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Subject Areas on Research
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"Reality surgery"--a research ethics perspective on the live broadcast of surgical procedures.
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"So Much for Keeping Secrets: the Importance of Considering Patients' Perspectives on Maintaining Confidentiality"
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2014 ACC/AHA Key Data Elements and Definitions for Cardiovascular Endpoint Events in Clinical Trials: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Data Standards (Writing Committee to Develop Cardiovascular Endpoints Data Standards).
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A discrete choice experiment to investigate patient preferences for HIV testing programs in Bogotá, Colombia.
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A trade secret model for genomic biobanking.
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Access to patient-level data from GlaxoSmithKline clinical trials.
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Adolescents, contraception and confidentiality: a national survey of obstetrician--gynecologists.
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An informatics research agenda to support precision medicine: seven key areas.
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Balancing data privacy and usability in the federal statistical system.
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Barriers to sexual and reproductive health care among widows in Nepal.
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Barriers to using text message appointment reminders in an HIV clinic.
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Bending the curve through health reform implementation.
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Building a Group-Based Opioid Treatment (GBOT) blueprint: a qualitative study delineating GBOT implementation.
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Bumps and bridges on the road to responsible sharing of clinical trial data.
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Can the Case Report Withstand Ethical Scrutiny?
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Carrier testing in fragile X syndrome: when to tell and test.
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Certificates of confidentiality and informed consent: perspectives of IRB chairs and institutional legal counsel.
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Changes in HIV risk behavior and seroincidence among clients presenting for repeat HIV counseling and testing in Moshi, Tanzania.
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Characteristics Associated with Confidential Consultation for Adolescents in Primary Care.
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Clinical Computing: Clinical Management Research Information System (CRIS).
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Comparing Provider and Client Preferences for HIV Prevention Services in South Africa among Men Who Have Sex with Men.
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Conduct of multisite clinical studies by professional organizations
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Confidentiality and health insurance fraud.
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Confidentiality and pre-employment health screening.
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Confidentiality: more than a linkage file and a locked drawer.
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Consent for emergency medical services for children and adolescents.
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Considering the Benefits and Risks of Research Participants' Access to Sequence Data.
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Data Sharing and Embedded Research.
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Data Sharing and Reproducibility of Results-Does It Matter for HIV Nursing?
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Data monitoring committees: Promoting best practices to address emerging challenges.
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Data systems in child psychiatry: present status and future promise.
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Developing a simplified consent form for biobanking.
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Disclosing diagnosis, continued.
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Drug Development. Are trade secrets delaying biosimilars?
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Electronic health records to facilitate clinical research.
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Elevator talk: observational study of inappropriate comments in a public space.
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Epidemiological modeling of acute mountain sickness (AMS). A prospective data collection standard.
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Ethical and regulatory issues of pragmatic cluster randomized trials in contemporary health systems.
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Ethical aspects of banking placental blood for transplantation.
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Ethical issues in umbilical cord blood banking. Working Group on Ethical Issues in Umbilical Cord Blood Banking.
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Ethical ramifications of alternative means of recruiting research participants from cancer registries.
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Ethical standards for cardiothoracic surgeons' participation in social media.
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Exploring options for improving healthcare.
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Four health data networks illustrate the potential for a shared national multipurpose big-data network.
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Grid Binary LOgistic REgression (GLORE): building shared models without sharing data.
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Grid multi-category response logistic models.
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HIV testing preferences in Tanzania: a qualitative exploration of the importance of confidentiality, accessibility, and quality of service.
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HIV-1 infected women and prenatal care utilization: barriers and facilitators.
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Health Insurance Portability and Accountability Act (HIPAA): must there be a trade-off between privacy and quality of health care, or can we advance both?
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Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting.
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In situ monitoring of health in older adults: technologies and issues.
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In-Home Passive Sensor Data Collection and Its Implications for Social Media Research: Perspectives of Community Women in Rural South Africa.
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Institutional review boards' use and understanding of certificates of confidentiality.
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Integration of a computer-based patient record system into the primary care setting.
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Introduction to issues and implications of screening, surveillance, and reporting of children's BMI.
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Is health-care data the new blood?
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Issues and implications of screening, surveillance, and reporting of children's BMI.
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Large-Scale Assessment of a Smartwatch to Identify Atrial Fibrillation.
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Large-scale evaluation of automated clinical note de-identification and its impact on information extraction.
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Mental illness and new gun law reforms: the promise and peril of crisis-driven policy.
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Navigating risks and professional roles: research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities.
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New Hampshire: the premarital testing debacle.
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On the new clinical case conferences.
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One size does not fit all: HIV testing preferences differ among high-risk groups in Northern Tanzania.
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Open science: The open clinical trials data journey.
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Parental Perceptions of Displayed Patient Data in a PICU: An Example of Unintentional Empowerment.
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Parents' and clinicians' attitudes toward the risks and benefits of child psychotherapy: a study of informed-consent content.
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Patient reactions to confidentiality, liability, and financial aspects of informed consent in cardiology research.
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Perceptions of Medicaid beneficiaries regarding the usefulness of accessing personal health information and services through a patient Internet portal.
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Perspectives on Electronic Informed Consent From Patients Underrepresented in Research in the United States: A Focus Group Study.
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Pharmacogenetics: Ethical Issues and Policy Options
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Physicians' assurances of confidentiality and time spent alone with adolescents during primary care visits.
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Preserving Institutional Privacy in Distributed binary Logistic Regression.
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Privacy preserving interactive record linkage (PPIRL).
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Professional e-mail communication among health care providers: proposing evidence-based guidelines.
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Professional secrecy: a vincible right.
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Promises and pitfalls of data sharing in qualitative research.
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Protecting Confidentiality in Cancer Registry Data With Geographic Identifiers.
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Public perspectives regarding data-sharing practices in genomics research.
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Public sensationalism and clinical trials: how to address the challenges of science?
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Real-World Data: Policy Issues Regarding their Access and Use.
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Regulatory and ethical considerations for linking clinical and administrative databases.
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Repeating an attending physician's unseemly remarks.
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Reply: Technology and Plastic Surgery: Potential Pitfalls for Patient Confidentiality and Proposed Solutions.
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Research ethics. Certificates of confidentiality and compelled disclosure of data.
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Shared Electronic Health Record Systems: Key Legal and Security Challenges.
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Sharing confidential data for research purposes: a primer.
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Sources of health information among rural women in Western Kentucky.
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Sports medicine and ethics.
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Technology and Plastic Surgery: Potential Pitfalls for Patient Confidentiality and Proposed Solutions.
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The Effect of Patient Education on Chinese Adolescent and Parental Beliefs About Counselors' Breaches of Confidentiality.
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The hospital-based adoption process: a primer for perinatal nurses.
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The impact of privacy and confidentiality laws on the conduct of clinical trials.
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The privacy rule (HIPAA) as it relates to clinical research.
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The right to privacy and the duty to protect.
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Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper.
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Transparent sharing of digital health data: A call to action.
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Urge overkill: protecting deidentified human subjects at what price?
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Use of tablet personal computers for sensitive patient-reported information.
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Voices of Women Facing HIV-Related Stigma in the Deep South.
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WebGLORE: a web service for Grid LOgistic REgression.
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When Words Are All We Have.
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Keywords of People