy, With Analysis of Neuromuscular Mechanisms. 
  • Known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) in adolescents and young adults with special healthcare needs. 
  • Lack of Concordance in Symptomatic Adverse Event Reporting by Children, Clinicians, and Caregivers: Implications for Cancer Clinical Trials. 
  • Lagged effect of Patient-Reported Outcomes Measurement Information System (PROMIS) Sleep Disturbance on subacute postsurgical PROMIS Pain Behavior. 
  • Laminectomy alone versus fusion for grade 1 lumbar spondylolisthesis in 426 patients from the prospective Quality Outcomes Database. 
  • Laminoplasty versus laminectomy with fusion for the treatment of spondylotic cervical myelopathy: short-term follow-up. 
  • Latent Factor Analysis of the PROMIS and Single Assessment Numeric Evaluation in Patients Undergoing Shoulder Surgery. 
  • Lay Health Worker-Led Cancer Symptom Screening Intervention and the Effect on Patient-Reported Satisfaction, Health Status, Health Care Use, and Total Costs: Results From a Tri-Part Collaboration. 
  • Leveraging electronic health records for clinical research. 
  • Listening to the Patient Voice Adds Value to Cancer Clinical Trials. 
  • Logistical challenges and design considerations for studies using acute anterior cruciate ligament injury as a potential model for early posttraumatic osteoarthritis. 
  • Long-term Benefits of Sustained Virologic Response for Patient-Reported Outcomes in Patients With Chronic Hepatitis C Virus Infection. 
  • Long-term dysphagia resolution following POEM versus Heller myotomy for achalasia patients. 
  • Longitudinal use of patient reported outcomes in pediatric leukemia and lymphoma reveals clinically relevant symptomatic adverse events. 
  • Making a picture worth a thousand numbers: recommendations for graphically displaying patient-reported outcomes data. 
  • Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and research. 
  • Maximal hip muscle strength and rate of torque development 6-30 months after hip arthroscopy for femoroacetabular impingement syndrome: A cross-sectional study. 
  • Measurement Properties of Existing Patient-Reported Outcome Measures on Medication Adherence: Systematic Review. 
  • Measurement Properties of Patient-Reported Outcome Measures for Diabetes: Systematic Review. 
  • Measurement and Variation in Estimation of Quality of Life Effects of Patients Undergoing Treatment for Papillary Thyroid Carcinoma. 
  • Measurement properties of Patient-Reported Outcome Measures used to assess the sleep quality in adults with high prevalence chronic pain conditions: a systematic review. 
  • Measurement properties of patient reported outcome measures for spondyloarthritis: A systematic review. 
  • Measurement-based care using DSM-5 for opioid use disorder: can we make opioid medication treatment more effective? 
  • Measuring health-related quality of life in adolescent and young adult cancer survivors with the National Institutes of Health Patient-Reported Outcomes Measurement Information System® : Comparing adolescent, emerging adult, and young adult survivor perspectives. 
  • Medical Management of Penile and Urethral Lichen Sclerosus with Topical Clobetasol Improves Long-Term Voiding Symptoms and Quality of Life. 
  • Mental Health, Sleep and Physical Function in Treatment Seeking Women with Urinary Incontinence. 
  • Minimal Clinically Important Difference for PROMIS Physical Function and Pain Interference in Patients Following Surgical Treatment of Distal Radius Fracture. 
  • Minimal Clinically Important Differences for PROMIS Physical Function, Upper Extremity, and Pain Interference in Carpal Tunnel Release Using Region- and Condition-Specific PROM Tools. 
  • Minimally Invasive Spinal Deformity Surgery: Analysis of Patients Who Fail to Reach Minimal Clinically Important Difference. 
  • Mobile Phone Administration of Hip-Specific Patient-Reported Outcome Instruments Correlates Highly With In-office Administration. 
  • Mode effects between computer self-administration and telephone interviewer-administration of the PROMIS(®) pediatric measures, self- and proxy report. 
  • Modifiable patient-reported factors associated with cancer-screening knowledge and participation in a community-based health assessment. 
  • Most Military Service Members Return to Activity Duty With Limitations After Surgery for Femoroacetabular Impingement Syndrome: A Systematic Review. 
  • Moving toward patient-centered care in the emergency department: Patient-reported expectations, definitions of success, and importance of improvement in pain-related outcomes. 
  • Multi-Stakeholder Qualitative Interviews to Inform Measurement of Patient Reported Outcomes After CAR-T. 
  • Multidimensional Perioperative Recovery Trajectories in a Mixed Surgical Cohort: A Longitudinal Cluster Analysis Utilizing National Institutes of Health Patient-Reported Outcome Measurement Information System Measures. 
  • Nasal obstruction symptom evaluation (NOSE) score outcomes after septorhinoplasty. 
  • Neighborhood Deprivation and Rurality Associated With Patient-Reported Outcomes and Survival in Men With Prostate Cancer in NRG Oncology RTOG 0415. 
  • Neither Residual Anterior Knee Laxity Up to 6 mm nor a Pivot Glide Predict Patient-Reported Outcome Scores or Subsequent Knee Surgery Between 2 and 6 Years After ACL Reconstruction. 
  • Nerve Injury With Acetabulum Fractures: Incidence and Factors Affecting Recovery. 
  • Normative Data for Interpreting the BREAST-Q: Augmentation. 
  • Not Achieving Sustained Viral Eradication of Hepatitis C Virus After Treatment Leads to Worsening Patient-reported Outcomes. 
  • Novel Questionnaires for Assessing Signs and Symptoms of Eosinophilic Esophagitis in Children. 
  • Obese Patients Benefit, but do not Fare as Well as Nonobese Patients, Following Lumbar Spondylolisthesis Surgery: An Analysis of the Quality Outcomes Database. 
  • Oh, the Places We'll Go: Patient-Reported Outcomes and Electronic Health Records. 
  • Opening Pandora's Box: From Readmissions to Transitional Care Patient-Centered Outcome Measures. 
  • Operative Treatment is Not Associated with More Relief of Depression Symptoms than Nonoperative Treatment in Patients with Common Hand Illness. 
  • Outcome at 1 year in patients with femoral shaft fractures treated with intramedullary nailing or skeletal traction in a low-income country: a prospective observational study of 187 patients in Malawi. 
  • Outcomes Reported in Prospective Long-Term Observational Studies and Registries of Patients With Rheumatoid Arthritis Worldwide: An Outcome Measures in Rheumatology Systematic Review. 
  • Outcomes associated with proton pump inhibitors and distal radius fractures: A post-hoc comparative analysis. 
  • Outcomes following surgical treatment of distal radial fracture: a comparison of older and younger patients using PROMIS. 
  • Outcomes of Acute Hematogenous Periprosthetic Joint Infection in Total Ankle Arthroplasty Treated With Irrigation, Debridement, and Polyethylene Exchange. 
  • Outcomes of Grade III Medial Collateral Ligament Injuries Treated Concurrently With Anterior Cruciate Ligament Reconstruction: A Multicenter Study. 
  • Outcomes of Surgical Management of Borderline Hip Dysplasia: A Systematic Review. 
  • Overcoming Barriers to Using Patient-Reported Outcomes for Clinical Inquiry. 
  • PRO-Bookmarking to Estimate Clinical Thresholds for Patient-reported Symptoms and Function. 
  • PROM Proposal: Analyzing Proxy Reports of Patient-Reported Outcome Measures. 
  • PROMIS: a valid and efficient outcomes instrument for patients with ACL tears. 
  • PROMIS® Adult Health Profiles: Efficient Short-Form Measures of Seven Health Domains. 
  • PROVIDE-HF primary results: Patient-Reported Outcomes inVestigation following Initiation of Drug therapy with Entresto (sacubitril/valsartan) in heart failure. 
  • Patient Characteristics of Possible Responders and Nonresponders to Total Ankle Arthroplasty. 
  • Patient Characteristics, Treatment, and Presenting PROMIS Scores Associated with Number of Office Visits for Traumatic Hand and Wrist Conditions. 
  • Patient perspectives on hypertension management in health system of Sri Lanka: a qualitative study. 
  • Patient-Reported Chronic Pain Intensity: More Than Meets the Eye. 
  • Patient-Reported Chronic Pain Outcomes After Lung Transplantation. 
  • Patient-Reported Disease Activity and Adverse Pregnancy Outcomes in Systemic Lupus Erythematosus and Rheumatoid Arthritis. 
  • Patient-Reported Distress and Clinical Outcomes with Immuno-Oncology Agents in Metastatic Non-Small Cell Lung Cancer (mNSCLC): A Real-World Retrospective Cohort Study. 
  • Patient-Reported Distress in Myelodysplastic Syndromes and Its Association With Clinical Outcomes: A Retrospective Cohort Study. 
  • Patient-Reported Frailty and Functional Status in Heart Failure With Preserved Ejection Fraction: Insights From VITALITY-HFpEF. 
  • Patient-Reported Functional Outcomes in Patients With Chronic Myeloid Leukemia After Stopping Tyrosine Kinase Inhibitors. 
  • Patient-Reported Outcome Instruments for Surgical and Traumatic Scars: A Systematic Review of their Development, Content, and Psychometric Validation. 
  • Patient-Reported Outcome Measures (PROMs) for Acute Stroke: Rationale, Methods and Future Directions. 
  • Patient-Reported Outcome Measures 2 Years After Standard and Distal Gastric Bypass-a Double-Blind Randomized Controlled Trial. 
  • Patient-Reported Outcome Measures in Cardiovascular Disease: An Evidence Map of the Psychometric Properties of Health Status Instruments. 
  • Patient-Reported Outcome Measures in Clinical Research. 
  • Patient-Reported Outcome Measures in Symptomatic, Non-Limb-Threatening Peripheral Artery Disease: A State-of-the-Art Review. 
  • Patient-Reported Outcomes Among Transition-Age Young Adults With Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry. 
  • Patient-Reported Outcomes Before and After Primary and Revision Total Ankle Arthroplasty. 
  • Patient-Reported Outcomes Measurement in Radiation Oncology: Interpretation of Individual Scores and Change over Time in Clinical Practice. 
  • Patient-Reported Outcomes after Laparoscopic Ventral Hernia Repair. 
  • Patient-Reported Outcomes for Cancer Patients Receiving Checkpoint Inhibitors: Opportunities for Palliative Care-A Systematic Review. 
  • Patient-Reported Outcomes in Atrial Fibrillation Research: Results of a Clinicaltrials.gov Analysis. 
  • Patient-Reported Outcomes in Oncology Clinical Trials: Stakeholder Perspectives from the Accelerating Anticancer Agent Development and Validation Workshop 2019. 
  • Patient-Reported Outcomes in Orthopaedics. 
  • Patient-Reported Outcomes in Revascularization Decisions for Left-Main Disease: Sharing the EXCELlence. 
  • Patient-Reported Outcomes of Breast Reconstruction: Does the Quality of Decisions Matter? 
  • Patient-Reported Outcomes, Function, and Gait Mechanics After Fixed and Mobile-Bearing Total Ankle Replacement. 
  • Patient-Reported Quality Measures for Palliative Care: The Time is now. 
  • Patient-Reported Social and Behavioral Determinants of Health and Estimated Risk of Hospitalization in High-Risk Veterans Affairs Patients. 
  • Patient-Reported Toxicities During Chemotherapy Regimens in Current Clinical Practice for Early Breast Cancer. 
  • Patient-Reported and Physiologic Outcomes Following Pelvic Exenteration for Non-Repairable Radiated Rectourethral Fistula. 
  • Patient-reported and Clinical Outcomes Among Patients Hospitalized for Heart Failure With Reduced Versus Preserved Ejection Fraction. 
  • Patient-reported and clinician-reported chemotherapy-induced peripheral neuropathy in patients with early breast cancer: Current clinical practice. 
  • Patient-reported barriers and facilitators for intermittent pneumatic compression device use on the antepartum unit. 
  • Patient-reported distress as an early warning sign of unmet palliative care needs and increased healthcare utilization in patients with advanced cancer. 
  • Patient-reported distress in Hodgkin lymphoma across the survivorship continuum. 
  • Patient-reported experience of the impact and burden of neuroendocrine tumors: Oceania patient results from a large global survey. 
  • Patient-reported outcome measures for hip-related pain: a review of the available evidence and a consensus statement from the International Hip-related Pain Research Network, Zurich 2018. 
  • Patient-reported outcome monitoring in a routine paediatric oncology setting: challenges and opportunities. 
  • Patient-reported outcomes 12 months after hepatitis C treatment with direct-acting antivirals: Results from the PROP UP study. 
  • Patient-reported outcomes and subsequent management in atrial fibrillation clinical practice: Results from the Utah mEVAL AF program. 
  • Patient-reported outcomes for heart failure with preserved ejection fraction: conducting quality studies on quality of life. 
  • Patient-reported outcomes for peripheral vascular interventions in the vascular quality initiative. 
  • Patient-reported outcomes in cancer care - hearing the patient voice at greater volume. 
  • Patient-reported outcomes in hemodialysis vascular access: A call to action. 
  • Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium. 
  • Patient-reported outcomes in the Translational Breast Cancer Research Consortium. 
  • Patient-reported outcomes use during orthopaedic surgery clinic visits improves the patient experience. 
  • Patient-reported quality of life after bariatric surgery: a single institution analysis. 
  • Patient-reported quality of life after tisagenlecleucel infusion in children and young adults with relapsed or refractory B-cell acute lymphoblastic leukaemia: a global, single-arm, phase 2 trial. 
  • Patient-reported quality of life with obesity - development of a new measurement scale. 
  • Patient-reported symptom severity, interference with daily activities, and adverse events in older and younger women receiving chemotherapy for early breast cancer. 
  • Patient-reported symptoms during and after direct-acting antiviral therapies for chronic hepatitis C: The PROP UP study. 
  • Patient-reported treatment toxicity and adverse events in Black and White women receiving chemotherapy for early breast cancer. 
  • Patient-reported vs. physician-estimated symptoms before and after transcatheter aortic valve replacement. 
  • Patients with a depressive and/or anxiety disorder can achieve optimum Long term outcomes after surgery for grade 1 spondylolisthesis: Analysis from the quality outcomes database (QOD). 
  • Patients with depression and anxiety symptoms from adjustment disorder related to their shoulder may be ideal patients for arthroscopic rotator cuff repair. 
  • Patients' Experiences With Staphylococcus aureus and Gram-negative Bacterial Bloodstream Infections: A Qualitative Descriptive Study and Concept Elicitation Phase To Inform Measurement of Patient-reported Quality of Life. 
  • Pediatric lymphoma patients in Malawi present with poor health-related quality of life at diagnosis and improve throughout treatment and follow-up across all Pediatric PROMIS-25 domains. 
  • Performance Measures Based on How Adults With Cancer Feel and Function: Stakeholder Recommendations and Feasibility Testing in Six Cancer Centers. 
  • Performance of PROMIS for Healthy Patients Undergoing Meniscal Surgery. 
  • Physical Functioning in Heart Failure With Preserved Ejection Fraction. 
  • Physical Performance Tests Correlate With Patient-reported Outcomes After Periacetabular Osteotomy: A Prospective Study. 
  • Physical Performance Tests Provide Distinct Information in Both Predicting and Assessing Patient-Reported Outcomes Following Lumbar Spine Surgery. 
  • Practical Application of Patient-Reported Health Status Measures for Transcatheter Valve Therapies: Insights From the Society of Thoracic Surgeons/American College of Cardiology Transcatheter Valve Therapies Registry. 
  • Predictors of Patient-Reported Outcomes at 2 Years After Revision Anterior Cruciate Ligament Reconstruction. 
  • Preoperative PROMIS Scores Predict Postoperative PROMIS Score Improvement for Patients Undergoing Hand Surgery. 
  • Presenting comparative study PRO results to clinicians and researchers: beyond the eye of the beholder. 
  • Pretransplantation Supportive and Palliative Care Consultation for High-Risk Hematopoietic Cell Transplantation Patients. 
  • Prevalence and Consistency in Surgical Outcome Reporting for Femoroacetabular Impingement Syndrome: A Scoping Review. 
  • Prospective Phase 2 Study of Radiation Therapy Dose and Volume De-escalation for Elective Neck Treatment of Oropharyngeal and Laryngeal Cancer. 
  • Prospective patient-reported symptom profiles associated with pediatric acute lymphoblastic leukemia relapse. 
  • Prospective, Observational Study of Opioid Use After Hip Arthroscopy for Femoroacetabular Impingement Syndrome. 
  • Provider Perspectives on the Feasibility and Utility of Routine Patient-Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis. 
  • PsAID12 Provisionally Endorsed at OMERACT 2018 as Core Outcome Measure to Assess Psoriatic Arthritis-specific Health-related Quality of Life in Clinical Trials. 
  • Psychometric Evaluation of the Patient's Knee Implant Performance Questionnaire. 
  • Psychometric Findings for the SCAR-Q Patient-Reported Outcome Measure Based on 731 Children and Adults with Surgical, Traumatic, and Burn Scars from Four Countries. 
  • Psychometric properties of the PROMIS short form measures in a U.S. cohort of 961 patients with chronic hepatitis C prescribed direct acting antiviral therapy. 
  • Pubic Bone Resection Provides Objective Pain Control in the Prostate Cancer Survivor With Pubic Bone Osteomyelitis With an Associated Urinary Tract to Pubic Symphysis Fistula. 
  • Putting patients at the center of kidney care transitions: PREPARE NOW, a cluster randomized controlled trial. 
  • Quality of Life Assessed Using Skindex-16 Scores Among Patients With Acne Receiving Isotretinoin Treatment. 
  • Quality of life and long-term outcomes after hospitalization for COVID-19: Protocol for a prospective cohort study (Coalition VII). 
  • Quality of life in heart failure with preserved ejection fraction: importance of obesity, functional capacity, and physical inactivity. 
  • Quantifying Real-World Upper-Limb Activity Via Patient-Initiated Movement After Nerve Reconstruction for Upper Brachial Plexus Injury. 
  • Quantifying the Impact of Atrial Fibrillation on Heart Failure-Related Patient-Reported Outcomes in the Utah mEVAL Program. 
  • Race, ethnicity and patient-reported outcomes in childhood-onset systemic lupus erythematosus. 
  • Racial differences in user experiences and perceived value of electronic symptom monitoring in a cohort of black and white bladder and prostate cancer patients. 
  • Randomized Pragmatic Trial of Stroke Transitional Care: The COMPASS Study. 
  • Rasch Analysis of Patient- and Parent-Reported Outcome Measures in the International Consortium for Health Outcomes Measurement Standard Set for Cleft Lip and Palate. 
  • Rationale and design of a large-scale, app-based study to identify cardiac arrhythmias using a smartwatch: The Apple Heart Study. 
  • Rationale and study protocol for the Patient-Centered Outcome Aid (PCOA) randomized controlled trial: A personalized decision tool for newly diagnosed ovarian cancer patients. 
  • Reader response: Patient-reported outcomes across cerebrovascular event types: More similar than different. 
  • Recommendations on the use of item libraries for patient-reported outcome measurement in oncology trials: findings from an international, multidisciplinary working group. 
  • Recommended scoring approach for the pediatric patient-reported outcomes version of the Common Terminology Criteria for Adverse Events. 
  • Refinement and validation of the ItchyQoL using classical test theory and item response theory resulted in a reduction of the response categories from a 5-point to a 3-point scale. 
  • Rehabilitation Predictors of Clinical Outcome Following Revision ACL Reconstruction in the MARS Cohort. 
  • Relationship Among Koenig Depression Scale and Postoperative Outcomes, Ambulation, and Perception of Pain in Elderly Patients (≥65 Years) Undergoing Elective Spinal Surgery for Adult Scoliosis. 
  • Relationship Between PROMIS Computer Adaptive Tests and Legacy Hip Measures Among Patients Presenting to a Tertiary Care Hip Preservation Center. 
  • Relationship Between Sports Participation After Revision Anterior Cruciate Ligament Reconstruction and 2-Year Patient-Reported Outcome Measures. 
  • Relationship between changing patient-reported outcomes and subsequent clinical events in patients with chronic heart failure: insights from HF-ACTION. 
  • Reliability and validity of PROMIS® pediatric family relationships short form in children 8-17 years of age with chronic disease. 
  • Reply to: "Patient-reported symptoms during direct-acting antiviral treatment: A real-life study in HIV-HCV coinfected patients (ANRS CO13 HEPAVIH)". 
  • Reply: Identifying Factors Most Important to Lower Extremity Trauma Patients: Key Concepts from the Development of a Patient-Reported Outcome Instrument for Lower Extremity Trauma, The LIMB-Q. 
  • Reporting and utilization of Patient-Reported Outcomes Measurement Information System® (PROMIS®) measures in orthopedic research and practice: a systematic review. 
  • Resection of Pubic Symphysis and Cystectomy Significantly Improves Short-Term Patient-Reported Physical Functioning Among Patients With Pubovesical Fistula and Pubic Bone Osteomyelitis. 
  • Responsiveness of the PROMIS and its Concurrent Validity with Other Region- and Condition-specific PROMs in Patients Undergoing Carpal Tunnel Release. 
  • Responsiveness of the PROMIS® measures to changes in disease status among pediatric nephrotic syndrome patients: a Midwest pediatric nephrology consortium study. 
  • Responsiveness of the Patient-reported Outcomes Measurement Information System (PROMIS) Pediatric Measures to Changes in Disease Status and Quality of Life Among Children and Adolescents With Crohn's Disease. 
  • Reverse total shoulder arthroplasty clinical and patient-reported outcomes and complications stratified by preoperative diagnosis: a systematic review. 
  • Ribavirin-Free Regimen With Sofosbuvir and Velpatasvir Is Associated With High Efficacy and Improvement of Patient-Reported Outcomes in Patients With Genotypes 2 and 3 Chronic Hepatitis C: Results From Astral-2 and -3 Clinical Trials. 
  • Risk Factors for Loss to Follow-up in 3202 Patients at 2 Years After Anterior Cruciate Ligament Reconstruction: Implications for Identifying Health Disparities in the MOON Prospective Cohort Study. 
  • Routine inclusion of long-term functional and patient-reported outcomes into trauma registries: The FORTE project. 
  • Sacral Neuromodulation: Determining Predictors of Success. 
  • Safety and efficacy of the selective progesterone receptor modulator asoprisnil for heavy menstrual bleeding with uterine fibroids: pooled analysis of two 12-month, placebo-controlled, randomized trials. 
  • Scaling and spreading the electronic capture of patient-reported outcomes using a national surgical quality improvement programme: a feasibility study protocol. 
  • Select Biomarkers on the Day of Anterior Cruciate Ligament Reconstruction Predict Poor Patient-Reported Outcomes at 2-Year Follow-Up: A Pilot Study. 
  • Selecting patient-reported outcome measures of health-related quality of life in adult rheumatology: quality and breadth of coverage. 
  • Self-Reported Health Outcomes of Children and Youth with 10 Chronic Diseases. 
  • Self-Reported Health and Outcomes in Patients With Stable Coronary Heart Disease. 
  • Serious Adverse Events Significantly Reduce Patient-Reported Outcomes at 2-Year Follow-up: Nonoperative, Multicenter, Prospective NIH Study of 105 Patients. 
  • Sex Differences in Clinical Course and Patient-Reported Outcomes Among Patients Hospitalized for Heart Failure. 
  • Sexual Quality of Life and Satisfaction With Penile Prostheses. 
  • Shared decision-making in atrial fibrillation: patient-reported involvement in treatment decisions. 
  • Short Message Service-Based Collection of Patient-Reported Outcome Measures on Hand Surgery Global Outreach Trips: A Pilot Feasibility Study. 
  • Small Social Incentives Did Not Improve the Survey Response Rate of Patients Who Underwent Orthopaedic Surgery: A Randomized Trial. 
  • Sociodemographic Differences in Patient-Reported Pain and Pain Management of Patients With Head and Neck Cancer in a Community Oncology Setting. 
  • Standardization of lower extremity quantitative lymphedema measurements and associated patient-reported outcomes in gynecologic cancers. 
  • Standardized End Point Definitions for Coronary Intervention Trials: The Academic Research Consortium-2 Consensus Document. 
  • Standardized definitions for evaluation of heart failure therapies: scientific expert panel from the Heart Failure Collaboratory and Academic Research Consortium. 
  • Statistical analysis plan for the control of blood pressure and risk attenuation-rural Bangladesh, Pakistan, Sri Lanka (COBRA-BPS) trial: a cluster randomized trial for a multicomponent intervention versus usual care in hypertensive patients. 
  • Streamlining Trauma Research Evaluation With Advanced Measurement (STREAM) Study: Implementation of the PROMIS Toolbox Within an Orthopaedic Trauma Clinical Trials Consortium. 
  • Subjective Toxicity Profiles of Children in Treatment for Cancer: A New Guide to Supportive Care? 
  • Surgical Predictors of Clinical Outcomes After Revision Anterior Cruciate Ligament Reconstruction. 
  • Survivorship and Outcome of Hip Arthroscopy for Femoroacetabular Impingement Syndrome Performed With Modern Surgical Techniques. 
  • Symptom Profile of Chronic Rhinosinusitis Versus Obstructive Sleep Apnea in a Tertiary Rhinology Clinic. 
  • Symptom and function profiles of men with localized prostate cancer. 
  • Symptoms and functioning improve after chronic hepatitis C cure as assessed by the Memorial Symptom Assessment Scale and PROMIS measures. 
  • Systematic collection of patient-reported outcomes in atrial fibrillation: feasibility and initial results of the Utah mEVAL AF programme. 
  • Tackling Patient-Reported Outcomes in Atrial Fibrillation and Heart Failure: Identifying Disease-Specific Symptoms? 
  • Thalamic Functional Connectivity in Mild Traumatic Brain Injury: Longitudinal Associations With Patient-Reported Outcomes and Neuropsychological Tests. 
  • The Association Between Symptoms of Depression and Office Visits in Patients With Nontraumatic Upper-Extremity Illness. 
  • The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery. 
  • The Effect of Patient Characteristics on 1 to 2-Year and Minimum 5-Year Outcomes After Total Ankle Arthroplasty. 
  • The Effect of Preexisting and Shoulder-Specific Depression and Anxiety on Patient-Reported Outcomes After Arthroscopic Rotator Cuff Repair. 
  • The Effects of Exercise on Patient-Reported Outcomes and Performance-Based Physical Function in Adults With Acute Leukemia Undergoing Induction Therapy: Exercise and Quality of Life in Acute Leukemia (EQUAL). 
  • The Effects of Youth Anxiety Treatment on School Impairment: Differential Outcomes Across CBT, Sertraline, and their Combination. 
  • The Evolution of Breast Satisfaction and Well-Being after Breast Cancer: A Propensity-Matched Comparison to the Norm. 
  • The Evolving Management of Peritoneal Surface Malignancies. 
  • The Impact of Preoperative Mental Health and Depression on Outcomes After Total Ankle Arthroplasty. 
  • The Impact of Whole-Genome Sequencing on the Primary Care and Outcomes of Healthy Adult Patients: A Pilot Randomized Trial. 
  • The Importance of C2 Slope, a Singular Marker of Cervical Deformity, Correlates With Patient-reported Outcomes. 
  • The PCORnet Blood Pressure Control Laboratory: A Platform for Surveillance and Efficient Trials. 
  • The PROTEUS-Trials Consortium: Optimizing the use of patient-reported outcomes in clinical trials. 
  • The Pelvic Floor Disorders Registry: Purpose and Development. 
  • The Relationship Between Improvements in Myelopathy and Sagittal Realignment in Cervical Deformity Surgery Outcomes. 
  • The Value of Motion: Patient-Reported Outcome Measures Are Correlated With Range of Motion in Total Ankle Replacement. 
  • The association of age, literacy, and race on completing patient-reported outcome measures in pediatric oncology. 
  • The association of marital/partner status with patient-reported health outcomes following acute myocardial infarction or stroke: Protocol for a systematic review and meta-analysis. 
  • The big short(age): perioperative and patient-reported outcomes during a fentanyl shortage at a tertiary care facility. 
  • The challenge of measuring intra-individual change in fatigue during cancer treatment. 
  • The impact of patient-reported penicillin or cephalosporin allergy on surgical site infections. 
  • The impact of remission status on patients' experiences with acute myeloid leukemia (AML): an exploratory analysis of longitudinal patient-reported outcomes data. 
  • The importance of development standards for anchoring vignettes: an illustrative example from pediatric localized scleroderma quality of life. 
  • The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months. 
  • The patient experience of ABVD treatment in Hodgkin lymphoma: a retrospective cohort study of patient-reported distress. 
  • The use of PROMIS patient-reported outcomes (PROs) to inform light chain (AL) amyloid disease severity at diagnosis. 
  • The use of patient-reported outcome measures to classify type 1 and 2 systemic lupus erythematosus activity. 
  • The use of patient-reported outcome tools in Gynecologic Oncology research, clinical practice, and value-based care. 
  • Timeline for maximal subjective outcome improvement following total ankle arthroplasty. 
  • Translation, psychometric validation, and baseline results of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric measures to assess health-related quality of life of patients with pediatric lymphoma in Malawi. 
  • Trends in Patient-Reported Outcomes Reporting in Breast Reconstruction: A Scoping Literature Review. 
  • Under Correction of Sagittal Deformities Based on Age-adjusted Alignment Thresholds Leads to Worse Health-related Quality of Life Whereas Over Correction Provides No Additional Benefit. 
  • Understanding Adult Participant and Parent Empowerment Prior to Evaluation in the Undiagnosed Diseases Network. 
  • Understanding PROMIS. 
  • Unintentional weight loss, its associated burden, and perceived weight status in people with cancer. 
  • Usability Testing of an Electronic Patient-Reported Outcome System for Survivors of Critical Illness. 
  • Use of Patient-Related Outcomes After Orthopaedic Trauma: Helpful or Not So Much? 
  • Use of Patient-Reported Outcomes Measurement Information System (PROMIS) measures to characterise health status for patients seeking care from an orthopaedic provider: a retrospective cohort study. 
  • User-centered design principles in the development of clinical research tools. 
  • Using Clinical Characteristics and Patient-Reported Outcome Measures to Categorize Systemic Lupus Erythematosus Subtypes. 
  • Using PROMIS® to create clinically meaningful profiles of nephrotic syndrome patients. 
  • Using Patient Reported Outcomes in Oncology Clinical Practice. 
  • Utility of Patient-Reported Outcome Instruments in Heart Failure. 
  • Utility of patient-reported outcomes measurement information system (PROMIS) physical function form in inflammatory myopathy. 
  • Validation of Patient-Reported Outcomes Measurement Information System Short Forms for Use in Childhood-Onset Systemic Lupus Erythematosus. 
  • Validation of the caregiver Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure. 
  • Validity and Reliability of the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events. 
  • Validity and Responsiveness of the Patient-reported Outcomes Measurement Information System in Children With Ulcerative Colitis. 
  • Validity and reliability of the Assessment of Spondyloarthritis International Society Health Index in English-speaking patients with axial spondyloarthritis in Singapore. 
  • Variation in Patient-Reported Decision-Making Roles in the Last Year of Life among Patients with Metastatic Cancer: A Longitudinal Study. 
  • Viewing assessments of patient-reported heath status as conversations: Implications for developing and evaluating patient-reported outcome measures. 
  • Volar Capsular Release After Distal Radius Fractures. 
  • Walking gait asymmetries 6 months following anterior cruciate ligament reconstruction predict 12-month patient-reported outcomes. 
  • What do these scores mean? Presenting patient-reported outcomes data to patients and clinicians to improve interpretability. 
  • Which criteria are used to clear patients to return to sport after primary ACL reconstruction? A scoping review. 
  • Women's Experiences After Ovarian Cancer Surgery: Distress, Uncertainty, and the Need for Occupational Therapy. 
  • Working Alliance Inventory (WAI) and its relationship to patient-reported outcomes in painful musculoskeletal conditions. 
• 

  Keywords of People

  • Ardalan, Kaveh, Assistant Professor of Pediatrics, Pediatrics, Rheumatology
  • Zigler, Christina Kelsey, Assistant Professor in Population Health Sciences, Population Health Sciences