Educating Families of Children Newly Diagnosed With Cancer.
Published
Journal Article
Parents/caregivers require specialized education in order to care for their child with a newly diagnosed cancer. Currently, no evidence-based guidelines exist to identify content essential for inclusion in patient/family education prior to a child's initial discharge home; this study used Delphi methodology to obtain multidisciplinary consensus regarding essential content amongst pediatric oncology experts from the Children's Oncology Group. Three questionnaire rounds were employed to identify essential content, evaluate the importance of the educational topics identified, and gain expert consensus regarding the final ranking of topics identified and whether or not each topic was considered mandatory for inclusion in education for newly diagnosed patients. Disease-specific topics were also identified for patients with leukemia, solid tumors, and central nervous system tumors. The results of this study provide, for the first time, multidisciplinary expert consensus regarding key content essential for inclusion in discharge education for newly diagnosed pediatric oncology patients.
Full Text
Duke Authors
Cited Authors
- Haugen, MS; Landier, W; Mandrell, BN; Sullivan, J; Schwartz, C; Skeens, MA; Hockenberry, M
Published Date
- November 2016
Published In
Volume / Issue
- 33 / 6
Start / End Page
- 405 - 413
PubMed ID
- 27268501
Pubmed Central ID
- 27268501
Electronic International Standard Serial Number (EISSN)
- 1532-8457
International Standard Serial Number (ISSN)
- 1043-4542
Digital Object Identifier (DOI)
- 10.1177/1043454216652856
Language
- eng