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Engaging patients throughout the health system: A landscape analysis of cold-call policies and recommendations for future policy change.

Publication ,  Journal Article
McHugh, KR; Swamy, GK; Hernandez, AF
Published in: J Clin Transl Sci
December 2018

Healthcare institutions may often prohibit "cold-calling" or direct contact with a potential research participant when the person initiating contact is unknown to the patient. This policy aims to maintain patient privacy, but may have unintended consequences as a result of physician gatekeeping. In this review, we discuss recruitment policies at the top academic institutions. We propose an ethical framework for evaluating cold-call policies based on three principles of research ethics. In order to maximize engagement of potential research participants, while maintaining patient privacy and autonomy, we then propose several alternative solutions to restrictive cold-call policies, including opt-in or opt-out platforms, a team-based approach, electronic solutions, and best practices for recruitment. As healthcare has evolved with more collaborative, patient-centered, data-driven care, the engagement of potential research participants should similarly evolve.

Duke Scholars

Published In

J Clin Transl Sci

DOI

EISSN

2059-8661

Publication Date

December 2018

Volume

2

Issue

6

Start / End Page

384 / 392

Location

England
 

Citation

APA
Chicago
ICMJE
MLA
NLM
McHugh, K. R., Swamy, G. K., & Hernandez, A. F. (2018). Engaging patients throughout the health system: A landscape analysis of cold-call policies and recommendations for future policy change. J Clin Transl Sci, 2(6), 384–392. https://doi.org/10.1017/cts.2019.1
McHugh, Kelly R., Geeta K. Swamy, and Adrian F. Hernandez. “Engaging patients throughout the health system: A landscape analysis of cold-call policies and recommendations for future policy change.J Clin Transl Sci 2, no. 6 (December 2018): 384–92. https://doi.org/10.1017/cts.2019.1.
McHugh, Kelly R., et al. “Engaging patients throughout the health system: A landscape analysis of cold-call policies and recommendations for future policy change.J Clin Transl Sci, vol. 2, no. 6, Dec. 2018, pp. 384–92. Pubmed, doi:10.1017/cts.2019.1.
Journal cover image

Published In

J Clin Transl Sci

DOI

EISSN

2059-8661

Publication Date

December 2018

Volume

2

Issue

6

Start / End Page

384 / 392

Location

England