Use of patient registries and administrative datasets for the study of pediatric cancer.

Journal Article (Journal Article;Review)

Analysis of data from large administrative databases and patient registries is increasingly being used to study childhood cancer care, although the value of these data sources remains unclear to many clinicians. Interpretation of large databases requires a thorough understanding of how the dataset was designed, how data were collected, and how to assess data quality. This review will detail the role of administrative databases and registry databases for the study of childhood cancer, tools to maximize information from these datasets, and recommendations to improve the use of these databases for the study of pediatric oncology.

Full Text

Duke Authors

Cited Authors

  • Rice, HE; Englum, BR; Gulack, BC; Adibe, OO; Tracy, ET; Kreissman, SG; Routh, JC

Published Date

  • September 2015

Published In

Volume / Issue

  • 62 / 9

Start / End Page

  • 1495 - 1500

PubMed ID

  • 25807938

Pubmed Central ID

  • PMC4515152

Electronic International Standard Serial Number (EISSN)

  • 1545-5017

Digital Object Identifier (DOI)

  • 10.1002/pbc.25506


  • eng

Conference Location

  • United States