Family patterns of decision-making in pediatric clinical trials

Journal Article

The decision-making process related to a child's participation in clinical trials often involves multiple family members. The aim of this study was to compare family patterns of decision-making within and across family units in pediatric clinical trials. Participants for this secondary analysis included 14 families from a larger study of informed consent. Four distinct patterns of decision-making were identified: Exclusionary, informative, collaborative, and delegated. These patterns varied with regard to three dimensions of parents' decision-making goals, child level of involvement, and the parental role. These patterns of decision-making affect how parents and children communicate with health professionals and influence the effectiveness of health care providers interactions with the family related to the decision-making process.

Full Text

Duke Authors

Cited Authors

  • Snethen, JA; Broome, ME; Knafl, K; Deatrick, JA; Angst, DB

Published Date

  • 2006

Published In

Volume / Issue

  • 29 /

Start / End Page

  • 223 - 232

PubMed ID

  • 16676342

International Standard Serial Number (ISSN)

  • 0160-6891

Digital Object Identifier (DOI)

  • 10.1002/nur.20130