A167: variations in patterns of care across pediatric rheumatic diseases in the childhood arthritis & rheumatology alliance network registry.

Journal Article

In 2009, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) established a longitudinal multi-center, multiple disease U.S. national registry (CARRA Registry) for pediatric rheumatology with the intent of providing a new framework to drive observational clinical research and best practices, evidence-based care. Simultaneously, recognizing that widely variable therapeutic approaches hinder the ability to conduct meaningful comparative effectiveness studies and pragmatic trials in pediatric rheumatic diseases, CARRA investigators convened expert groups to formulate new consensus-based treatment plans (CTPs) in 5 major pediatric rheumatic disease areas. As the CTP approaches are adopted, it is important to establish baseline treatment variability across pediatric rheumatic diseases and clinical sites in the CARRA network. Using longitudinal data from the CARRA Registry, we provide a first description of variability of care across the network.

Full Text

Duke Authors

Cited Authors

  • Natter, MD; Ong, MS; Ilowite, NT; Mandl, KD; Mieszkalski, KL; Sandborg, CI; Wallace, C; Schanberg, LE; CARRA Registry Investigators,

Published Date

  • March 2014

Published In

Volume / Issue

  • 66 Suppl 11 /

Start / End Page

  • S215 - S216

PubMed ID

  • 24677923

Pubmed Central ID

  • 24677923

Electronic International Standard Serial Number (EISSN)

  • 2326-5205

Digital Object Identifier (DOI)

  • 10.1002/art.38593

Language

  • eng

Conference Location

  • United States