The period of untreated psychosis before treatment initiation: a qualitative study of family members' perspectives.

Journal Article (Journal Article)

AIM: This study used a qualitative research methodology to explore common themes pertaining to the period of untreated psychosis before treatment initiation in hospitalized, urban, African American, first-episode psychosis patients. METHODS: Twelve family members of 10 patients were interviewed at length to gather detailed narrative accounts of factors related to untreated psychosis and treatment delay. Using qualitative analysis, verbatim transcripts were reviewed by 2 researchers to identify prominent themes useful for generating future research hypotheses. RESULTS: Four themes emerged as informative of the period of untreated psychosis before treatment initiation: (1) misattribution of symptoms or problem behaviors (eg, depression, drug use, and adolescent rebellion), (2) positive symptoms causing unusual or dangerous behaviors that served as a catalyst for initiating treatment, (3) views about personal autonomy of an adult or nearly adult patient, and (4) system-level factors (eg, unaffordability of health care and inefficiency on the part of health care providers). CONCLUSIONS: Family members encountered numerous barriers when seeking treatment, including their own misattributions, the nature of the patient's symptoms, financial issues, and system-level delays. The themes uncovered in this formative analysis merit further exploration with additional qualitative and quantitative research.

Full Text

Duke Authors

Cited Authors

  • Bergner, E; Leiner, AS; Carter, T; Franz, L; Thompson, NJ; Compton, MT

Published Date

  • 2008

Published In

Volume / Issue

  • 49 / 6

Start / End Page

  • 530 - 536

PubMed ID

  • 18970900

Pubmed Central ID

  • PMC2610676

Electronic International Standard Serial Number (EISSN)

  • 1532-8384

Digital Object Identifier (DOI)

  • 10.1016/j.comppsych.2008.02.010


  • eng

Conference Location

  • United States