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Piloting a computer assisted telephone interview: the FUCHSIA Women's Study.

Publication ,  Journal Article
Chin, HB; Johnson, CY; Kim, KH; Knight, JH; Mertens, AC; Mink, PJ; Simeone, RM; Woodard, JJ; Howards, PP
Published in: BMC Womens Health
November 30, 2014

BACKGROUND: Loss of fertility has been reported as an important concern of reproductive age women diagnosed with cancer. The Furthering Understanding of Cancer, Health, and Survivorship In Adult (FUCHSIA) Women's Study examines how cancer treatment affects the fertility of cancer survivors who were diagnosed during their reproductive years. In this paper we discuss the process of developing and pilot testing the FUCHSIA computer assisted telephone interview (CATI). METHODS: The CATI was developed in several phases and pilot tested twice to evaluate several aspects of the instrument including question sequencing, understandability of the questions, and women's comfort with certain questions. Participants were recruited from cancer and infertility support groups and study team contacts. RESULTS: Fifty-two women were recruited and participated in the first pilot. The participants had a mean age of 31.5 years, 17.3% had cancer, and 38.5% experienced a period of infertility. Twenty-four women participated in the second pilot with similar representation. CONCLUSIONS: The collection of detailed information on reproductive outcomes with the CATI may improve the understanding of how cancer treatment during the reproductive years affects female fertility. The pilot studies provided important information to improve the CATI before the full study. Our comprehensive recruitment strategy allowed us to interview a diverse group of women to ensure that questions and answer choices were easily interpreted, check complicated skip patterns and the flow of questions, and evaluate the length of the interview. This experience can be used to help inform others in what steps can be useful for developing telephone interviews for research studies.

Duke Scholars

Published In

BMC Womens Health

DOI

EISSN

1472-6874

Publication Date

November 30, 2014

Volume

14

Start / End Page

149

Location

England

Related Subject Headings

  • Time Factors
  • Survivors
  • Pilot Projects
  • Obstetrics & Reproductive Medicine
  • Neoplasms
  • Interviews as Topic
  • Infertility
  • Humans
  • Health Surveys
  • Fertility
 

Citation

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Chin, H. B., Johnson, C. Y., Kim, K. H., Knight, J. H., Mertens, A. C., Mink, P. J., … Howards, P. P. (2014). Piloting a computer assisted telephone interview: the FUCHSIA Women's Study. BMC Womens Health, 14, 149. https://doi.org/10.1186/s12905-014-0149-y
Chin, Helen B., Candice Y. Johnson, Konny H. Kim, Jessica H. Knight, Ann C. Mertens, Pamela J. Mink, Regina M. Simeone, Jill J. Woodard, and Penelope P. Howards. “Piloting a computer assisted telephone interview: the FUCHSIA Women's Study.BMC Womens Health 14 (November 30, 2014): 149. https://doi.org/10.1186/s12905-014-0149-y.
Chin HB, Johnson CY, Kim KH, Knight JH, Mertens AC, Mink PJ, et al. Piloting a computer assisted telephone interview: the FUCHSIA Women's Study. BMC Womens Health. 2014 Nov 30;14:149.
Chin, Helen B., et al. “Piloting a computer assisted telephone interview: the FUCHSIA Women's Study.BMC Womens Health, vol. 14, Nov. 2014, p. 149. Pubmed, doi:10.1186/s12905-014-0149-y.
Chin HB, Johnson CY, Kim KH, Knight JH, Mertens AC, Mink PJ, Simeone RM, Woodard JJ, Howards PP. Piloting a computer assisted telephone interview: the FUCHSIA Women's Study. BMC Womens Health. 2014 Nov 30;14:149.
Journal cover image

Published In

BMC Womens Health

DOI

EISSN

1472-6874

Publication Date

November 30, 2014

Volume

14

Start / End Page

149

Location

England

Related Subject Headings

  • Time Factors
  • Survivors
  • Pilot Projects
  • Obstetrics & Reproductive Medicine
  • Neoplasms
  • Interviews as Topic
  • Infertility
  • Humans
  • Health Surveys
  • Fertility