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Assessing key stakeholders' knowledge, needs, and preferences for cancer survivorship care plans.

Publication ,  Conference
Zullig, LL; Berkowitz, C; Miller, J; Ramos, K; Dolor, R; Koontz, BF; Zafar, Y; Allen, DH; Tenhover, J; Bosworth, HB
Published in: Journal of Clinical Oncology
March 1, 2018

30 Background: Survivorship care plans (SCPs) are individualized documents that summarize cancer treatment received and provide guidelines for monitoring and maintaining survivors’ health. While SCPs are intended to facilitate care coordination, they are rarely used in the primary care setting. We aimed to understand the informational needs and delivery preferences of PCPs, cancer survivors, cancer specialists, and nurses related to SCPs. Methods: We conducted semi-structured interviews with a purposeful sample of PCPs (n = 10), cancer specialists (n = 5), nurses (n = 5), and cancer survivors (n = 5). After reviewing a sample SCP based on the published ASCO template, participants were asked about acceptability, appropriateness, feasibility, fidelity, implementation, and sustainability. De-identified transcripts were qualitatively analyzed using NVivo software. Results: 25 interviews were completed (RR 45%). Emergent themes included informational needs and delivery preferences. Informational needs include clarifying roles and responsibilities of allied professionals; the roles of the PCP for follow-up care should be clear, outlined and with content summarizing their responsibilities regarding screening, and surveillance. Additionally, SCPs should emphasize side and late effects of cancer treatment for the benefit of patients and providers. Delivery preferences include using sustainable and accessible electronic formats to improve provider communication and streamlining documentation for the intended audience. Electronic SCPs could be frequently updated with pertinent information about patient needs and care over time. Conclusions: Understanding the needs and preferences of PCPs may address current limitations of SCPs in coordinating survivor care. Future SCPs may be electronic and accessible, with content and guidance targeted to the PCP’s role.

Duke Scholars

Published In

Journal of Clinical Oncology

DOI

EISSN

1527-7755

ISSN

0732-183X

Publication Date

March 1, 2018

Volume

36

Issue

7_suppl

Start / End Page

30 / 30

Publisher

American Society of Clinical Oncology (ASCO)

Related Subject Headings

  • Oncology & Carcinogenesis
  • 3211 Oncology and carcinogenesis
  • 1112 Oncology and Carcinogenesis
  • 1103 Clinical Sciences
 

Citation

APA
Chicago
ICMJE
MLA
NLM
Zullig, L. L., Berkowitz, C., Miller, J., Ramos, K., Dolor, R., Koontz, B. F., … Bosworth, H. B. (2018). Assessing key stakeholders' knowledge, needs, and preferences for cancer survivorship care plans. In Journal of Clinical Oncology (Vol. 36, pp. 30–30). American Society of Clinical Oncology (ASCO). https://doi.org/10.1200/jco.2018.36.7_suppl.30
Zullig, Leah L., Callie Berkowitz, Julie Miller, Katherine Ramos, Rowena Dolor, Bridget F. Koontz, Yousuf Zafar, Deborah H. Allen, Jennifer Tenhover, and Hayden B. Bosworth. “Assessing key stakeholders' knowledge, needs, and preferences for cancer survivorship care plans.” In Journal of Clinical Oncology, 36:30–30. American Society of Clinical Oncology (ASCO), 2018. https://doi.org/10.1200/jco.2018.36.7_suppl.30.
Zullig LL, Berkowitz C, Miller J, Ramos K, Dolor R, Koontz BF, et al. Assessing key stakeholders' knowledge, needs, and preferences for cancer survivorship care plans. In: Journal of Clinical Oncology. American Society of Clinical Oncology (ASCO); 2018. p. 30–30.
Zullig, Leah L., et al. “Assessing key stakeholders' knowledge, needs, and preferences for cancer survivorship care plans.Journal of Clinical Oncology, vol. 36, no. 7_suppl, American Society of Clinical Oncology (ASCO), 2018, pp. 30–30. Crossref, doi:10.1200/jco.2018.36.7_suppl.30.
Zullig LL, Berkowitz C, Miller J, Ramos K, Dolor R, Koontz BF, Zafar Y, Allen DH, Tenhover J, Bosworth HB. Assessing key stakeholders' knowledge, needs, and preferences for cancer survivorship care plans. Journal of Clinical Oncology. American Society of Clinical Oncology (ASCO); 2018. p. 30–30.

Published In

Journal of Clinical Oncology

DOI

EISSN

1527-7755

ISSN

0732-183X

Publication Date

March 1, 2018

Volume

36

Issue

7_suppl

Start / End Page

30 / 30

Publisher

American Society of Clinical Oncology (ASCO)

Related Subject Headings

  • Oncology & Carcinogenesis
  • 3211 Oncology and carcinogenesis
  • 1112 Oncology and Carcinogenesis
  • 1103 Clinical Sciences