Childrens' and adolescents' use of diaries for sickle cell pain.

Journal Article (Journal Article)

Issues and purpose

To evaluate the characteristics of vaso-occlusive episodes, home management of pain and its impact on the daily activities, and a diary as a method of data collection.

Design and methods

Forty-six adolescents and 75 children were asked to complete daily diaries during the intervention period of a larger study.


Mild pain was recorded 95% of the time; moderate pain, 3%; and severe pain, 1%. The pattern and location of pain varied greatly. Adolescents used more interventions than did children. When pain intensity was mild, 80% of the children/adolescents maintained school, social, and home activities, but decreased play/sport activities. When pain intensity was high, they decreased their participation in all activities.

Practice implications

Sickle cell pain episodes are unpredictable and highly variable. Diaries can enhance children's and adolescents' documentation and communication about their pain experiences.

Full Text

Duke Authors

Cited Authors

  • Maikler, VE; Broome, ME; Bailey, P; Lea, G

Published Date

  • October 1, 2001

Published In

Volume / Issue

  • 6 / 4

Start / End Page

  • 161 - 169

PubMed ID

  • 11777329

International Standard Serial Number (ISSN)

  • 1088-145X

Digital Object Identifier (DOI)

  • 10.1111/j.1744-6155.2001.tb00240.x


  • eng