Childrens' and adolescents' use of diaries for sickle cell pain

Journal Article

ISSUES AND PURPOSE: To evaluate the characteristics of vaso-occlusive episodes, home management of pain and its impact on the daily activities, and a diary as a method of data collection. DESIGN AND METHODS: Forty-six adolescents and 75 children were asked to complete daily diaries during the intervention period of a larger study. RESULTS: Mild pain was recorded 95% of the time; moderate pain, 3%; and severe pain, 1%. The pattern and location of pain varied greatly. Adolescents used more interventions than did children. When pain intensity was mild, 80% of the children/adolescents maintained school, social, and home activities, but decreased play/sport activities. When pain intensity was high, they decreased their participation in all activities. PRACTICE IMPLICATIONS: Sickle cell pain episodes are unpredictable and highly variable. Diaries can enhance children's and adolescents' documentation and communication about their pain experiences.

Duke Authors

Cited Authors

  • Maikler, VE; Broome, ME; Bailey, P; Lea, G

Published Date

  • 2001

Published In

Volume / Issue

  • 6 /

Start / End Page

  • 161 - 169

PubMed ID

  • 11777329

International Standard Serial Number (ISSN)

  • 1088-145X