Enhancing measurement in health outcomes research supported by Agencies within the US Department of Health and Human Services.

Conference Paper

Many of the Institutes, Agencies and Centers that make up the US Department of Health and Human Services (DHHS) have recognized the need for better instrumentation in health outcomes research, and provide support, both internally and externally, for research utilizing advances in measurement theory and computer technology (informatics). In this paper, representatives from several DHHS agencies and institutes will discuss their need for better instruments within their discipline and describe current or future initiatives for exploring the benefits of these technologies. Together, the perspectives underscore the importance of developing valid, precise, and efficient measures to capture the full burden of disease and treatment on patients. Initiatives, like the Patient-Reported Outcomes Measurement Information System (PROMIS) to create health-related quality of life item banks, represent a trans-DHHS effort to develop a standard set of measures for informing decision making in clinical research, practice, and health policy.

Full Text

Duke Authors

Cited Authors

  • Reeve, BB; Burke, LB; Chiang, Y-P; Clauser, SB; Colpe, LJ; Elias, JW; Fleishman, J; Hohmann, AA; Johnson-Taylor, WL; Lawrence, W; Moy, CS; Quatrano, LA; Riley, WT; Smothers, BA; Werner, EM

Published Date

  • 2007

Published In

Volume / Issue

  • 16 Suppl 1 /

Start / End Page

  • 175 - 186

PubMed ID

  • 17530449

International Standard Serial Number (ISSN)

  • 0962-9343

Digital Object Identifier (DOI)

  • 10.1007/s11136-007-9190-8

Conference Location

  • Netherlands