Republished article: The impact of diabetic retinopathy: Understanding the patient's perspective

Journal Article (Journal Article)

Understanding the impact of a condition from the patient's perspective is important, and different types of patient-reported outcomes or instruments are available to help with this. This review article summarizes the current evidence on the impact of diabetic retinopathy (DR) and its associated vision impairment on patient-reported outcomes. We have included research that has used a range of outcome measures to assess the impact of DR on generic health-related quality of life, utility, vision-functioning and vision-specific quality of life. This review also offers clarification on frequently misused psychometric terminologies to help clinicians and researchers better understand the literature associated with patient-reported outcome research. Overall, the evidence suggests that DR, particularly in its vision-threatening stages, has a substantial, negative impact on the patient. However, our understanding of the impact of DR is currently restricted due to limitations inherent in currently available patient-reported outcome measures. We conclude by discussing potential directions for future research in this area, such as item banking and computer adaptive testing.

Full Text

Duke Authors

Cited Authors

  • Fenwick, EK; Pesudovs, K; Rees, G; Dirani, M; Wong, TY; Lamoureux, EL

Published Date

  • February 23, 2012

Published In

Volume / Issue

  • 88 / 1037

Start / End Page

  • 167 - 175

Electronic International Standard Serial Number (EISSN)

  • 1469-0756

International Standard Serial Number (ISSN)

  • 0032-5473

Digital Object Identifier (DOI)

  • 10.1136/pgmj.2010.191312rep

Citation Source

  • Scopus