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Patient Perspectives of Sickle Cell Management in the Emergency Department.

Publication ,  Journal Article
Crego, N; Masese, R; Bonnabeau, E; Douglas, C; Rains, G; Shah, N; Tanabe, P
Published in: Crit Care Nurs Q
April 2021

Sickle cell disease (SCD) is a common genetic blood disorder predominantly affecting African Americans in the United States. The objective of this study was to use a multimethods approach to describe how patients with SCD in North Carolina perceive the care they receive in emergency departments (EDs). Fourteen participants completed an interview (n = 10) or 2 focus groups (n = 2 per focus group) and 51 completed surveys. Sixty percent of participants with pain attack "very much" or "quite a bit" avoided going to the ED for care because of prior bad experiences and 50% of participants reported waiting 120 minutes or more in the ED for treatment of their sickle cell pain. Participants reported that stigma associated with provider perception of drug-seeking behavior is a persistent problem in the ED. Participant recommendations warrant further investigation to address persistent SCD quality-of-care concerns in the ED.

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Published In

Crit Care Nurs Q

DOI

EISSN

1550-5111

Publication Date

April 2021

Volume

44

Issue

2

Start / End Page

160 / 174

Location

United States

Related Subject Headings

  • United States
  • Surveys and Questionnaires
  • Pain
  • Nursing
  • Male
  • Humans
  • Focus Groups
  • Female
  • Emergency Service, Hospital
  • Critical Care Nursing
 

Citation

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Crego, N., Masese, R., Bonnabeau, E., Douglas, C., Rains, G., Shah, N., & Tanabe, P. (2021). Patient Perspectives of Sickle Cell Management in the Emergency Department. Crit Care Nurs Q, 44(2), 160–174. https://doi.org/10.1097/CNQ.0000000000000350
Crego, Nancy, Rita Masese, Emily Bonnabeau, Christian Douglas, Gary Rains, Nirmish Shah, and Paula Tanabe. “Patient Perspectives of Sickle Cell Management in the Emergency Department.Crit Care Nurs Q 44, no. 2 (April 2021): 160–74. https://doi.org/10.1097/CNQ.0000000000000350.
Crego N, Masese R, Bonnabeau E, Douglas C, Rains G, Shah N, et al. Patient Perspectives of Sickle Cell Management in the Emergency Department. Crit Care Nurs Q. 2021 Apr;44(2):160–74.
Crego, Nancy, et al. “Patient Perspectives of Sickle Cell Management in the Emergency Department.Crit Care Nurs Q, vol. 44, no. 2, Apr. 2021, pp. 160–74. Pubmed, doi:10.1097/CNQ.0000000000000350.
Crego N, Masese R, Bonnabeau E, Douglas C, Rains G, Shah N, Tanabe P. Patient Perspectives of Sickle Cell Management in the Emergency Department. Crit Care Nurs Q. 2021 Apr;44(2):160–174.

Published In

Crit Care Nurs Q

DOI

EISSN

1550-5111

Publication Date

April 2021

Volume

44

Issue

2

Start / End Page

160 / 174

Location

United States

Related Subject Headings

  • United States
  • Surveys and Questionnaires
  • Pain
  • Nursing
  • Male
  • Humans
  • Focus Groups
  • Female
  • Emergency Service, Hospital
  • Critical Care Nursing