Why Patients With Glaucoma Lose Vision: The Patient Perspective.


Journal Article

PURPOSE: To explore why glaucoma patients believe that glaucoma continues to cause vision loss despite the availability of effective treatment. METHODS: Nine focus groups were conducted in 3 geographically and ethnically diverse areas of the United States (Los Angeles, CA; Rochester, MN; Durham, NC) that included 56 participants, 31 with poor vision and 25 with good vision. Content analysis was used to identify important themes. Semiquantitative analysis was used to measure the frequency of each theme. RESULTS: A total of 474 relevant comments were made in the 9 focus groups. Focus groups elicited 305 comments about barriers to glaucoma management including issues with adherence (30%), the doctor-patient relationship (21%), knowledge about glaucoma (19%), personal support systems (19%), and barriers to health care delivery such as cost and insurance (11%). A total of 101 comments were made regarding feelings about glaucoma and 58 comments were made regarding beliefs about disease and treatment. CONCLUSIONS: These focus groups brought up many issues surrounding barriers to glaucoma treatment, perceived susceptibility to glaucoma, perceived benefits to treatment, and the emotional response to living with glaucoma. There is a need to create a more comprehensive chronic disease management approach for patients with glaucoma to address both the concrete and emotional issues identified in these focus group discussions.

Full Text

Duke Authors

Cited Authors

  • Newman-Casey, PA; Shtein, RM; Coleman, AL; Herndon, L; Lee, PP

Published Date

  • July 2016

Published In

Volume / Issue

  • 25 / 7

Start / End Page

  • e668 - e675

PubMed ID

  • 26317482

Pubmed Central ID

  • 26317482

Electronic International Standard Serial Number (EISSN)

  • 1536-481X

Digital Object Identifier (DOI)

  • 10.1097/IJG.0000000000000320


  • eng

Conference Location

  • United States