Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis.

Journal Article (Journal Article)

OBJECTIVE: This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis. METHODS: Preliminary data and proposed next steps were outlined and discussed by participants. RESULTS: Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death. CONCLUSION: The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies.

Full Text

Duke Authors

Cited Authors

  • Lopez-Olivo, MA; Negrón, JB; Zogala, RJ; Carmona, L; Criner, K; Goel, N; Gonzalez-Lopez, L; Ingegnoli, F; Leong, A; March, L; Shea, B; Strand, V; Tugwell, P; Westrich-Robertson, T; Zamora, NV; Christensen, R; Suarez-Almazor, ME

Published Date

  • September 2019

Published In

Volume / Issue

  • 46 / 9

Start / End Page

  • 1164 - 1167

PubMed ID

  • 30824644

International Standard Serial Number (ISSN)

  • 0315-162X

Digital Object Identifier (DOI)

  • 10.3899/jrheum.181076


  • eng

Conference Location

  • Canada