Stigma of Sickle Cell Disease: A Systematic Review.

Journal Article (Systematic Review;Journal Article)

The aim of this systematic review was to synthesize the literature regarding health-related stigma in adolescents and adults living with sickle cell disease (SCD). Four domains were identified from 27 studies: (1) social consequences of stigma; (2) the effect of stigma on psychological well-being; (3) the effect of stigma on physiological well-being; and (4) the impact of stigma on patient-provider relationships and care-seeking behaviors. Current literature revealed that SCD stigma has detrimental consequences. Methodological issues as well as research and practice implications were identified. Future research should further examine the impact of health-related stigma on self-management of SCD.

Full Text

Duke Authors

Cited Authors

  • Bulgin, D; Tanabe, P; Jenerette, C

Published Date

  • August 2018

Published In

Volume / Issue

  • 39 / 8

Start / End Page

  • 675 - 686

PubMed ID

  • 29652215

Pubmed Central ID

  • 29652215

Electronic International Standard Serial Number (EISSN)

  • 1096-4673

International Standard Serial Number (ISSN)

  • 0161-2840

Digital Object Identifier (DOI)

  • 10.1080/01612840.2018.1443530


  • eng