Practices and perspectives on building integrated data repositories: results from a 2010 CTSA survey.

Journal Article (Journal Article)

Clinical integrated data repositories (IDRs) are poised to become a foundational element of biomedical and translational research by providing the coordinated data sources necessary to conduct retrospective analytic research and to identify and recruit prospective research subjects. The Clinical and Translational Science Award (CTSA) consortium's Informatics IDR Group conducted a survey of 2010 consortium members to evaluate recent trends in IDR implementation and use to support research between 2008 and 2010. A web-based survey based in part on a prior 2008 survey was developed and deployed to 46 national CTSA centers. A total of 35 separate organizations completed the survey (74%), representing 28 CTSAs and the National Institutes of Health Clinical Center. Survey results suggest that individual organizations are progressing in their approaches to the development, management, and use of IDRs as a means to support a broad array of research. We describe the major trends and emerging practices below.

Full Text

Duke Authors

Cited Authors

  • MacKenzie, SL; Wyatt, MC; Schuff, R; Tenenbaum, JD; Anderson, N

Published Date

  • June 2012

Published In

Volume / Issue

  • 19 / e1

Start / End Page

  • e119 - e124

PubMed ID

  • 22437072

Pubmed Central ID

  • PMC3392848

Electronic International Standard Serial Number (EISSN)

  • 1527-974X

Digital Object Identifier (DOI)

  • 10.1136/amiajnl-2011-000508


  • eng

Conference Location

  • England