Information Dissemination

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  Subject Areas on Research

  • A Balanced Data Archiving Policy for Long-Term Studies. 
  • A Cytometrist's Guide to Coordinating and Performing Effective COVID-19 Research. 
  • A Shared Vision for Machine Learning in Neuroscience. 
  • A kernel for the Tropical Disease Initiative. 
  • A proteogenomic survey of the Medicago truncatula genome. 
  • A randomized controlled trial of health information exchange between human immunodeficiency virus institutions. 
  • A sea of standards for omics data: sink or swim? 
  • A theoretical framework for a virtual diabetes self-management community intervention. 
  • A web-based tool to engage stakeholders in informing research planning for future decisions on emerging materials. 
  • Access to patient-level data from GlaxoSmithKline clinical trials. 
  • Affiliate network members as force amplifiers of genomic medicine research. 
  • Aligning payment reform and delivery innovation in emergency care. 
  • American Society of Clinical Oncology clinical practice guidelines: opportunities and challenges. 
  • An i2b2-based, generalizable, open source, self-scaling chronic disease registry. 
  • An informatics research agenda to support precision medicine: seven key areas. 
  • Any questions? A concise guide to navigating the Q&A session after a presentation. 
  • Application description and policy model in collaborative environment for sharing of information on epidemiological and clinical research data sets. 
  • Assessing the Effectiveness of Evidence-Based Medicine in Practice: A Case Study of First-Time Anterior Shoulder Dislocations. 
  • Association Between Public Knowledge About COVID-19, Trust in Information Sources, and Adherence to Social Distancing: Cross-Sectional Survey. 
  • Asthma dissemination around patient-centered treatments in North Carolina (ADAPT-NC): a cluster randomized control trial evaluating dissemination of an evidence-based shared decision-making intervention for asthma management. 
  • Attitudes of elderly patients and their families toward physician-assisted suicide. 
  • Benefits and Threats to Using Social Media for Presenting and Implementing Evidence. 
  • Best practices and lessons learned from reuse of 4 patient-derived metabolomics datasets in Alzheimer's disease. 
  • Beyond MRI: on the scientific value of combining non-human primate neuroimaging with metadata. 
  • Brief reports for disseminating systematic reviews to nurses. 
  • Building capacity for advances in tuberculosis research; proceedings of the third RePORT international meeting. 
  • Building evidence for practice: not without dissemination. 
  • Bumps and bridges on the road to responsible sharing of clinical trial data. 
  • COVID-19 trials: declarations of data sharing intentions at trial registration and at publication. 
  • Cancer pharmacogenomics and pharmacoepidemiology: setting a research agenda to accelerate translation. 
  • China's distinctive engagement in global health. 
  • Citation analysis of the maternal/child nursing literature. 
  • Collaboration for Alzheimer's Prevention: Principles to guide data and sample sharing in preclinical Alzheimer's disease trials. 
  • Comprehensive genomic studies: emerging regulatory, strategic, and quality assurance challenges for biorepositories. 
  • Conducting multisite research studies in nursing education: brief practice of CPR skills as an exemplar. 
  • Connecting information to improve health. 
  • Considering the Benefits and Risks of Research Participants' Access to Sequence Data. 
  • Conversion of cardiovascular conference abstracts to publications. 
  • Counteracting Health Misinformation: A Role for Medical Journals? 
  • Creating a transdisciplinary research center to reduce cardiovascular health disparities in Baltimore, Maryland: lessons learned. 
  • DATA ACCESS. Sharing by design: Data and decentralized commons. 
  • Data Harmonization for a Molecularly Driven Health System. 
  • Data Sharing From the Editors' Perspective: Our Hope With Limitations. 
  • Data Sharing and Embedded Research. 
  • Data Sharing and Reproducibility of Results-Does It Matter for HIV Nursing? 
  • Data Sharing at a Crossroads. 
  • Data sharing in the undiagnosed diseases network. 
  • Defining quality, disseminating evidence, and enforcing guidelines for cancer treatment. 
  • Disseminating trial results: We can have both faster and better. 
  • Dissemination of CPR video self-instruction materials to secondary trainees: Results from a hospital-based CPR education trial. 
  • Dissemination of Evidence-based Practice Center reports. 
  • Dissemination of evidence-based mental health interventions: importance to the trauma field. 
  • Dissemination of research in clinical nursing journals. 
  • Dissemination of research into clinical nursing literature. 
  • Does a controversial topic affect the quality of urologic information on the Internet? 
  • Early impact of guideline publication on angiotensin-receptor neprilysin inhibitor use among patients hospitalized for heart failure. 
  • Effectiveness of an intervention for disseminating Cochrane reviews to nurses. 
  • Elevator talk: observational study of inappropriate comments in a public space. 
  • Empowering genomic medicine by establishing critical sequencing result data flows: the eMERGE example. 
  • Enhancing the value of clinical trials: the role of data sharing. 
  • Evaluating common data models for use with a longitudinal community registry. 
  • Examining the Use of a Social Media Campaign to Increase Engagement for the American Heart Association 2017 Resuscitation Science Symposium. 
  • Excluding the poor from accessing biomedical literature: a rights violation that impedes global health. 
  • Exit interview-consultation for research validation and dissemination. 
  • Extending Our Reach for Greater Impact. 
  • Finding Means to Fulfill the Societal and Academic Imperative for Open Data Access and Sharing. 
  • First Responder to Genomic Information: A Guide for Primary Care Providers. 
  • Food and beverage brands that market to children and adolescents on the internet: a content analysis of branded web sites. 
  • From theory to practice: translating research into health outcomes. 
  • Graphics for dissemination of meta-analyses to staff nurses. 
  • Grey literature in meta-analyses. 
  • Grid Binary LOgistic REgression (GLORE): building shared models without sharing data. 
  • Grid multi-category response logistic models. 
  • HIPAA and the Leak of "Deidentified" EHR Data. 
  • HRS White Paper on interoperability of data from cardiac implantable electronic devices (CIEDs). 
  • Hat, shade, long sleeves, or sunscreen? Rethinking US sun protection messages based on their relative effectiveness. 
  • Health data use, stewardship, and governance: ongoing gaps and challenges: a report from AMIA's 2012 Health Policy Meeting. 
  • Heart Failure Fake News: How Do We Distinguish the Truth? 
  • How academic physicians can benefit from social media. 
  • How do doctors use information in real-time? A qualitative study of internal medicine resident precepting. 
  • How informatics can potentiate precompetitive open-source collaboration to jump-start drug discovery and development. 
  • IAEA experience in communicating radiation risks through the RPOP website. 
  • Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons 
  • Improving Clinical Outcomes in the Era of Information Ubiquity. 
  • Improving Medication Adherence in Cardiometabolic Disease: Practical and Regulatory Implications. 
  • Individual Patient Data from the Pivotal Randomized Controlled Trials of Non-Vitamin K Antagonist Oral Anticoagulants in Patients with Atrial Fibrillation (COMBINE AF): Design and Rationale: From the COMBINE AF (A Collaboration between Multiple institutions to Better Investigate Non-vitamin K antagonist oral anticoagulant use in Atrial Fibrillation) Investigators. 
  • Influence of the Angioplasty Revascularization Investigation National Heart, Lung, and Blood Institute Diabetic Clinical Alert on practice patterns: results from the National Cardiovascular Network Database. 
  • Infobuttons and classification models: a method for the automatic selection of on-line information resources to fulfill clinicians' information needs. 
  • Information exchange and decision making in the treatment of Latina and white women with ductal carcinoma in situ. 
  • Information sources for developing the nursing literature. 
  • Informed Consent for Electroconvulsive Therapy--Finding Balance. 
  • Integrating technology into palliative care research. 
  • Internet food marketing strategies aimed at children and adolescents: a content analysis of food and beverage brand web sites. 
  • Introducing the Medical Physics Dataset Article. 
  • Issues affecting minority participation in research studies of Alzheimer disease. 
  • Knowledge translation of the American College of Emergency Physicians clinical policy on hypertension. 
  • LabKey Server NAb: a tool for analyzing, visualizing and sharing results from neutralizing antibody assays. 
  • Large-scale evaluation of automated clinical note de-identification and its impact on information extraction. 
  • Leveraging electronic health records for clinical research. 
  • Living laboratory: whole-genome sequencing as a learning healthcare enterprise. 
  • Looking back and moving forward. 
  • Managing the risks of therapeutic products: proceedings of a workshop. 
  • Measuring health care performance now, not tomorrow: essential steps to support effective health reform. 
  • Medicare data transparency may confuse consumers comparing hospitals for total joint arthroplasty. 
  • Medicare part D information seeking: the role of recognition of need and patient activation. 
  • Metabolomics Standards Workshop and the development of international standards for reporting metabolomics experimental results. 
  • Missed diagnoses: Clinically relevant lessons learned through medical mysteries solved by the Undiagnosed Diseases Network. 
  • Monitoring the world's agriculture. 
  • NIH MICAD initiative and guest author program opportunities. 
  • NSF workshop report: discovering general principles of nervous system organization by comparing brain maps across species. 
  • New Thinking About Thinking, Part 3. Advice on preparing a successful manuscript for Alzheimer's & Dementia. 
  • Newspaper coverage of maternal health in Bangladesh, Rwanda and South Africa: a quantitative and qualitative content analysis. 
  • Online Social Media as a Curation Tool for Teaching. 
  • Open Access Platforms for Sharing Clinical Trial Data--Reply. 
  • Open Science to Address COVID-19: Sharing Data to Make Our Research Investment Go Further. 
  • Open access publishing: a disruptive innovation. 
  • Open science: The open clinical trials data journey. 
  • Opportunities for selective reporting of harms in randomized clinical trials: Selection criteria for non-systematic adverse events. 
  • Overview of electronic data sharing: why, how, and impact. 
  • PEDSnet: a National Pediatric Learning Health System. 
  • Pan-cancer analysis of whole genomes. 
  • Partnership-driven Resources to Improve and Enhance Research (PRIMER): a survey of community-engaged researchers and creation of an online toolkit. 
  • Patient perspectives on the linkage of health data for research: Insights from an online patient community questionnaire. 
  • Pediatric urology and the internet--does an uncommon topic decrease content quality? 
  • Peer review: evolution or revolution? 
  • Pragmatic clinical trials offer unique opportunities for disseminating, implementing, and sustaining evidence-based practices into clinical care: Proceedings of a workshop. 
  • Precision Medicine: From Science To Value. 
  • Presenting research to clinicians: strategies for writing about research findings. 
  • Principal/agent theory and decision making in health care. 
  • Priorities for autism spectrum disorder risk communication and ethics. 
  • Promises and pitfalls of data sharing in qualitative research. 
  • Protecting human security: proposals for the G7 Ise-Shima Summit in Japan. 
  • Public disclosure of clinical research. 
  • Public perspectives regarding data-sharing practices in genomics research. 
  • Publication Rates of Heart Failure Clinical Trials Remain Low. 
  • Qualitative analysis of Web-based refractive surgery information sessions. 
  • Radiation effects and risks: overview and a new risk perception index. 
  • Real-World Data: Policy Issues Regarding their Access and Use. 
  • Realizing the Full Potential of Precision Medicine in Health and Health Care. 
  • Recommendations for minimum information for publication of experimental pathology data: MINPEPA guidelines. 
  • Recommendations from the international stroke genetics consortium, part 2: biological sample collection and storage. 
  • Recruitment of rural and cognitively impaired older adults for dental research. 
  • Reproducible research in medical imaging. 
  • Research use of electronic health records: patients' perspectives on contact by researchers. 
  • Response to Watson R (2011) Commentary on Oermann MH, Shaw-Kokot J, Knafl GJ & Dowell J (2010) Dissemination of research into clinical nursing literature. Journal of Clinical Nursing 19, 3435-3442. Journal of Clinical Nursing 20, 595-596. 
  • Response to letters to the editor concerning AJPA commentary on "data sharing in biological anthropology: Guiding principles and best practices". 
  • Return of Research Results to Study Participants: Uncharted and Untested. 
  • Role of the centers for education and research on therapeutics (CERTs) in pharmacovigilance and proper use of therapeutics. 
  • SQUIRE Guidelines for reporting improvement studies in healthcare: implications for nursing publications. 
  • Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS): architecture. 
  • Scalable Open Science Approach for Mutation Calling of Tumor Exomes Using Multiple Genomic Pipelines. 
  • Seamless care: what is it; what is its value; what does it require; when might we get it? 
  • Shared Electronic Health Record Systems: Key Legal and Security Challenges. 
  • Sharing Antimicrobial Reports for Pediatric Stewardship (SHARPS): A Quality Improvement Collaborative. 
  • Sharing Data from Cardiovascular Clinical Trials--A Proposal. 
  • Sharing Data to Accelerate Medicine Development and Improve Neonatal Care: Data Standards and Harmonized Definitions. 
  • Sharing adverse drug event data using business intelligence technology. 
  • Sharing confidential data for research purposes: a primer. 
  • Sharing your work: building knowledge about nursing care quality. 
  • Social networking and understanding alcohol-associated risk for people with type 1 diabetes: friend or foe? 
  • Social work competencies in palliative and end-of-life care. 
  • Start me up: ways to encourage sharing of genomic information with research participants. 
  • Statistical controversies in clinical research: data access and sharing-can we be more transparent about clinical research? Let's do what's right for patients. 
  • Stewards of the discipline: The role of referees and peer review. 
  • Symptom prevalence and physiologic biomarkers among adolescents using a mobile phone intervention following hematopoietic stem cell transplantation. 
  • Ten Simple Rules for Effective Statistical Practice. 
  • The 2013 US Government Shutdown (#Shutdown) and health: an emerging role for social media. 
  • The Clinical Trials Transformation Initiative: Methodology supporting the mission. 
  • The ClinicalTrials.gov results database--update and key issues. 
  • The College of American Pathologists Biorepository Accreditation Program: Results from the First 5 Years. 
  • The ENCODE (ENCyclopedia Of DNA Elements) Project. 
  • The Firegoose: two-way integration of diverse data from different bioinformatics web resources with desktop applications. 
  • The Function Biomedical Informatics Research Network Data Repository. 
  • The Genomics Research and Innovation Network: creating an interoperable, federated, genomics learning system. 
  • The Nanomaterial Registry: facilitating the sharing and analysis of data in the diverse nanomaterial community 
  • The National COVID Cohort Collaborative (N3C): Rationale, design, infrastructure, and deployment. 
  • The RNA Ontology Consortium: an open invitation to the RNA community. 
  • The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop. 
  • The Society of Thoracic Surgeons voluntary public reporting initiative: the first 4 years. 
  • The US Food and Drug Administration and the Future of Cardiovascular Medicine. 
  • The attention economy and the EMBS. 
  • The autism brain imaging data exchange: towards a large-scale evaluation of the intrinsic brain architecture in autism. 
  • The cancer translational research informatics platform. 
  • The delivery of public health interventions via the Internet: actualizing their potential. 
  • The effect of giving global coronary risk information to adults: a systematic review. 
  • The effectors of innate immunity: DAMPs, DAMEs, or DIMEs? 
  • The national drug abuse treatment clinical trials network data share project: website design, usage, challenges, and future directions. 
  • The use of technology for urgent clinician to clinician communications: a systematic review of the literature. 
  • Time for NIH to lead on data sharing. 
  • Towards ubiquitous peer review strategies to sustain and enhance a clinical knowledge management framework. 
  • Transmissibility of the Ice Bucket Challenge among globally influential celebrities: retrospective cohort study. 
  • Transparency and reproducibility in evolutionary research. 
  • Transparent sharing of digital health data: A call to action. 
  • Traveling the Interstices of Data Sharing. 
  • Turning Data Into Information: Opportunities to Advance Rehabilitation Quality, Research, and Policy. 
  • Tweeting the meeting: an in-depth analysis of Twitter activity at Kidney Week 2011. 
  • Updated standardized endpoint definitions for transcatheter aortic valve implantation: the Valve Academic Research Consortium-2 consensus document. 
  • Upgrading a Social Media Strategy to Increase Twitter Engagement During the Spring Annual Meeting of the American Society of Regional Anesthesia and Pain Medicine. 
  • Use of Open Access Platforms for Clinical Trial Data. 
  • Use of email in a family practice setting: opportunities and challenges in patient- and physician-initiated communication. 
  • Use of the Internet for health information by the chronically ill. 
  • Ushering in a new and exciting era of online sources in physiotherapy. 
  • Using Telehealth to Disseminate Primary, Secondary, and Tertiary CVD Interventions to Rural Populations. 
  • Using social media to create a professional network between physician-trainees and the American Society of Nephrology. 
  • Video Abstracts: A Fun, Easy Way to Capture Your Audience: Try it! 
  • Waxholm Space atlas of the Sprague Dawley rat brain. 
  • WebDISCO: a web service for distributed cox model learning without patient-level data sharing. 
  • WebGLORE: a web service for Grid LOgistic REgression. 
  • What Medical Informaticians Do With and Think About an International Medical Informatics Listserv: Member Survey Preliminary Findings. 
  • Who Will Drive the Change? Democratizing Health Data. 
  • Who owns the genome? 
  • iCONCUR: Informed consent for clinical data and bio-sample use for research 
  • iDASH: Integrating data for analysis, anonymization, and sharing 
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  Keywords of People

  • Anderson, Ruth A., Professor Emerita in the School of Nursing, School of Nursing
  • Johnson, G. Allan, Charles E. Putman University Distinguished Professor of Radiology, Biomedical Engineering
  • LeBlanc, Thomas William, Associate Professor of Medicine, Duke Cancer Institute
  • Reiter, Jerome P., Professor of Statistical Science, Nicholas Institute-Energy Initiative
  • Sullivan, Daniel Carl, Professor Emeritus of Radiology, Radiology
  • West, Vivian L, Clinical Associate in the School of Nursing, School of Nursing