Family patterns of decision-making in pediatric clinical trials
Journal Article
The decision-making process related to a child's participation in clinical trials often involves multiple family members. The aim of this study was to compare family patterns of decision-making within and across family units in pediatric clinical trials. Participants for this secondary analysis included 14 families from a larger study of informed consent. Four distinct patterns of decision-making were identified: Exclusionary, informative, collaborative, and delegated. These patterns varied with regard to three dimensions of parents' decision-making goals, child level of involvement, and the parental role. These patterns of decision-making affect how parents and children communicate with health professionals and influence the effectiveness of health care providers interactions with the family related to the decision-making process.
Full Text
Duke Authors
Cited Authors
- Snethen, JA; Broome, ME; Knafl, K; Deatrick, JA; Angst, DB
Published Date
- 2006
Published In
Volume / Issue
- 29 /
Start / End Page
- 223 - 232
PubMed ID
- 16676342
International Standard Serial Number (ISSN)
- 0160-6891
Digital Object Identifier (DOI)
- 10.1002/nur.20130