Neurodevelopmental Risk: A Tool to Enhance Conversations With Families of Infants.

Journal Article (Journal Article)

Parents of infants at risk of neurodevelopmental impairment require clear and individualized information about what to expect for their child, yet data suggest they have difficulty knowing how to ask for this information. Here, we pilot a Question Prompt List (QPL) with parents of infants at risk of neurodevelopmental impairment. To assess real-time use of the QPL, we recorded family meetings and collected data from parents and clinicians about the QPL experience. Qualitative data were analyzed using directed content analysis. Ten parents were enrolled. In family meetings, clinicians universally acknowledged the QPL and most used the QPL to guide meeting content. All parents who used the QPL found it useful and would recommend the tool to others. In interviews, parents described that the QPL offered novel questions and facilitated more prepared answers from the team. Future studies should test the impact of this QPL on parent understanding and communication quality.

Full Text

Duke Authors

Cited Authors

  • Lemmon, ME; Huffstetler, HE; Donohue, P; Katz, M; Barks, MC; Schindler, E; Brandon, D; Boss, RD; Ubel, PA

Published Date

  • October 2019

Published In

Volume / Issue

  • 34 / 11

Start / End Page

  • 653 - 659

PubMed ID

  • 31137987

Pubmed Central ID

  • PMC7282194

Electronic International Standard Serial Number (EISSN)

  • 1708-8283

Digital Object Identifier (DOI)

  • 10.1177/0883073819844927


  • eng

Conference Location

  • United States