Building bridges between researchers and patient research partners: A report from the grappa 2014 annual meeting

Published

Journal Article

Copyright © 2015. All rights reserved. for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) recently engaged patients as collaborative partners in psoriatic arthritis (PsA) research. We summarize Building Bridges, a session held at the GRAPPA 2014 annual meeting, where interactive dialogue was encouraged between all participants regarding GRAPPA's vision for patient research partner (PRP) involvement, including the mutual understanding of the roles and responsibilities of PRP and researchers in GRAPPA's working groups, meetings, and governance arrangements. We conclude that involving PRP in GRAPPA projects is pivotal to optimizing incorporation of the patient perspective in psoriasis and PsA research.

Full Text

Duke Authors

Cited Authors

  • De Wit, M; Campbell, W; Orbai, AM; Tillett, W; Fitzgerald, O; Gladman, DD; Lindsay, CA; McHugh, NJ; Mease, PJ; O'Sullivan, D; Steinkoenig, I; Windisch, G; Goel, N

Published Date

  • January 1, 2015

Published In

Volume / Issue

  • 42 / 6

Start / End Page

  • 1021 - 1026

Electronic International Standard Serial Number (EISSN)

  • 1499-2752

International Standard Serial Number (ISSN)

  • 0315-162X

Digital Object Identifier (DOI)

  • 10.3899/jrheum.150123

Citation Source

  • Scopus