Patient Advocacy

• 

  Subject Areas on Research

  • ACC 2009 Advocacy Position Statement: Principles for comparative effectiveness research. 
  • Advocacy skills training for young adult cancer survivors: the Young Adult Survivors Conference at Camp Māk-a-Dream. 
  • Advocacy, agency, and collaboration. 
  • Affecting the planning and implementation of developmental services for children and adults with HIV infection. 
  • Agency is messy: get used to it. 
  • American Heart Association and nonprofit advocacy: past, present, and future. A policy recommendation from the American Heart Association. 
  • Benefits and drawbacks to hormone replacement therapy among nursing home patients. 
  • Best practices for mental health in child welfare: parent support and youth empowerment guidelines. 
  • Bioethicists' statement on the U.S. Supreme Court's Cruzan decision. 
  • Concealed medicines for people with schizophrenia: a U.S. perspective. 
  • Coordination and advocacy for rural elders (CARE): a model of rural case management with veterans. 
  • Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB). 
  • Cultural carrying capacity: Organ donation advocacy, discursive framing, and social media engagement. 
  • Decision making by surrogates. 
  • Desegregation of hospitals and medical societies in North Carolina. 
  • Do patients want access to their medical records? 
  • Does bedside rationing violate patients' best interests? An exploration of "moral hazard". 
  • Effect of an advocacy intervention on mental health in Chinese women survivors of intimate partner violence: a randomized controlled trial. 
  • Effective Partnering in Conducting Benefit-Risk Patient Preference Studies: Perspectives From a Patient Advocacy Organization, a Pharmaceutical Company, and Academic Stated-Preference Researchers. 
  • Engaging Patient Advocates and Other Stakeholders to Design Measures of Patient-Centered Communication in Cancer Care. 
  • Family representative payeeship and violence risk in severe mental illness. 
  • Forging stronger partnerships between academic health centers and patient-driven organizations. 
  • Gender, age, and ethnicity in HIV vaccine-related research and clinical trials: report from a WHO-UNAIDS consultation, 26-28 August 2004. Lausanne, Switzerland. 
  • Genetic privacy needs a more nuanced approach. 
  • Ignorance is bliss but not in health care: teaching consumers about quality care. 
  • Image Gently: progress and challenges in CT education and advocacy. 
  • Impact of the increased adoption of prenatal cfDNA screening on non-profit patient advocacy organizations in the United States. 
  • Impacts of managed care patient protection laws on health services utilization and patient satisfaction with care. 
  • In Support of a Patient-Driven Initiative and Petition to Lower the High Price of Cancer Drugs. 
  • Integrative tumor board: recurrent breast cancer or new primary? UCSF Osher Center for Integrative Medicine and UCSF Carol Franc Buck Breast Care Center. 
  • Lying for patients: physician deception of third-party payers. 
  • Lying to insurance companies: the desire to deceive among physicians and the public. 
  • Making a difference in the health care of veterans: 9 things you should know. 
  • Managed care organizations should not disclose their physicians' financial incentives. 
  • Managed care: rationing without justice, but not unjustly. 
  • Medical futility decisions and physicians' legal defensiveness: the impact of anticipated conflict on thresholds for end-of-life treatment. 
  • Models for delivering survivorship care. 
  • Monitoring versus interim analysis of clinical trials: a perspective from the pharmaceutical industry. 
  • Nurse Knowledge and Engagement in Health Policy Making: Findings From a Pilot Study. 
  • Nurse leaders can shape ethical cultures. 
  • Nursing advocacy in North Carolina. 
  • Obesity and managed care: a role for activism and advocacy? 
  • Patient advocates' role in clinical trials: perspectives from Cancer and Leukemia Group B investigators and advocates. 
  • Patients who want their family and physician to make resuscitation decisions for them: observations from SUPPORT and HELP. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Hospitalized Elderly Longitudinal Project. 
  • Patients' rights. 
  • Patients, physicians, and clinical trials: the other side of the coins. 
  • Pediatric mental health emergencies in the emergency medical services system. 
  • Placental-blood transplantation. 
  • Public policy and obesity: the need to marry science with advocacy. 
  • Reduction in risk behavior among adults with severe mental illness who learned to advocate for HIV prevention. 
  • Relieving the pain of cancer. 
  • Report condemns NHS complaints procedure. 
  • Research and advocacy in nutrition therapy: our specialty needs you. 
  • S.1232: A Late Entry in the Race for Malpractice Reform 
  • Safety-promoting behaviors of community-dwelling abused Chinese women after an advocacy intervention: a randomized controlled trial. 
  • Science and recovery in schizophrenia. 
  • Statistical controversies in clinical research: data access and sharing-can we be more transparent about clinical research? Let's do what's right for patients. 
  • Surrogates' perceptions about feeding tube placement decisions. 
  • Telephone intervention to improve the mental health of community-dwelling women abused by their intimate partners: a randomised controlled trial. 
  • The Patient Self-Determination Act and the future of advance directives. 
  • The Unrealized Potential of Malpractice Arbitration 
  • The evolution of advocacy and orthopaedic surgery. 
  • The need for academic leadership in full-spectrum translational research. 
  • Trust in managed care organizations. 
  • Using central IRBs for multicenter clinical trials in the United States. 
  • Using the PRACTICE mnemonic to apply cultural competency to genetics in medical education and patient care. 
  • Voices of oncology nursing society members matter in advocacy and decisions related to U.S. Health Policy. 
  • What constitutes a psychiatric emergency: clinical and legal dimensions. 
• 

  Keywords of People

  • Hannon, Emily Aikenhead, Assistant Professor of Pediatrics, Pediatrics, Primary Care Pediatrics