Attitudes toward participation in a pregnancy and child cohort study.

Journal Article (Journal Article)

While epidemiological studies aim for high participation rates, it is becoming increasingly difficult to recruit and retain participants in lengthy observational studies. We surveyed women who recently participated in the Pregnancy, Infection, and Nutrition Study during their pregnancy to learn more about what initially motivated them to participate in the study, their attitudes about the study protocol, and whether they would allow their child to participate in future studies. Most women were motivated by their interest in science and learning about their pregnancy. In general, women felt quite comfortable with most aspects of the study. Consent forms, telephone interviews and self-administered questionnaires were the most acceptable components of the study, but even specimen collection was well tolerated by this cohort. Women were less comfortable with the possibility of their child participating in future research. This survey confirmed that once women are enrolled, they tend to be willing to complete most components of an intensive study, suggesting that initial efforts for recruitment are most important.

Full Text

Duke Authors

Cited Authors

  • Daniels, JL; Savitz, DA; Bradley, C; Dole, N; Evenson, KR; Eucker, B; Herring, AH; Siega-Riz, AM; Thorp, JM

Published Date

  • May 2006

Published In

Volume / Issue

  • 20 / 3

Start / End Page

  • 260 - 266

PubMed ID

  • 16629701

Electronic International Standard Serial Number (EISSN)

  • 1365-3016

International Standard Serial Number (ISSN)

  • 0269-5022

Digital Object Identifier (DOI)

  • 10.1111/j.1365-3016.2006.00720.x


  • eng