Disclosure

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  Subject Areas on Research

  • "At home, no one knows": A qualitative study of retention challenges among women living with HIV in Tanzania. 
  • "I should know better": the roles of relationships, spirituality, disclosure, stigma, and shame for older women living with HIV seeking support in the South. 
  • "They Aren't Going to Do Jack Shit": Text-Based Crisis Service Users' Perceptions of Seeking Child Maltreatment-Related Support From Formal Systems. 
  • "We are not gays… don't tell me those things": engaging 'hidden' men who have sex with men and transgender women in HIV prevention in Myanmar. 
  • "You Have to Keep Yourself Hidden": Perspectives From Malaysian Malay-Muslim Men Who Have Sex With Men on Policy, Network, Community, and Individual Influences on HIV Risk. 
  • A Mixed-Methods Study: Sex Differences in Experiences of Stigma Associated With Alcoholism and Alcohol Use Disorders Among Injury Patients in Tanzania. 
  • A call for full public disclosure for donation after circulatory determination of death in children. 
  • A comprehensive process for disclosing and managing conflicts of interest on perceived bias at the SAGES annual meeting. 
  • A proposed approach may help systematic reviews retain needed expertise while minimizing bias from nonfinancial conflicts of interest. 
  • A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone. 
  • A randomized noninferiority trial of condensed protocols for genetic risk disclosure of Alzheimer's disease. 
  • A randomized, controlled trial of emotional disclosure in rheumatoid arthritis: can clinician assistance enhance the effects? 
  • Acceptability of a group intervention for initiates of antiretroviral therapy in Tanzania. 
  • Amyloid-β PET Scan Results Disclosure and Care-Partner Emotional Well-Being Over Time. 
  • An assessment of stigma and human right violations among men who have sex with men in Abuja, Nigeria. 
  • An evaluation of bariatric Web sites for patient education and guidance. 
  • An official American Thoracic Society policy statement: managing conscientious objections in intensive care medicine. 
  • Analysis of educational materials and destruction/opt-out initiatives for storage and use of residual newborn screening samples. 
  • Applying the PRECIS criteria to describe three effectiveness trials of weight loss in obese patients with comorbid conditions. 
  • Association Between Cancer Center Accreditation and Compliance With Price Disclosure of Common Oncologic Surgical Procedures. 
  • Balancing data privacy and usability in the federal statistical system. 
  • Carrier testing in fragile X syndrome: when to tell and test. 
  • Certificates of confidentiality and informed consent: perspectives of IRB chairs and institutional legal counsel. 
  • Child mortality: Villages project responds to criticism. 
  • Clinical trials and medical care: defining the therapeutic misconception. 
  • Comment regarding benefit in phase 1 oncology trials. 
  • Committee on High-quality Alzheimer's Disease Studies (CHADS) consensus report. 
  • Comparison of Approaches for Notification and Authorization in Pragmatic Clinical Research Evaluating Commonly Used Medical Practices. 
  • Comparison of conflict of interest policies and reported practices in academic medical centers in the United States. 
  • Complementary and Alternative Medicine Use in United States Adults With Liver Disease. 
  • Compliance with results reporting at ClinicalTrials.gov. 
  • Confidentiality and health insurance fraud. 
  • Conflict of interest disclosure in off-label oncology clinical trials. 
  • Consent forms and the therapeutic misconception: the example of gene transfer research. 
  • Consistency of financial interest disclosures in the biomedical literature: the case of coronary stents. 
  • Deciding for Others 
  • Developing model language for disclosing financial interests to potential clinical research participants. 
  • Disclosing conflicts of interest in clinical research: views of institutional review boards, conflict of interest committees, and investigators. 
  • Disclosure and Reflection After an Adverse Event: Tips for Training and Practice. 
  • Disclosure of Medical Errors. 
  • Disclosure of financial relationships to participants in clinical research. 
  • Discrepancies in Self-Reported and Actual Conflicts of Interest for Robotic Pediatric Urological Surgery. 
  • Do not resuscitate (DNR) orders during surgery: ethical foundations for institutional policies in the United States. 
  • Does familiarity breed contempt or liking? Comment on Reis, Maniaci, Caprariello, Eastwick, and Finkel (2011). 
  • Donald Trump: a political determinant of covid-19. 
  • Donor designation: racial and ethnic differences in US nondesignators' preferred methods for disclosing intent to donate organs. 
  • Effect of physician disclosure of specialty bias on patient trust and treatment choice. 
  • Effects of disclosing financial interests on attitudes toward clinical research. 
  • Effects of disclosing financial interests on participation in medical research: a randomized vignette trial. 
  • Empirical research on informed consent. An annotated bibliography. 
  • Ethical aspects of banking placental blood for transplantation. 
  • Ethical considerations regarding the implementation of new technologies and techniques in surgery. 
  • Ethical issues in umbilical cord blood banking. Working Group on Ethical Issues in Umbilical Cord Blood Banking. 
  • Ethics and Collateral Findings in Pragmatic Clinical Trials. 
  • Evidence-based community consultation for traumatic brain injury. 
  • Examining Stigma and Disclosure Among Women With HIV in the Southern United States: Qualitative Study Guided by the Adaptive Leadership Framework for Chronic Illness. 
  • Examining the effect of publishing of bill sizes to reduce information asymmetry on healthcare costs. 
  • Formation of trusts and spend down to Medicaid. 
  • Full disclosure--out-of-pocket costs as side effects. 
  • Gender, racial, and ethnic disclosure in NIH K-Award funded diabetes and obesity clinical trials. 
  • Getting meaningful informed consent from older adults: a structured literature review of empirical research. 
  • HIV/AIDS-related stigma in South African alcohol-serving venues and its potential impact on HIV disclosure, testing and treatment-seeking behaviours. 
  • How can we draw the line between clinical care and medical research. 
  • How disclosing HMO physician incentives affects trust. 
  • How girls and boys expect disclosure about problems will make them feel: implications for friendships 
  • IRB chairs' perspectives on genotype-driven research recruitment. 
  • Improving professional practice in the investigation and management of intrafamilial child sexual abuse: Qualitative analysis of serious child protection reviews. 
  • Inconsistent Reporting of Potential Conflicts of Interest in JAMA Cardiology. 
  • Inconsistent Reporting of Potential Conflicts of Interest in JAMA Pediatrics. 
  • Informed consent. From bodily invasion to the seemingly mundane. 
  • Institutional review boards' use and understanding of certificates of confidentiality. 
  • Less is more: the lure of ambiguity, or why familiarity breeds contempt. 
  • Let the punishment fit the crime: sensible consent in the management of human subjects research and standard-of-care interventions. 
  • Letter to the editor: Critique of Bahorik et al. (2013)--'Under-reporting of drug use among individuals with schizophrenia: prevalence and predictors'. 
  • Making sense of non-financial competing interests. 
  • Managed care: rationing without justice, but not unjustly. 
  • Managing incidental genomic findings: legal obligations of clinicians. 
  • Managing the science in the presence of financial conflict of interest. 
  • Maximizing value and minimizing barriers: Patient-centered community consultation for research in emergency settings. 
  • Medical Paternalism 
  • Medical, ethical and legal issues regarding thrombolytic therapy in the Jehovah's Witness. 
  • Myocardial infarction--Case studies of ethics in the consent situation. 
  • Navigating risks and professional roles: research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities. 
  • New HIV testing technologies in the context of a concentrated epidemic and evolving HIV prevention: qualitative research on HIV self-testing among men who have sex with men and transgender women in Yangon, Myanmar. 
  • New policy on disclosure of interest for American College of Rheumatology journals. 
  • Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders. 
  • Obtaining waivers of parental consent: A strategy endorsed by gay, bisexual, and queer adolescent males for health prevention research. 
  • Omitted Conflict of Interest Disclosures. 
  • Open science: The open clinical trials data journey. 
  • Parents' and clinicians' attitudes toward the risks and benefits of child psychotherapy: a study of informed-consent content. 
  • Parents' informed consent decisions regarding psychotherapy for their children: consideration of therapeutic risks and benefits. 
  • Patient-oncologist cost communication, financial distress, and medication adherence. 
  • Patients' Views About the Disclosure of Collateral Findings in Pragmatic Clinical Trials: a Focus Group Study. 
  • Patients' views on surgeons' financial conflicts of interest. 
  • Pediatric Price Transparency: Still Opaque With Opportunities for Improvement. 
  • Perspectives of clinical research coordinators on disclosing financial conflicts of interest to potential research participants. 
  • Physicians' quantitative assessments of medical futility. 
  • Placental-blood transplantation. 
  • Policies of academic medical centers for disclosing financial conflicts of interest to potential research participants. 
  • PrEP Disclosure Experiences of Gay and Bisexual Men in Guatemala. 
  • Practices and attitudes towards radiation risk disclosure for computed tomography: survey of emergency medicine residency program directors. 
  • Prenatal gene tranfer: scientific, medical, and ethical issues: a report of the Recombinant DNA Advisory Committee. 
  • Prescriptions for justice: using social accounts to legitimate the exercise of professional control. 
  • Professional perspectives about pharmacogenetic testing and managing ancillary findings. 
  • Protecting subjects, preserving trust, promoting progress II: principles and recommendations for oversight of an institution's financial interests in human subjects research. 
  • Providing Individual Research Results to Participants-Reply. 
  • Psychosocial challenges facing women living with HIV during the perinatal period in rural Uganda. 
  • Public attitudes toward ancillary information revealed by pharmacogenetic testing under limited information conditions. 
  • Public disclosure of clinical research. 
  • Public perspectives about pharmacogenetic testing and managing ancillary findings. 
  • Radiologist-Patient Communication: Current Practices and Barriers to Communication in Breast Imaging. 
  • Recognizing bedside rationing: clear cases and tough calls. 
  • Reporting the findings of clinical trials: a discussion paper. 
  • Research ethics. Certificates of confidentiality and compelled disclosure of data. 
  • SAGES perspective: professional medical associations, commercial interests, and conflicts of interest. 
  • Sexual Orientation and Patient-Provider Communication About Sexual Problems or Concerns Among US Adults. 
  • Sexual violence in the college population: a systematic review of disclosure and campus resources and services. 
  • Sources of bioterrorism information among emergency physicians during the 2001 anthrax outbreak. 
  • Stakeholder views on returning research results. 
  • Stigma, social inequality, and HIV risk disclosure among Dominican male sex workers. 
  • Strategic science for eating disorders research and policy impact. 
  • Strategies for Addressing a Broader Definition of Conflicts of Interest. 
  • Strengthening the reporting of genetic risk prediction studies (GRIPS): explanation and elaboration. 
  • Strengthening the reporting of genetic risk prediction studies (GRIPS): explanation and elaboration. 
  • Suspended judgment. Clinical trials of informed consent. 
  • The Global Spine Care Initiative: methodology, contributors, and disclosures. 
  • The Implementation of Communication Didactics for OB/GYN Residents on the Disclosure of Adverse Perioperative Events. 
  • The impact of interactive advertising on consumer engagement, recall, and understanding: A scoping systematic review for informing regulatory science. 
  • The need for a transparent, ethical, and successful relationship between academic scientists and the pharmaceutical industry: a view of the Group for the Respect of Ethics and Excellence in Science (GREES). 
  • The public's preference for bedside rationing. 
  • The role of patient-provider sexual health communication in understanding the uptake of HIV prevention services among Black men who have sex with men. 
  • The working alliance and Clinician-assisted Emotional Disclosure for rheumatoid arthritis. 
  • Three rear ends on the beach. Debating the ethics of medical advertising. 
  • Toward a harmonized and centralized conflict of interest disclosure: progress from an IOM initiative. 
  • Trust in Managed Care Organizations 
  • Trust in insurers and access to physicians: associated enrollee behaviors and changes over time. 
  • Try it, you'll like it: the influence of expectation, consumption, and revelation on preferences for beer. 
  • Using Photovoice to Understand Survivors' Healthcare Experiences and Strategies. 
  • Validation of the TAPS-1: A Four-Item Screening Tool to Identify Unhealthy Substance Use in Primary Care. 
  • Varieties of uncertainty and the validity of informed consent. 
  • Views of potential research participants on financial conflicts of interest: barriers and opportunities for effective disclosure. 
  • When a Surgical Colleague Makes an Error. 
  • When to tell and test for genetic carrier status: perspectives of adolescents and young adults from fragile X families. 
  • Would greater transparency and uniformity of health care prices benefit poor patients? 
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  Keywords of People

  • Reiter, Jerome P., Professor of Statistical Science, Nicholas Institute-Energy Initiative
  • Zafar, Syed Yousuf, Adjunct Professor in the Department of Medicine, Duke Science & Society
  • Zullig, Leah L, Professor in Population Health Sciences, Medicine, General Internal Medicine