Development of a parent advocate program as part of a pediatric hematology/oncology service


Journal Article

The provision of peer support by individuals who have had personal experience with a particular crisis can be a vital component in facilitating the adjustment process of others who are confronted with the same crisis. There is growing interest in using such peer support for the parents of children and adolescents with diseases such as cancer. This article describes the historical development and current focus of the Parent Advocate Program within the Division of Pediatric Hematology/Oncology at the University of Rochester Medical Center, Rochester, New York. The authors discuss potential pitfalls, such as emotional involvement with families on the parent advocate’s part, and present ingredients for the development of a successful program, including careful selection of individuals who can interact successfully with various staff members and learn the professional role of parent advocate. © 1992 Taylor & Francis Group, LLC.

Full Text

Duke Authors

Cited Authors

  • Carpenter, PJ; Vattimo, CJ; Messbauer, LJ; Stolnitz, C; Isle, JB; Stutzman, H; Cohen, HJ

Published Date

  • November 5, 1992

Published In

Volume / Issue

  • 10 / 2

Start / End Page

  • 27 - 38

Electronic International Standard Serial Number (EISSN)

  • 1540-7586

International Standard Serial Number (ISSN)

  • 0734-7332

Digital Object Identifier (DOI)

  • 10.1300/J077v10n02_02

Citation Source

  • Scopus