A134: Validation of Patient Reported Outomes Measurement Information System Modules for use in Childhood-;onset Lupus.

Journal Article

Childhood-onset lupus (cSLE) is a chronic autoimmune disease and its effect on health-related quality of life (HRQoL) has not been systematically established. The Patient Reported Outcomes Measurement Information System (PROMIS™, http://nihpromis.org) is a publicly available system to measure patient reported outcomes that features electronic data collection. Although several validated legacy QoL measures exist for cSLE, each is longer than the PROMIS™ Pediatric Short Forms (Short Forms). The objective of this study was to investigate the feasibility, construct and discriminant validity of the Short Forms in cSLE in a clinical setting.

Full Text

Duke Authors

Cited Authors

  • Jones, JT; Nelson, SL; Wootton, J; Ying, J; Liberio, B; Greenler, AJ; Wiley, K; Lee, J; Huggins, JL; Schanberg, LE; Hermine, B

Published Date

  • March 2014

Published In

Volume / Issue

  • 66 Suppl 11 /

Start / End Page

  • S176 - S177

PubMed ID

  • 24677888

Pubmed Central ID

  • 24677888

Electronic International Standard Serial Number (EISSN)

  • 2326-5205

Digital Object Identifier (DOI)

  • 10.1002/art.38555

Language

  • eng

Conference Location

  • United States