Identifying Social Determinants of Health and Legal Needs for Children With Special Health Care Needs.

Journal Article (Journal Article)

Children with special health care needs (CSHCN) require comprehensive care with high levels of community and government assistance. Medical-legal partnerships may be particularly suited to address needs for this population. To explore this, we conducted in-depth telephone interviews of families of CSHCN cared for in the primary care practice of our tertiary care children's hospital. The majority of the sample (N = 46) had been late on housing payments and 17% of homeowners had been threatened with foreclosure. Families frequently reported denial of public benefits. Approximately 10% had executed advance planning documents such as guardianship plans for the children or wills for the parents. A minority of families had sought help from community agencies or lawyers. Less than one third had ever discussed any of the issues with health care providers, but two thirds were likely or very likely to in the future. CSHCN may especially benefit from the social support of a medical-legal partnership.

Full Text

Duke Authors

Cited Authors

  • DeJong, NA; Wood, CT; Morreale, MC; Ellis, C; Davis, D; Fernandez, J; Steiner, MJ

Published Date

  • March 2016

Published In

Volume / Issue

  • 55 / 3

Start / End Page

  • 272 - 277

PubMed ID

  • 26130392

Electronic International Standard Serial Number (EISSN)

  • 1938-2707

Digital Object Identifier (DOI)

  • 10.1177/0009922815591959


  • eng

Conference Location

  • United States