Genetic Privacy

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  Subject Areas on Research

  • Beyond the Genetic Information Nondiscrimination Act: ethical and economic implications of the exclusion of disability, long-term care and life insurance. 
  • Commentary on "Distinguishing genetic from nongenetic medical tests: some implications for antidiscrimination legislation" (J.S. Alper and J. Beckwith) 
  • Consent process for US-based family reference DNA samples. 
  • Ethical aspects of banking placental blood for transplantation. 
  • Ethical issues of predictive genetic testing for diabetes. 
  • Genetic privacy needs a more nuanced approach. 
  • Genetic testing for BRCA1 and BRCA2: recommendations of the Stanford Program in Genomics, Ethics, and Society. Breast Cancer Working Group. 
  • Integrating ethics and science in the International HapMap Project. 
  • Personal genomes in progress: from the human genome project to the personal genome project. 
  • Pharmacogenetics: ethical issues and policy options. 
  • Privacy, families, and human subject protections: some lessons from pedigree research. 
  • Redefining Genomic Privacy: Trust and Empowerment 
  • Start me up: ways to encourage sharing of genomic information with research participants. 
  • Survey of US public attitudes toward pharmacogenetic testing. 
  • The routinisation of genomics and genetics: implications for ethical practices.