Measuring Health-Related Quality of Life in Pediatric Neurology.

Journal Article (Journal Article)

Health-related quality of life (HRQOL) is central to how clinicians and parents make choices about medical care for pediatric neurology patients. To provide parents with the information they need to make these decisions and plan for the future, it is necessary for parents and clinicians to understand how HRQOL is defined and measured in the setting of pediatric neurodevelopmental impairment. We review challenges that exist in measuring HRQOL in pediatric neurology, examine existing measures, and outline key principles to guide selection and interpretation of HRQOL measures in children with neurologic conditions.

Full Text

Duke Authors

Cited Authors

  • Lemmon, ME; Huffstetler, HE; Reeve, BB

Published Date

  • September 2020

Published In

Volume / Issue

  • 35 / 10

Start / End Page

  • 681 - 689

PubMed ID

  • 32498657

Pubmed Central ID

  • PMC7415579

Electronic International Standard Serial Number (EISSN)

  • 1708-8283

Digital Object Identifier (DOI)

  • 10.1177/0883073820923809


  • eng

Conference Location

  • United States