Patient/Family Education for Newly Diagnosed Pediatric Oncology Patients.

Published

Journal Article

There is a paucity of data to support evidence-based practices in the provision of patient/family education in the context of a new childhood cancer diagnosis. Since the majority of children with cancer are treated on pediatric oncology clinical trials, lack of effective patient/family education has the potential to negatively affect both patient and clinical trial outcomes. The Children's Oncology Group Nursing Discipline convened an interprofessional expert panel from within and beyond pediatric oncology to review available and emerging evidence and develop expert consensus recommendations regarding harmonization of patient/family education practices for newly diagnosed pediatric oncology patients across institutions. Five broad principles, with associated recommendations, were identified by the panel, including recognition that (1) in pediatric oncology, patient/family education is family-centered; (2) a diagnosis of childhood cancer is overwhelming and the family needs time to process the diagnosis and develop a plan for managing ongoing life demands before they can successfully learn to care for the child; (3) patient/family education should be an interprofessional endeavor with 3 key areas of focus: (a) diagnosis/treatment, (b) psychosocial coping, and (c) care of the child; (4) patient/family education should occur across the continuum of care; and (5) a supportive environment is necessary to optimize learning. Dissemination and implementation of these recommendations will set the stage for future studies that aim to develop evidence to inform best practices, and ultimately to establish the standard of care for effective patient/family education in pediatric oncology.

Full Text

Duke Authors

Cited Authors

  • Landier, W; Ahern, J; Barakat, LP; Bhatia, S; Bingen, KM; Bondurant, PG; Cohn, SL; Dobrozsi, SK; Haugen, M; Herring, RA; Hooke, MC; Martin, M; Murphy, K; Newman, AR; Rodgers, CC; Ruccione, KS; Sullivan, J; Weiss, M; Withycombe, J; Yasui, L; Hockenberry, M

Published Date

  • November 2016

Published In

Volume / Issue

  • 33 / 6

Start / End Page

  • 422 - 431

PubMed ID

  • 27385664

Pubmed Central ID

  • 27385664

Electronic International Standard Serial Number (EISSN)

  • 1532-8457

International Standard Serial Number (ISSN)

  • 1043-4542

Digital Object Identifier (DOI)

  • 10.1177/1043454216655983

Language

  • eng