Connecting with healthcare providers at diagnosis: adolescent/young adult cancer survivors' perspectives.
Journal Article (Journal Article)
Adolescents and young adults (AYAs) with cancer are a vulnerable and underserved population. AYAs' cancer survivorship is complicated by physical and psychosocial late effects which requires long-term follow-up. Connectedness with healthcare providers (HCPs) is a protective factor that may improve long-term follow-up behaviours of AYAs. However, little is known about AYAs' experiences connecting with HCPs. The purpose of this study was to describe AYA cancer survivors' experiences connecting with HCPs. This empirical phenomenological study interviewed nine AYA cancer survivors diagnosed during adolescence. Individual interviews were conducted and analysed using an adapted Colaizzi approach. The essential structure reveals that AYAs begin their experience of connectedness with a sense of disconnectedness prior to treatment. The diagnosis is a period of confusion and emotional turmoil that interfere with the AYAs' ability to connect. When AYAs come to accept their illness and gain familiarity with the environment, they then put forth an effort to connect with HCPs. Although it takes time for AYAs to reciprocate efforts to connect, HCPs should be aware that AYAs carefully assess and make judgments about whether or not HCPs can be trusted. Findings raise awareness of the actions and behaviours of HCPs that hinder connectedness, and targeted in future research.
Full Text
Duke Authors
Cited Authors
- Phillips, CR; Haase, JE; Broome, ME; Carpenter, JS; Frankel, RM
Published Date
- December 2017
Published In
Volume / Issue
- 12 / 1
Start / End Page
- 1325699 -
PubMed ID
- 28617094
Pubmed Central ID
- PMC5510205
Electronic International Standard Serial Number (EISSN)
- 1748-2631
International Standard Serial Number (ISSN)
- 1748-2623
Digital Object Identifier (DOI)
- 10.1080/17482631.2017.1325699
Language
- eng