Confidentiality

• 

  Subject Areas on Research

  • "Reality surgery"--a research ethics perspective on the live broadcast of surgical procedures. 
  • 2014 ACC/AHA Key Data Elements and Definitions for Cardiovascular Endpoint Events in Clinical Trials: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Data Standards (Writing Committee to Develop Cardiovascular Endpoints Data Standards). 
  • A discrete choice experiment to investigate patient preferences for HIV testing programs in Bogotá, Colombia. 
  • A trade secret model for genomic biobanking. 
  • Access to patient-level data from GlaxoSmithKline clinical trials. 
  • Adolescents, contraception and confidentiality: a national survey of obstetrician--gynecologists. 
  • Adoption of information technology by resident physicians. 
  • Affecting the planning and implementation of developmental services for children and adults with HIV infection. 
  • An informatics research agenda to support precision medicine: seven key areas. 
  • Barriers to sexual and reproductive health care among widows in Nepal. 
  • Barriers to using text message appointment reminders in an HIV clinic. 
  • Blockchain distributed ledger technologies for biomedical and health care applications. 
  • Bumps and bridges on the road to responsible sharing of clinical trial data. 
  • Carrier testing in fragile X syndrome: when to tell and test. 
  • Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice. 
  • Certificates of confidentiality and informed consent: perspectives of IRB chairs and institutional legal counsel. 
  • Changes in HIV risk behavior and seroincidence among clients presenting for repeat HIV counseling and testing in Moshi, Tanzania. 
  • Clinical Computing: Clinical Management Research Information System (CRIS). 
  • Conduct of multisite clinical studies by professional organizations. 
  • Confidentiality and health insurance fraud. 
  • Confidentiality: more than a linkage file and a locked drawer. 
  • Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. 
  • Consent for emergency medical services for children and adolescents. 
  • Considering the Benefits and Risks of Research Participants' Access to Sequence Data. 
  • Data Sharing and Embedded Research. 
  • Data monitoring committees: Promoting best practices to address emerging challenges. 
  • Data systems in child psychiatry: present status and future promise. 
  • Developing a simplified consent form for biobanking. 
  • Disclosing diagnosis, continued. 
  • Drug Development. Are trade secrets delaying biosimilars? 
  • Electronic health records to facilitate clinical research. 
  • Elevator talk: observational study of inappropriate comments in a public space. 
  • Epidemiological modeling of acute mountain sickness (AMS). A prospective data collection standard. 
  • Ethical and regulatory issues of pragmatic cluster randomized trials in contemporary health systems. 
  • Ethical aspects of banking placental blood for transplantation. 
  • Ethical issues in umbilical cord blood banking. Working Group on Ethical Issues in Umbilical Cord Blood Banking. 
  • Ethical ramifications of alternative means of recruiting research participants from cancer registries. 
  • Evaluating cancer costs in NCI trials. 
  • Exploring options for improving healthcare. 
  • Four health data networks illustrate the potential for a shared national multipurpose big-data network. 
  • Genetic testing for Alzheimer's disease and its impact on insurance purchasing behavior. 
  • Grid Binary LOgistic REgression (GLORE): building shared models without sharing data. 
  • Grid multi-category response logistic models. 
  • HIV testing preferences in Tanzania: a qualitative exploration of the importance of confidentiality, accessibility, and quality of service. 
  • HIV-1 infected women and prenatal care utilization: barriers and facilitators. 
  • Health Insurance Portability and Accountability Act (HIPAA): must there be a trade-off between privacy and quality of health care, or can we advance both? 
  • Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting. 
  • Implementation of antiretroviral therapy adherence interventions: a realist synthesis of evidence. 
  • In situ monitoring of health in older adults: technologies and issues. 
  • Institutional review boards' use and understanding of certificates of confidentiality. 
  • Integration of a computer-based patient record system into the primary care setting. 
  • Introduction to issues and implications of screening, surveillance, and reporting of children's BMI. 
  • Issues and implications of screening, surveillance, and reporting of children's BMI. 
  • Issues in an Internet survey among midlife Asian women. 
  • Issues in protection of human subjects in internet research. 
  • Large-Scale Assessment of a Smartwatch to Identify Atrial Fibrillation. 
  • Large-scale evaluation of automated clinical note de-identification and its impact on information extraction. 
  • Mental illness and new gun law reforms: the promise and peril of crisis-driven policy. 
  • New Hampshire: the premarital testing debacle. 
  • On the new clinical case conferences. 
  • One size does not fit all: HIV testing preferences differ among high-risk groups in Northern Tanzania. 
  • Parents' and clinicians' attitudes toward the risks and benefits of child psychotherapy: a study of informed-consent content. 
  • Patient reactions to confidentiality, liability, and financial aspects of informed consent in cardiology research. 
  • Perceptions of Medicaid beneficiaries regarding the usefulness of accessing personal health information and services through a patient Internet portal. 
  • Perspectives on Electronic Informed Consent From Patients Underrepresented in Research in the United States: A Focus Group Study. 
  • Pharmacogenetics: ethical issues and policy options. 
  • Physicians' assurances of confidentiality and time spent alone with adolescents during primary care visits. 
  • Practice Guidelines for Teledermatology. 
  • Preserving Institutional Privacy in Distributed binary Logistic Regression. 
  • Privacy preserving interactive record linkage (PPIRL). 
  • Professional e-mail communication among health care providers: proposing evidence-based guidelines. 
  • Promises and pitfalls of data sharing in qualitative research. 
  • Protecting Confidentiality in Cancer Registry Data With Geographic Identifiers. 
  • Public perspectives regarding data-sharing practices in genomics research. 
  • Public sensationalism and clinical trials: how to address the challenges of science? 
  • Real-World Data: Policy Issues Regarding their Access and Use. 
  • Regulatory and ethical considerations for linking clinical and administrative databases. 
  • Repeating an attending physician's unseemly remarks. 
  • Research ethics. Certificates of confidentiality and compelled disclosure of data. 
  • Roundtable: the politics of genetic testing. 
  • Shared Electronic Health Record Systems: Key Legal and Security Challenges. 
  • Sharing confidential data for research purposes: a primer. 
  • So much for keeping secrets: the importance of considering patients' perspectives on maintaining confidentiality. 
  • Sources of health information among rural women in Western Kentucky. 
  • Sports medicine and ethics. 
  • The ethics of using Web technology to find research participants. 
  • The hospital-based adoption process: a primer for perinatal nurses. 
  • The impact of privacy and confidentiality laws on the conduct of clinical trials. 
  • The next controversy in genetic testing: clinical data as trade secrets? 
  • The privacy rule (HIPAA) as it relates to clinical research. 
  • The right to privacy and the duty to protect. 
  • Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper. 
  • Urge overkill: protecting deidentified human subjects at what price? 
  • Use of tablet personal computers for sensitive patient-reported information. 
  • Voices of Women Facing HIV-Related Stigma in the Deep South. 
  • WebGLORE: a web service for Grid LOgistic REgression. 
  • What to Consider in a Culturally Tailored Technology-Based Intervention? 
  • Young adults' attitudes, beliefs, and feelings about testing for curable STDs outside of clinic settings. 
  • iDASH: integrating data for analysis, anonymization, and sharing. 
• 

  Keywords of People

  • Muhlbaier, Lawrence H., Associate Professor Emeritus of Biostatistics and Bioinformatics, Biostatistics & Bioinformatics
  • Reiter, Jerome P., Professor of Statistical Science, Duke University Energy Initiative