Caregivers

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  Subject Areas on Research

  • "I've been always strong to conquer any suffering:" challenges and resilience of Chinese American dementia caregivers in a life course perspective. 
  • "Just tell me in a simple way": A qualitative study on opportunities to improve the transition from acute hospital care to home from the perspectives of patients with traumatic brain injury, families, and providers. 
  • A Blue Ocean Strategy for Palliative Care: Focus on Family Caregivers. 
  • A Couple-Based Communication Intervention for Hematopoietic Cell Transplantation Survivors and Their Caregiving Partners: Feasibility, Acceptability, and Change in Process Measures. 
  • A Developmental Analysis of Caregiving Modalities Across Infancy in 38 Low- and Middle-Income Countries. 
  • A Multicenter Trial of a Shared Decision Support Intervention for Patients and Their Caregivers Offered Destination Therapy for Advanced Heart Failure: DECIDE-LVAD: Rationale, Design, and Pilot Data. 
  • A North Carolina service for those with questions about Alzheimer disease, other memory disorders, and family care. 
  • A Person-Centered Approach to Poststroke Care: The COMprehensive Post-Acute Stroke Services Model. 
  • A Prospective Longitudinal Study of Caregivers of Community Dwelling Persons with Severe Dementia (PISCES): Study Protocol. 
  • A comparative qualitative analysis of stories of spousal caregivers of people with dementia: negative, ambivalent, and positive experiences. 
  • A comparison of the wellbeing of orphans and abandoned children ages 6-12 in institutional and community-based care settings in 5 less wealthy nations. 
  • A conceptual framework of outcomes for caregivers of assistive technology users. 
  • A modified DBT skills training program for oppositional defiant adolescents: promising preliminary findings. 
  • A path model of chronic stress, the metabolic syndrome, and coronary heart disease. 
  • A pilot study on the influence of an individualized and experiential training on cancer caregiver's self-efficacy in home care and symptom management. 
  • A randomized controlled trial on rehabilitation through caregiver-delivered nurse-organized service programs for disabled stroke patients in rural china (the RECOVER trial): design and rationale. 
  • A service user co-facilitated intervention to reduce mental illness stigma among primary healthcare workers: Utilizing perspectives of family members and caregivers. 
  • ALS clinical research learning institutes (ALS-CRLI): empowering people with ALS to be research ambassadors. 
  • Academic-Practice Partnership for Caregiver Training and Support: The Duke Elder Family/Caregiver Training (DEFT) Center. 
  • Acceptability of a Dyadic Psychoeducational Intervention for Patients and Caregivers. 
  • Acceptability of a group intervention for initiates of antiretroviral therapy in Tanzania. 
  • Adaptation and Implementation of a Family Caregiver Skills Training Program: From Single Site RCT to Multisite Pragmatic Intervention. 
  • Adapters, strugglers, and case managers: a typology of spouse caregivers. 
  • Adjustment of caregivers of pediatric patients with brain tumors: a cross-sectional analysis. 
  • Adolescents and parental caregivers as lay health advisers in a community-based risk reduction intervention for youth: baseline data from Teach One, Reach One. 
  • Adolescents' and caregivers' perceptions of caregiver-provided testing and HIV self-testing using oral mucosal transudate tests in Zimbabwe: a short report. 
  • Advance Directive Preferences Among Terminally Ill Older Patients and Its Facilitators and Barriers in China: A Scoping Review. 
  • Advances in mediation analysis can facilitate nursing research. 
  • Adverse childhood experiences, psychosocial well-being and cognitive development among orphans and abandoned children in five low income countries. 
  • Alcohol, drug, and mental health specialty treatment services and race/ethnicity: a national study of children and families involved with child welfare. 
  • Alzheimer's disease and the family caregiver: the cost and who pays? 
  • Ambivalence over emotional expression in patients with gastrointestinal cancer and their caregivers: associations with patient pain and quality of life. 
  • An Evaluation of Websites Offering Caregiver Education for Tracheostomy and Home Mechanical Ventilation. 
  • An Official American Thoracic Society Clinical Practice Guideline: Pediatric Chronic Home Invasive Ventilation. 
  • Anxiety and Depressive Symptoms Among Two Seriously Medically Ill Populations and Their Family Caregivers: A Comparison and Clinical Implications. 
  • Application of assessing care of vulnerable elders-3 quality indicators to patients with advanced dementia and poor prognosis. 
  • Assessing patients' and caregivers' perspectives on stability of factor VIII products for haemophilia A: a web-based study in the United States and Canada. 
  • Assessing the Role of the Family/Support System Perspective in Patients With Glaucoma. 
  • Assessment of health literacy and numeracy among Spanish-Speaking parents of young children: validation of the Spanish Parental Health Literacy Activities Test (PHLAT Spanish). 
  • Assessment of young children's social-emotional development and psychopathology: recent advances and recommendations for practice. 
  • Association between primary caregiver type and mortality among Chinese older adults with disability: a prospective cohort study. 
  • Association of anxiety and depression with pulmonary-specific symptoms in chronic obstructive pulmonary disease. 
  • Association of formal and informal care with health-related quality of life and depressive symptoms: findings from the Caring for Adults Recovering from the Effects of Stroke study. 
  • Associations Between Alzheimer's Disease and Related Dementias and Depressive Symptoms of Partner Caregivers. 
  • Associations among perceptions of social support, negative affect, and quality of sleep in caregivers and noncaregivers. 
  • Associations between child disabilities and caregiver discipline and violence in low- and middle-income countries. 
  • Associations of home food availability, dietary intake, screen time and physical activity with BMI in young American-Indian children. 
  • Attachment and pain: recent findings and future directions. 
  • Barriers to medication adherence in a rural-urban dual economy: a multi-stakeholder qualitative study. 
  • Beliefs about promoting cognitive health among Filipino Americans who care for persons with dementia. 
  • Benefit Finding in Maternal Caregivers of Pediatric Cancer Survivors: A Mixed Methods Approach. 
  • Biopsychosocial experiences and coping strategies of elderly ESRD patients: a qualitative study to inform the development of more holistic and person-centred health services in Singapore. 
  • Body image perceptions and dieting among African-American pre-adolescent girls and parents/caregivers. 
  • Brief report: psychosocial functioning of fathers as primary caregivers of pediatric oncology patients. 
  • Building resilience: a mental health intervention for Tanzanian youth living with HIV. 
  • Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers. 
  • Busy/dying. 
  • Can caregivers report their care recipients' post-stroke hospitalizations and outpatient visits accurately? Findings of an Asian prospective stroke cohort. 
  • Canadian study of health and aging: study methods and prevalence of dementia. 
  • Care partner-assisted intervention to improve oral health for older adults with cognitive impairment: A feasibility study. 
  • Care transitions from the hospital to home for patients with mobility impairments: patient and family caregiver experiences. 
  • Caregiver Burden as a Mediator Between Emotional Distress and Concentration Problems in Patients With Cancer. 
  • Caregiver Characteristics Associated With Cognitive Complaints in Women With Breast Cancer. 
  • Caregiver Preferences for the Treatment of Males with Fragile X Syndrome. 
  • Caregiver Quality of Life Is Related to Severity of Otitis Media in Children. 
  • Caregiver burden and psychological distress in partners of veterans with chronic posttraumatic stress disorder. 
  • Caregiver burden and well-being: an elusive distinction. 
  • Caregiver burden in partners of Vietnam War veterans with posttraumatic stress disorder. 
  • Caregiver experience during advanced chronic illness and last year of life. 
  • Caregiver intervention research: an opportunity for collaboration between caregiving investigators and African-american faith communities. 
  • Caregiver ratings of personality change in Alzheimer's disease patients: a replication. 
  • Caregiver role in HIV medication adherence among HIV-infected orphans in Tanzania. 
  • Caregiver self-efficacy to talk about sex predicts conversations about HIV transmission risk with perinatally infected young people in Zimbabwe. 
  • Caregiver strain and youth suicide attempt: Are they related? 
  • Caregiver-Delivered Stroke Rehabilitation in Rural China. 
  • Caregiver-Reported Sleep Disturbances Are Associated With Behavioral and Psychological Symptoms in an Asian Elderly Cohort With Cognitive Impairment-No Dementia. 
  • Caregiver-assisted coping skills training for lung cancer: results of a randomized clinical trial. 
  • Caregiver-assisted coping skills training for patients with COPD: background, design, and methodological issues for the INSPIRE-II study. 
  • Caregiver-guided pain coping skills training for patients with advanced cancer: Background, design, and challenges for the CaringPals study. 
  • Caregiver-guided pain coping skills training for patients with advanced cancer: Results from a randomized clinical trial. 
  • Caregiver-recipient closeness and symptom progression in Alzheimer disease. The Cache County Dementia Progression Study. 
  • Caregivers as money managers for adults with severe mental illness: how treatment providers can help. 
  • Caregivers in China: knowledge of mild cognitive impairment. 
  • Caregivers of Patients Considering a Destination Therapy Left Ventricular Assist Device and a Shared Decision-Making Intervention: The DECIDE-LVAD Trial. 
  • Caregivers' reasons for nursing home placement: clues for improving discussions with families prior to the transition. 
  • Caregiving behavior is associated with decreased mortality risk. 
  • Caregiving for persons with mental illness: the impact of outpatient commitment on caregiving strain. 
  • Caregiving networks of elderly persons: variation by marital status. 
  • Caregiving, residence, race, and depressive symptoms. 
  • Caregiving-related needs of family caregivers of older Singaporeans. 
  • Caring for Caregivers-A New Integrative Care Path for Advanced Lung Cancer Patients and Their Caregivers. 
  • Caring for frail older adults: a theoretical and methodological agenda. 
  • Caring for individuals with dementia and cognitive impairment, not dementia: findings from the aging, demographics, and memory study. 
  • Challenges of optimizing glycaemic control in children with Type 1 diabetes: a qualitative study of parents' experiences and views. 
  • Child and adult victimization: sequelae for female caregivers of high-risk children. 
  • Child-Adult Relationship Enhancement (CARE): An evidence-informed program for children with a history of trauma and other behavioral challenges. 
  • Childhood traumatic grief: a multi-site empirical examination of the construct and its correlates. 
  • Children of Alzheimer patients: an overview. 
  • Children with Chronic Lung Disease: Facilitating Smoking Cessation for their Caregivers. 
  • Chronic family stress moderates the association between a TOMM40 variant and triglyceride levels in two independent Caucasian samples. 
  • Chronic pain-associated behaviors in the nursing home: resident versus caregiver perceptions. 
  • Clinical Validation of the Autism Behavior Inventory: Caregiver-Rated Assessment of Core and Associated Symptoms of Autism Spectrum Disorder. 
  • Clinical assessment of medication adherence among HIV-infected children: examination of the Treatment Interview Protocol (TIP). 
  • Clinical trial testing in-home multidisciplinary care management for older adults with cognitive vulnerability: Rationale and study design. 
  • Cognitive performance and informant reports in the diagnosis of cognitive impairment and dementia in African Americans and whites. 
  • Cohort profile for the Nurture Observational Study examining associations of multiple caregivers on infant growth in the Southeastern USA. 
  • Commentary: Sir Arthur Mitchell--pioneer of psychiatric epidemiology and of community care. 
  • Community-Based Long-Term Care Services: If We Build It, Will They Come? 
  • Comparison of preferences for end-of-life care among patients with advanced cancer and their caregivers: A discrete choice experiment. 
  • Compassion fatigue in adult daughter caregivers of a parent with dementia. 
  • Complexities and Challenges of Singapore Nurses Providing Postacute Home Care in Multicultural Communities: A Grounded Theory Study. 
  • Components and correlates of family burden in schizophrenia. 
  • Comprehensive Support for Family Caregivers of Post-9/11 Veterans Increases Veteran Utilization of Long-term Services and Supports: A Propensity Score Analysis. 
  • Comprehensive Support for Family Caregivers: Impact on Veteran Health Care Utilization and Costs. 
  • Comprehensive support of family caregivers: Are there health system cost offsets? 
  • Confirmatory factor analysis of the Infant Feeding Styles Questionnaire in Latino families. 
  • Connect-Home: Transitional Care of Skilled Nursing Facility Patients and their Caregivers. 
  • Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program. 
  • Consensus statement on depression, anxiety, and oncology. 
  • Consumer, provider, and informal caregiver opinions on psychiatric advance directives. 
  • Contextualization of psychological treatments for government health systems in low-resource settings: group interpersonal psychotherapy for caregivers of children with nodding syndrome in Uganda. 
  • Contribution of neuropsychiatric symptoms in Parkinson's disease to different domains of caregiver burden. 
  • Coping Skills Practice and Symptom Change: A Secondary Analysis of a Pilot Telephone Symptom Management Intervention for Lung Cancer Patients and Their Family Caregivers. 
  • Coronary catherization patient and wife's perceptions of social support: effects due to characteristics of recipient, provider, and their interaction. 
  • Coronary heart disease moderates the relationship of chronic stress with the metabolic syndrome. 
  • Correlates of care relationship mutuality among carers of people with Alzheimer's and Parkinson's disease. 
  • Correlates of poor health among orphans and abandoned children in less wealthy countries: the importance of caregiver health. 
  • Culturally and developmentally adapting group interpersonal therapy for adolescents with depression in rural Nepal. 
  • Deciding to institutionalize: why do family members cease caregiving at home? 
  • Defining High-Quality Palliative Care in Oncology Practice: An American Society of Clinical Oncology/American Academy of Hospice and Palliative Medicine Guidance Statement. 
  • Defining the Clinical, Emotional, Social, and Financial Burden of Congenital Athymia. 
  • Dementia and cancer: a comparison of spouse caregivers. 
  • Dementia assessment and management. 
  • Dementia caregiver interventions in Chinese people: A systematic review. 
  • Dementia in relation to family caregiver involvement and burden in long-term care. 
  • Dental care utilization among caregivers who care for older adults. 
  • Depression in primary caregivers of patients listed for liver or kidney transplantation. 
  • Depressive symptoms among informal caregivers of older adults: insights from the Singapore Survey on Informal Caregiving. 
  • Designing a Primary Care-Based Deprescribing Intervention for Patients with Dementia and Multiple Chronic Conditions: a Qualitative Study. 
  • Development and Initial Validation of the Caregiver Perceptions About Communication With Clinical Team Members (CAPACITY) Measure. 
  • Development and Local Contextualization of Mobile Health Messages for Enhancing Disease Management Among Community-Dwelling Stroke Patients in Rural China: Multimethod Study. 
  • Development and preliminary evaluation of a telephone-based coping skills training intervention for survivors of acute lung injury and their informal caregivers. 
  • Development and preliminary evaluation of a telephone-based mindfulness training intervention for survivors of critical illness. 
  • Development and preliminary evaluation of the caregiver assistive technology outcome measure. 
  • Development and validation of the Psychological Adaptation Scale (PAS): use in six studies of adaptation to a health condition or risk. 
  • Development and validation of the parent experience of child illness. 
  • Differential attrition in a caregiver skill training trial. 
  • Differential levels of stress in caregivers of brain tumor patients--observations from a pilot study. 
  • Direct social support for young high risk children: relations with behavioral and emotional outcomes across time. 
  • Directed content analysis of Veterans Affairs policy documents: A strategy to guide implementation of a dementia home safety toolkit for Veterans to promote ageing in place. 
  • Discordance between dementia caregivers' goal of care and preference for life-extending treatments. 
  • Distress and growth outcomes in mothers of medically fragile infants. 
  • Do nurse-led skill training interventions affect informal caregivers' out-of-pocket expenditures? 
  • Does a helping hand mean a heavy heart? Helping behavior and well-being among spouse caregivers. 
  • Does support from foreign domestic workers decrease the negative impact of informal caregiving? Results from Singapore survey on informal caregiving. 
  • Domestic helpers as frontline workers in China's home-based elder care: A systematic review. 
  • Donepezil for treatment of cognitive dysfunction in children with Down syndrome aged 10-17. 
  • Drivers of Long-Term Care Considerations by Persons With Cognitive Impairment. 
  • Dyadic approach to post-stroke hospitalizations: role of caregiver and patient characteristics. 
  • EMPOWER: an intervention to address barriers to pain management in hospice. 
  • Early Peanut Protein Introduction in Clinical Practice. 
  • Early integration of palliative care into the care of patients with cancer. 
  • Effect of Inpatient Palliative Care on Quality of Life 2 Weeks After Hematopoietic Stem Cell Transplantation: A Randomized Clinical Trial. 
  • Effect of Palliative Care-Led Meetings for Families of Patients With Chronic Critical Illness: A Randomized Clinical Trial. 
  • Effect of a tailored assistive technology intervention on older adults and their family caregiver: a pragmatic study protocol. 
  • Effect of predicted low suspend pump treatment on improving glycaemic control and quality of sleep in children with type 1 diabetes and their caregivers: the QUEST randomized crossover study. 
  • Effect of race on cultural justifications for caregiving. 
  • Effects of 5HTTLPR on cardiovascular response to an emotional stressor. 
  • Effects of a Telephone- and Web-based Coping Skills Training Program Compared with an Education Program for Survivors of Critical Illness and Their Family Members. A Randomized Clinical Trial. 
  • Effects of a caregiver-inclusive assistive technology intervention: a randomized controlled trial. 
  • Effects of a hybrid education program for Korean mothers of children with atopic dermatitis. 
  • Effects of an Individualized Caregiver Training Intervention on Self-Efficacy of Cancer Caregivers. 
  • Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being. 
  • Effects of environmental stress and gender on associations among symptoms of depression and the serotonin transporter gene linked polymorphic region (5-HTTLPR). 
  • Effects of spouse-assisted coping skills training and exercise training in patients with osteoarthritic knee pain: a randomized controlled study. 
  • Effects of the child-perpetrator relationship on mental health outcomes of child abuse: it's (not) all relative. 
  • Efficacy and cost-effectiveness of an outcall program to reduce carer burden and depression among carers of cancer patients [PROTECT]: rationale and design of a randomized controlled trial. 
  • Efficacy of a telephone outcall program to reduce caregiver burden among caregivers of cancer patients [PROTECT]: a randomised controlled trial. 
  • Emotional distress and quality of life in caregivers of patients awaiting lung transplant. 
  • Engaging ALS patients and caregivers (the ALS research ambassadors) to help design the REFINE-ALS biomarker study. 
  • Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial. 
  • Enhancing & Mobilizing the POtential for Wellness & Emotional Resilience (EMPOWER) among Surrogate Decision-Makers of ICU Patients: study protocol for a randomized controlled trial. 
  • Enuresis in children and adolescents with sickle cell anaemia is more frequent and substantially different from the general population. 
  • Epidemiology of apathy in older adults: the Cache County Study. 
  • Equal division of estates and the exchange motive. 
  • Essential Long-Term Care Workers Commonly Hold Second Jobs and Double- or Triple-Duty Caregiving Roles. 
  • Evaluating the Feasibility and Acceptability of a Telehealth Program in a Rural Palliative Care Population: TapCloud for Palliative Care. 
  • Evaluation of a discharge education protocol for pediatric patients with gastrostomy tubes. 
  • Examining dual method contraceptive use among midwestern parenting Latinx teens: Perspectives from adolescent parents, caretakers, and nurses. 
  • Examining the interrelatedness of patient and spousal stress in heart failure: conceptual model and pilot data. 
  • Expectations and outcomes of gastric feeding tubes. 
  • Expectations and outcomes of prolonged mechanical ventilation. 
  • Expenditures in caring for patients with dementia who live at home. 
  • Experiences and concerns of family caregivers providing support to people with dementia: A cross-cultural perspective 
  • Experiences of Family Caregivers After an Acute Neurological Event. 
  • Expert estimates of caregiver hours for older Singaporeans with dementia. 
  • Exploring the impact of paediatric localized scleroderma on health-related quality of life: focus groups with youth and caregivers. 
  • Exploring the meaning of childhood disability: perceptions of disability among mothers of children with disabilities (CWD) in Kuwait. 
  • FAMILY CAREGIVER'S PERCEPTION OF DEMENTIA AND CAREGIVING IN CHINESE CULTURE 
  • Facilitating research participation and improving quality of life for African American prostate cancer survivors and their intimate partners. A pilot study of telephone-based coping skills training. 
  • Factors That Impact Family Perception of Goal-Concordant Care at the End of Life. 
  • Factors associated with caregiver burden among caregivers of children with cerebral palsy in Sri Lanka. 
  • Factors considered important at the end of life by patients, family, physicians, and other care providers. 
  • Family Caregiver Perspectives on Suffering of Persons With Severe Dementia: A Qualitative Study. 
  • Family Caregiver Skills Training to Improve Experiences of Care: a Randomized Clinical Trial. 
  • Family care and Alzheimer's disease: what do we know? What can we do? 
  • Family caregivers of advanced cancer patients: self-perceived competency and meaning-making. 
  • Family dynamics in a multi-ethnic Asian society: comparison of elderly CKD patients and their family caregivers experience with medical decision making for managing end stage kidney disease. 
  • Family issues in dementia: finding a new normal. 
  • Family-supportive supervisor behaviour positively affects work behaviour and nonwork well-being among men in long-term care. 
  • Fatigue in Children With Sickle Cell Disease: Association With Neurocognitive and Social-Emotional Functioning and Quality of Life. 
  • Feasibility of 24-Hr Urine Collection for Measurement of Biomarkers in Community-Dwelling Older Adults. 
  • Feasibility of a dyadic intervention for management of osteoarthritis: a pilot study with older patients and their spousal caregivers. 
  • Feeding a family in a recession: food insecurity among Minnesota parents. 
  • Feeding dysfunction in single ventricle patients with feeding disorder. 
  • Finding meaning in caring for a spouse with dementia. 
  • Formative research methods for designing culturally appropriate, integrated child nutrition and development interventions: an overview. 
  • From Barriers to Assets: Rethinking factors impacting advance care planning for African Americans. 
  • From Stigma to Validation: A Qualitative Assessment of a Novel National Program to Improve Retention of Physician-Scientists with Caregiving Responsibilities. 
  • From evidence to practice: using the RE-AIM framework to adapt the REACHII caregiver intervention to the community. 
  • Great expectations: a position description for parents as caregivers: Part I. 
  • Great expectations: a position description for parents as caregivers: Part II. 
  • Greater risk of dementia when spouse has dementia? The Cache County study. 
  • HPA axis function in male caregivers: effect of the monoamine oxidase-A gene promoter (MAOA-uVNTR). 
  • Head and Neck Cancer Survivors: Specific Needs and Their Implications for Survivorship Care Planning. 
  • Health Trajectories of Women in China: The Role of Parental Caregiving. 
  • Health impacts of caregiving for older adults with functional limitations: results from the Singapore survey on informal caregiving. 
  • Health literacy and injury prevention behaviors among caregivers of infants. 
  • Health values of the seriously ill. SUPPORT investigators. 
  • Health, wellness, and safety concerns of persons with moderate-to-severe traumatic brain injury and their family caregivers: a qualitative content analysis. 
  • Healthcare retention and clinical outcomes among adolescents living with HIV after transition from pediatric to adult care: a systematic review. 
  • Healthcare utilization and cost trajectories post-stroke: role of caregiver and stroke factors. 
  • Helping Dementia Caregivers Manage Medical Problems: Benefits of an Educational Resource. 
  • Helping Invested Families Improve Veterans' Experiences Study (HI-FIVES): study design and methodology. 
  • Home automated external defibrillators in a geriatric population: a brief discussion of the evidence. 
  • Home tonometry for management of pediatric glaucoma. 
  • Hoping for the best and preparing for the worst: a forgotten maxim in the immunotherapy era? 
  • Hospice education about people with AIDS as terminally ill patients: coping with a new epidemic of death. 
  • How Accurately Do Patients and Their Care Partners Report Results of Amyloid-β PET Scans for Alzheimer's Disease Assessment? 
  • How Surrogate Decision-Makers for Patients With Chronic Critical Illness Perceive and Carry Out Their Role. 
  • How should we implement psychiatric advance directives? Views of consumers, caregivers, mental health providers and researchers. 
  • Identifying critically important cardiovascular outcomes for trials in hemodialysis: an international survey with patients, caregivers and health professionals. 
  • Identifying trajectories of depressive symptoms for women caring for their husbands with dementia. 
  • Identifying treatment effects of an informal caregiver education intervention to increase days in the community and decrease caregiver distress: a machine-learning secondary analysis of subgroup effects in the HI-FIVES randomized clinical trial. 
  • Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. 
  • If patients are the true north, patient-centeredness should guide research. 
  • Impact of Chronic Sleep Disturbance for People Living With T1 Diabetes. 
  • Impact of San Francisco's toy ordinance on restaurants and children's food purchases, 2011-2012. 
  • Impact of Type 1 Diabetes Technology on Family Members/Significant Others of People With Diabetes. 
  • Impact of antipsychotic medication on family burden in schizophrenia: longitudinal results of CATIE trial. 
  • Impact of patients' psychiatric hospitalization on caregivers: a systematic review. 
  • Impact of psychological stress on the associations between apolipoprotein E variants and metabolic traits: findings in an American sample of caregivers and controls. 
  • Impact of treatment improvement on long-term anxiety: Results from CAMS and CAMELS. 
  • Impacts of COVID-19 on caregivers of childhood cancer survivors. 
  • Implementing a Standardized Transition Care Plan in Skilled Nursing Facilities. 
  • Implementing a pediatric oncology nursing multisite trial. 
  • Improving the quality of cancer care in an aging population: recommendations from an IOM report. 
  • Improving the quality of survivorship for older adults with cancer. 
  • Including Family Caregivers In Seriously Ill Veterans' Care: A Mixed-Methods Study. 
  • Inclusion of Caregivers in Veterans' Care: A Critical Literature Review. 
  • Incorporating patient and caregiver feedback into lung transplant referral guidelines for individuals with cystic fibrosis-Preliminary findings from a novel paradigm. 
  • Individual- and family-level psychosocial correlates of HIV risk behavior among youth in rural Kenya. 
  • Infant and Toddler Child-Care Quality and Stability in Relation to Proximal and Distal Academic and Social Outcomes. 
  • Influence of Temperament As a Risk Indicator for Early Childhood Caries. 
  • Influenza vaccination practices of physicians and caregivers of children with neurologic and neurodevelopmental conditions - United States, 2011-12 influenza season. 
  • Informal Caregiving: A Growing Need for Inclusion in Stroke Rehabilitation. 
  • Informal and formal care infrastructure and perceived need for caregiver training for frail US veterans referred to home and community-based services. 
  • Informal caregiver training on home care and cancer symptom management prior to hospital discharge: a feasibility study. 
  • Intensity of grandparent caregiving and life satisfaction among rural chinese older adults: a longitudinal study using latent difference score analysis. 
  • Interactions of parents and nurses with high-risk preterm infants. 
  • Internet Use and Technology-Related Attitudes of Veterans and Informal Caregivers of Veterans. 
  • Interventions That Support or Involve Caregivers or Families of Patients with Traumatic Injury: a Systematic Review. 
  • Interviews with caregivers during acute asthma hospitalisations. 
  • Is there no place like home? Caregivers recall reasons for and experience upon transfer from home hospice to inpatient facilities. 
  • Language processing deficits in sickle cell disease in young school-age children. 
  • Lessons learned from a Parkinson's disease caregiver intervention pilot study. 
  • Levels of stress and intervention preferences of caregivers of brain tumor patients. 
  • Leveraging institutional support for family caregivers to meet the health and vocational needs of persons with disabilities. 
  • Life After the Neurosurgical Ward in Sub-Saharan Africa: Neurosurgical Treatment and Outpatient Outcomes in Uganda. 
  • Longitudinal Assessment of Self-Harm Statements of Youth in Foster Care: Rates, Reporters, and Related Factors. 
  • Management of patients with Parkinson disease. 
  • Managing Visitors During the Hospital Stay: The Experience of Family Caregivers of Patients With Traumatic Brain Injury. 
  • Managing challenging behaviors at home. 
  • Measurement Properties of the CAPACITY Instrument to Assess Perceived Communication With the Health Care Team Among Care Partners of Patients With Cognitive Impairment. 
  • Measuring psychosocial risk in families caring for a child with cancer: the Psychosocial Assessment Tool (PAT2.0). 
  • Mechanisms Through Which a Family Caregiver Coaching Intervention Might Reduce Anxiety Among Children in Military Households. 
  • Medicare claims indicators of healthcare utilization differences after hospitalization for ischemic stroke: Race, gender, and caregiving effects. 
  • Mindfulness based stress reduction in people with Parkinson's disease and their care partners. 
  • Missed opportunities for timely diagnosis of pediatric lupus in South Africa: a qualitative study. 
  • Modeling development of sleep-wake behaviors. II. Results of two cohorts of preterms. 
  • Multifamily group treatment for veterans with traumatic brain injury: what is the value to participants? 
  • Multiple risk factors in the development of externalizing behavior problems: group and individual differences. 
  • Nausea and vomiting perspectives among children receiving moderate to highly emetogenic chemotherapy treatment. 
  • Neighborhood Commute to Work Times and Self-Reported Caregiver Health Behaviors and Food Access. 
  • Neighborhood characteristics moderate effects of caregiving on glucose functioning. 
  • Neuropsychiatric symptoms and the risk of institutionalization and death: the aging, demographics, and memory study. 
  • Neutrophil function in young and old caregivers. 
  • New or Worsening Symptoms and Signs in Community-Dwelling Persons with Dementia: Incidence and Relation to Use of Acute Medical Services. 
  • No Hugs Allowed: Isolation and Inequity in North Carolina Long-term Services and Supports During COVID-19. 
  • Nursing home care: exploring the role of religiousness in the mental health, quality of life and stress of formal caregivers. 
  • Older person behavioral and psychological symptoms (BPS) and functional limitations mediate the association between older person cognitive impairment and depressive symptoms in the caregiver. 
  • Older spouses' perceptions of partners' chronic arthritis pain: implications for spousal responses, support provision, and caregiving experiences. 
  • Oncologist-patient-caregiver decision-making discussions in the context of advanced cancer in an Asian setting. 
  • Oncologists' responses to patient and caregiver negative emotions and patient perception of quality of communication: results from a multi-ethnic Asian setting. 
  • Orphan status, HIV risk behavior, and mental health among adolescents in rural Kenya. 
  • Pain communication in the context of osteoarthritis: patient and partner self-efficacy for pain communication and holding back from discussion of pain and arthritis-related concerns. 
  • Palliative Care Awareness Among Advanced Cancer Patients and Their Family Caregivers in Singapore. 
  • Palliative Care Issues in Amyotrophic Lateral Sclerosis: An Evidenced-Based Review. 
  • Palliative and End-of-Life Care for Patients With Hematologic Malignancies. 
  • Palliative care, Version 1.2014. Featured updates to the NCCN Guidelines. 
  • Parent Experience of Neonatal Encephalopathy. 
  • Parent experience of caring for neonates with seizures. 
  • Parent pain responses as predictors of daily activities and mood in children with juvenile idiopathic arthritis: the utility of electronic diaries. 
  • Parental Approach to the Prevention and Management of Fever and Pain Following Childhood Immunizations: A Survey Study. 
  • Parental understanding of infant health information: health literacy, numeracy, and the Parental Health Literacy Activities Test (PHLAT). 
  • Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. 
  • Parents' experiences of managing their child's diabetes using an insulin pump: a qualitative study. 
  • Participant-centered adaptations in caregiver trials: strategies for managing confounds. 
  • Pastoral care for the person with dementia. 
  • Patient and Caregiver Attitudes and Practices of Exercise in Candidates Listed for Liver Transplantation. 
  • Patient and Caregiver Opinions of Motivational Interviewing Techniques In Role-Played Palliative Care Conversations: A Pilot Study. 
  • Patient and informal caregivers' knowledge of heart failure: necessary but insufficient for effective self-care. 
  • Patient and physician attitudes regarding risk and benefit in streamlined development programmes for antibacterial drugs: a qualitative analysis. 
  • Patient predictors of caregiver burden, optimism, and pessimism in rheumatoid arthritis. 
  • Patient, Caregiver, and Nurse Preferences for Treatments for Bone Metastases from Solid Tumors. 
  • Patient, Caregiver, and Taxpayer Knowledge of Palliative Care and Views on a Model of Community-Based Palliative Care. 
  • Patients with cancer and their spouse caregivers. Perceptions of the illness experience. 
  • Patterns and health effects of caring for people with dementia: the impact of changing cognitive and residential status. 
  • Perceived barriers and supports to accessing community-based services for Uganda's pediatric post-surgical population. 
  • Perceptions of patients' self-efficacy for managing pain and lung cancer symptoms: correspondence between patients and family caregivers. 
  • Perspectives on decision making amongst older people with end-stage renal disease and caregivers in Singapore: A qualitative study. 
  • Physician allocation of Medicare resources for patients with advanced cancer. 
  • Physician and Patient and Caregiver Health Attitudes and Their Effect on Medicare Resource Allocation for Patients With Advanced Cancer. 
  • Physician communication with family caregivers of long-term care residents at the end of life. 
  • Pilot Trial of a Combined Oncologist-Patient-Caregiver Communication Intervention in Singapore. 
  • Pilot study: individualized training for caregivers of hospitalized older veterans. 
  • Position statement of the American Association for Geriatric Psychiatry regarding principles of care for patients with dementia resulting from Alzheimer disease. 
  • Position statement: Policies to support family caregivers. 
  • Postoperative Pain Management in Children of Hispanic Origin: A Descriptive Cohort Study. 
  • Predictors of Secondary Role Strains Among Spousal Caregivers of Older Adults With Functional Disability. 
  • Preferences versus practice: life-sustaining treatments in last months of life in long-term care. 
  • Preliminary Data from the Caring for Older Adults and Caregivers at Home (COACH) Program: A Care Coordination Program for Home-Based Dementia Care and Caregiver Support in a Veterans Affairs Medical Center. 
  • Preparing for the end of life: preferences of patients, families, physicians, and other care providers. 
  • Prevalence and predictors of HIV-related stigma among institutional- and community-based caregivers of orphans and vulnerable children living in five less-wealthy countries. 
  • Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best-worst scaling experiment in caregivers and adult patients. 
  • Program preferences to reduce stress in caregivers of patients with brain tumors. 
  • Projecting the effects of long-term care policy on the labor market participation of primary informal family caregivers of elderly with disability: insights from a dynamic simulation model. 
  • Promoting a good death for persons with dementia in nursing facilities: family caregivers' perspectives. 
  • Prospective study of neuropsychologic testing and quality-of-life assessment of adults with primary malignant brain tumors. 
  • Psychologic interventions and lifestyle modifications for arthritis pain management. 
  • Psychological aspects of persistent pain: current state of the science. 
  • Psychological morbidity of Thai families of a person with schizophrenia. 
  • Psychological treatments delivered by community health workers in low-resource government health systems: effectiveness of group interpersonal psychotherapy for caregivers of children affected by nodding syndrome in Uganda. 
  • Psychological well-being of Chinese Immigrant adult-child caregivers: how do filial expectation, self-rated filial performance, and filial discrepancy matter? 
  • Psychophysiological mediators of caregiver stress and differential cognitive decline. 
  • Psychosocial Burden of Childhood Sickle Cell Disease on Caregivers in Kenya. 
  • Psychosocial stress moderates the relationship of cancer history with natural killer cell activity. 
  • Quality of life of patients with otitis media and caregivers: a multicenter study. 
  • Racial and Ethnic Differences in Injury Prevention Behaviors Among Caregivers of Infants. 
  • Racial disparities in fifth-grade sun protection: Evidence from the Healthy Passages study. 
  • Randomized Pilot Trial of a Telephone Symptom Management Intervention for Symptomatic Lung Cancer Patients and Their Family Caregivers. 
  • Randomized trial of an uncertainty self-management telephone intervention for patients awaiting liver transplant. 
  • Ratings of personality change in patients being evaluated for memory disorders. 
  • Recruitment and retention rates in behavioral trials involving patients and a support person: a systematic review. 
  • Recruitment of African-American pre-adolescent girls into an obesity prevention trial: the GEMS pilot studies. 
  • Relation between informant-rated personality and clinician-rated depression in patients with memory disorders. 
  • Relationship between self-reported disability and caregiver hours. 
  • Religion and Caregiving for Orphans and Vulnerable Children: A Qualitative Study of Caregivers Across Four Religious Traditions and Five Global Contexts. 
  • Religious Coping Among Adults Caring for Family Members with Serious Mental Illness. 
  • Religious Involvement and Adaptation in Female Family Caregivers. 
  • Religious Involvement and Telomere Length in Women Family Caregivers. 
  • Religious views of the 'medical' rehabilitation model: a pilot qualitative study. 
  • Reminders of cancer risk and pain catastrophizing: relationships with cancer worry and perceived risk in women with a first-degree relative with breast cancer. 
  • Replicating an effective VA program to train and support family caregivers: a hybrid type III effectiveness-implementation design. 
  • Reported activities of daily living: agreement between elderly subjects with and without dementia and their caregivers. 
  • Research Priorities to Advance the Health and Health Care of Older Adults with Multiple Chronic Conditions. 
  • Resident challenges with daily life in Chinese long-term care facilities: A qualitative pilot study. 
  • Risk and resilience of well-being in caregivers of young children in response to the COVID-19 pandemic. 
  • Risk reconsidered: targets of violence in the social networks of people with serious psychiatric disorders. 
  • Role of caregiver factors in outpatient medical follow-up post-stroke: observational study in Singapore. 
  • Room for Improvement Remains in Food Consumption Patterns of Young Children Aged 2-4 Years. 
  • Ruth's resolve: what Jesus' great-grandmother may teach about bioethics and care. 
  • Self-efficacy for managing pain, symptoms, and function in patients with lung cancer and their informal caregivers: associations with symptoms and distress. 
  • Self-perceived burden in cancer patients: validation of the Self-perceived Burden Scale. 
  • Serious physical illness as a stressor: effects on family use of medical services. 
  • Shared Decision-Making in Hematopoietic Stem Cell Transplantation for Sickle Cell Disease. 
  • Sharing the care of mechanical circulatory support: collaborative efforts of patients/caregivers, shared-care sites, and left ventricular assist device implanting centers. 
  • Short-Term Trajectories of Depressive Symptoms in Stroke Survivors and Their Family Caregivers. 
  • Simulating the impact of long-term care policy on family eldercare hours. 
  • Sleep quality varies as a function of 5-HTTLPR genotype and stress. 
  • Social issues of the Alzheimer's patient and family. 
  • Social service interventions for caregivers of patients with dementia: impact on health care utilization and expenditures. 
  • Specialized palliative care services are associated with improved short- and long-term caregiver outcomes. 
  • Spinal muscular atrophy type 1 quality of life. 
  • Spirituality and depression: a case study. 
  • Spirituality and psychological well-being: testing a theory of family interdependence among family caregivers and their elders. 
  • Spouse-assisted coping skills training in the management of knee pain in osteoarthritis: long-term followup results. 
  • Stakeholders' perspective on issues and challenges associated with care and treatment of aging-related cognitive impairment disorders in Singapore. 
  • Stress and coping in caregivers of patients awaiting solid organ transplantation. 
  • Study protocol for a cohort study of patients with advanced heart failure in Singapore. 
  • Supporting Family Caregivers of Older Americans. 
  • Supporting cancer family caregivers: How can frontline oncology clinicians help? 
  • Supportive approaches for Alzheimer disease. 
  • Surrogate assessment of coronary artery disease patients' functional capacity. 
  • Surviving critical illness: acute respiratory distress syndrome as experienced by patients and their caregivers. 
  • Systematic review of the effectiveness of non-pharmacological interventions to improve quality of life of people with dementia. 
  • Teaching elderly individuals on computer use. 
  • The "invisible caregiver": multicaregiving among diabetic African-American grandmothers. 
  • The Behavior Rating Scale for Dementia of the Consortium to Establish a Registry for Alzheimer's Disease. The Behavioral Pathology Committee of the Consortium to Establish a Registry for Alzheimer's Disease. 
  • The Comprehensive Post-Acute Stroke Services (COMPASS) study: design and methods for a cluster-randomized pragmatic trial. 
  • The Effect of Support and Training for Family Members on Access to Outpatient Services for Veterans with Posttraumatic Stress Disorder (PTSD). 
  • The Treatment of Behavioral and Psychological Symptoms of Dementia: Weighing Benefits and Risks. 
  • The association of acculturation and health literacy, numeracy and health-related skills in Spanish-speaking caregivers of young children. 
  • The burden of Parkinson's disease on society, family, and the individual. 
  • The burden of caring: drug users & their families. 
  • The caregiving environments provided to children by depressed mothers with or without an antisocial history. 
  • The effect of spousal caregiving and bereavement on depressive symptoms. 
  • The effects of China's universal two-child policy. 
  • The experiences of older caregivers of cancer patients following hospital discharge. 
  • The feasibility and acceptability of a chaplain-led intervention for caregivers of seriously ill patients: A Caregiver Outlook pilot study. 
  • The frequency and troublesomeness of symptoms associated with Alzheimer's disease. 
  • The impact of a family skills training intervention among Burmese migrant families in Thailand: A randomized controlled trial. 
  • The impact of own and spouse's urinary incontinence on depressive symptoms. 
  • The implications of out-of-pocket cost of cancer treatment in the USA: a critical appraisal of the literature. 
  • The importance of context in early autism intervention: A qualitative South African study. 
  • The influence of neighborhood disadvantage and perceived disapproval on early substance use initiation. 
  • The nature and scope of stressful spousal caregiving relationships. 
  • The period of untreated psychosis before treatment initiation: a qualitative study of family members' perspectives. 
  • The prevalence and process of pediatric HIV disclosure: A population-based prospective cohort study in Zimbabwe. 
  • The prevention of major depression in the elderly. 
  • The role of community-based and philanthropic organizations in meeting cancer patient and caregiver needs. 
  • The self-efficacy of family caregivers for helping cancer patients manage pain at end-of-life. 
  • The social context of gastrointestinal cancer pain: a preliminary study examining the relation of patient pain catastrophizing to patient perceptions of social support and caregiver stress and negative responses. 
  • The two voices of Alzheimer's: attitudes toward brain health by diagnosed individuals and support persons. 
  • The types of caregiving reactions experienced by the older spouse caregivers. 
  • Therapeutic Alliance between the Caregivers of Critical Illness Survivors and Intensive Care Unit Clinicians. 
  • There is a mismatch between the medicare benefit package and the preferences of patients with cancer and their caregivers. 
  • Three-year change in the wellbeing of orphaned and separated children in institutional and family-based care settings in five low- and middle-income countries. 
  • Trajectories of caregiving time provided by wives to their husbands with dementia. 
  • Trajectories of positive aspects of caregiving among family caregivers of stroke-survivors: the differential impact of stroke-survivor disability. 
  • Transitional Care Partners: a hospital-to-home support for older adults and their caregivers. 
  • Transitional care after hospitalization for acute stroke or myocardial infarction: a systematic review. 
  • Transitional care from skilled nursing facilities to home: study protocol for a stepped wedge cluster randomized trial. 
  • Transitions of care in heart failure: a scientific statement from the American Heart Association. 
  • Treating excess disability among cognitively impaired nursing home residents. 
  • Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists. 
  • Understanding factors that influence the demand for dialysis among elderly in a multi-ethnic Asian society. 
  • Understanding on the association between informal caregiver characteristics and cognitive function of adults with cancer: a scoping review protocol. 
  • Understanding the needs of people with ALS: a national survey of patients and caregivers. 
  • Understanding the relative importance of preserving functional abilities in Alzheimer's disease in the United States and Germany. 
  • Unmet expectations of medications and care providers among patients with heart failure assessed to be poorly adherent: results from the Chronic Heart Failure Intervention to Improve MEdication Adherence (CHIME) study. 
  • Unmet needs and depression among carers of people newly diagnosed with cancer. 
  • Unpaid Caregiving Roles and Sleep Among Women Working in Nursing Homes: A Longitudinal Study. 
  • Untangling the relative contribution of maltreatment severity and frequency to type of behavioral outcome in foster youth. 
  • Validity and Reliability of the Positive Aspects of Caregiving (PAC) Scale and Development of Its Shorter Version (S-PAC) Among Family Caregivers of Older Adults. 
  • Validity and reliability of the Caregiver Reaction Assessment scale among primary informal caregivers for older persons in Singapore. 
  • Validity of evidence-derived criteria for reactive attachment disorder: indiscriminately social/disinhibited and emotionally withdrawn/inhibited types. 
  • Variation in caregiver perceptions of teamwork climate in labor and delivery units. 
  • Video-Enhanced Care Management for Medically Complex Older Adults with Cognitive Impairment. 
  • Video-based coping skills to reduce health risk and improve psychological and physical well-being in Alzheimer's disease family caregivers. 
  • What is the role of friends when contributing care at the end of life? Findings from an Australian population study. 
  • What's in a manner of speaking? Children's sensitivity to partner-specific referential precedents. 
  • When "the family" is not one voice: conflict in caregiving families. 
  • When Should Patients Be Involved in Cardiovascular Clinical Trial Design?: Always, Early, and Often. 
  • When parents have a history of conduct disorder: how is the caregiving environment affected? 
  • Willingness to Undergo a Risky Treatment to Improve Cognition Among Persons With Cognitive Impairment Who Received an Amyloid PET Scan. 
  • Young caregivers in the end-of-life setting: a population-based profile of an emerging group. 
• 

  Keywords of People

  • Albrecht, Tara, Assistant Professor in the School of Nursing, School of Nursing
  • Anderson, Ruth A., Professor Emerita in the School of Nursing, School of Nursing
  • Bettger, Janet Prvu, Associate Professor in Orthopaedic Surgery, Duke Science & Society
  • Boucher, Nathan Adam, Associate Research Professor in the Sanford School of Public Policy, Medicine, Geriatrics
  • Grambow, Steven C., Assistant Professor of Biostatistics & Bioinformatics, Biostatistics & Bioinformatics
  • Lee, Walter T, Professor of Head and Neck Surgery & Communication Sciences, Radiation Oncology
  • McConnell, Eleanor Schildwachter, Associate Professor in the School of Nursing, School of Nursing
  • Milano, Carmelo Alessio, Professor of Surgery, Surgery, Cardiovascular and Thoracic Surgery
  • Ostbye, Truls, Professor of Family Medicine and Community Health, Family Medicine and Community Health
  • Schanberg, Laura Eve, Professor of Pediatrics, Pediatrics, Rheumatology
  • Yancy Jr., William Samuel, Associate Professor of Medicine, Medicine, General Internal Medicine
  • Zafar, Syed Yousuf, Associate Professor of Medicine, Duke Science & Society
  • Zullig, Leah L, Associate Professor in Population Health Sciences, Medicine, General Internal Medicine