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Remotely engaged: Lessons from remote monitoring in multiple sclerosis.

Publication ,  Journal Article
Engelhard, MM; Patek, SD; Sheridan, K; Lach, JC; Goldman, MD
Published in: Int J Med Inform
April 2017

OBJECTIVES: Evaluate web-based patient-reported outcome (wbPRO) collection in MS subjects in terms of feasibility, reliability, adherence, and subject-perceived benefits; and quantify the impact of MS-related symptoms on perceived well-being. METHODS: Thirty-one subjects with MS completed wbPROs targeting MS-related symptoms over six months using a customized web portal. Demographics and clinical outcomes were collected in person at baseline and six months. RESULTS: Approximately 87% of subjects completed wbPROs without assistance, and wbPROs strongly correlated with standard PROs (r>0.91). All wbPROs were completed less frequently in the second three months (p<0.05). Frequent wbPRO completion was significantly correlated with higher step on the Expanded Disability Status Scale (EDSS) (p=0.026). Nearly 52% of subjects reported improved understanding of their disease, and approximately 16% wanted individualized wbPRO content. Over half (63.9%) of perceived well-being variance was explained by MS symptoms, notably depression (rs=-0.459), fatigue (rs=-0.390), and pain (rs=-0.389). CONCLUSIONS: wbPRO collection was feasible and reliable. More disabled subjects had higher completion rates, yet most subjects failed requirements in the second three months. Remote monitoring has potential to improve patient-centered care and communication between patient and provider, but tailored PRO content and other innovations are needed to combat declining adherence.

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Published In

Int J Med Inform

DOI

EISSN

1872-8243

Publication Date

April 2017

Volume

100

Start / End Page

26 / 31

Location

Ireland

Related Subject Headings

  • Telemedicine
  • Reproducibility of Results
  • Remote Consultation
  • Patient-Centered Care
  • Multiple Sclerosis
  • Monitoring, Physiologic
  • Middle Aged
  • Medical Informatics
  • Male
  • Internet
 

Citation

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MLA
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Engelhard, M. M., Patek, S. D., Sheridan, K., Lach, J. C., & Goldman, M. D. (2017). Remotely engaged: Lessons from remote monitoring in multiple sclerosis. Int J Med Inform, 100, 26–31. https://doi.org/10.1016/j.ijmedinf.2017.01.006
Engelhard, Matthew M., Stephen D. Patek, Kristina Sheridan, John C. Lach, and Myla D. Goldman. “Remotely engaged: Lessons from remote monitoring in multiple sclerosis.Int J Med Inform 100 (April 2017): 26–31. https://doi.org/10.1016/j.ijmedinf.2017.01.006.
Engelhard MM, Patek SD, Sheridan K, Lach JC, Goldman MD. Remotely engaged: Lessons from remote monitoring in multiple sclerosis. Int J Med Inform. 2017 Apr;100:26–31.
Engelhard, Matthew M., et al. “Remotely engaged: Lessons from remote monitoring in multiple sclerosis.Int J Med Inform, vol. 100, Apr. 2017, pp. 26–31. Pubmed, doi:10.1016/j.ijmedinf.2017.01.006.
Engelhard MM, Patek SD, Sheridan K, Lach JC, Goldman MD. Remotely engaged: Lessons from remote monitoring in multiple sclerosis. Int J Med Inform. 2017 Apr;100:26–31.
Journal cover image

Published In

Int J Med Inform

DOI

EISSN

1872-8243

Publication Date

April 2017

Volume

100

Start / End Page

26 / 31

Location

Ireland

Related Subject Headings

  • Telemedicine
  • Reproducibility of Results
  • Remote Consultation
  • Patient-Centered Care
  • Multiple Sclerosis
  • Monitoring, Physiologic
  • Middle Aged
  • Medical Informatics
  • Male
  • Internet