Development of a parent advocate program as part of a pediatric hematology/oncology service
The provision of peer support by individuals who have had personal experience with a particular crisis can be a vital component in facilitating the adjustment process of others who are confronted with the same crisis. There is growing interest in using such peer support for the parents of children and adolescents with diseases such as cancer. This article describes the historical development and current focus of the Parent Advocate Program within the Division of Pediatric Hematology/Oncology at the University of Rochester Medical Center, Rochester, New York. The authors discuss potential pitfalls, such as emotional involvement with families on the parent advocate’s part, and present ingredients for the development of a successful program, including careful selection of individuals who can interact successfully with various staff members and learn the professional role of parent advocate. © 1992 Taylor & Francis Group, LLC.
Carpenter, PJ; Vattimo, CJ; Messbauer, LJ; Stolnitz, C; Isle, JB; Stutzman, H; Cohen, HJ
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