Patient Perspectives of Sickle Cell Management in the Emergency Department.

Journal Article (Journal Article)

Sickle cell disease (SCD) is a common genetic blood disorder predominantly affecting African Americans in the United States. The objective of this study was to use a multimethods approach to describe how patients with SCD in North Carolina perceive the care they receive in emergency departments (EDs). Fourteen participants completed an interview (n = 10) or 2 focus groups (n = 2 per focus group) and 51 completed surveys. Sixty percent of participants with pain attack "very much" or "quite a bit" avoided going to the ED for care because of prior bad experiences and 50% of participants reported waiting 120 minutes or more in the ED for treatment of their sickle cell pain. Participants reported that stigma associated with provider perception of drug-seeking behavior is a persistent problem in the ED. Participant recommendations warrant further investigation to address persistent SCD quality-of-care concerns in the ED.

Full Text

Duke Authors

Cited Authors

  • Crego, N; Masese, R; Bonnabeau, E; Douglas, C; Rains, G; Shah, N; Tanabe, P

Published Date

  • April 2021

Published In

Volume / Issue

  • 44 / 2

Start / End Page

  • 160 - 174

PubMed ID

  • 33595963

Pubmed Central ID

  • PMC8007091

Electronic International Standard Serial Number (EISSN)

  • 1550-5111

Digital Object Identifier (DOI)

  • 10.1097/CNQ.0000000000000350


  • eng

Conference Location

  • United States