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Self-management interventions in systemic sclerosis: A systematic review.

Publication ,  Journal Article
Wojeck, RK; Bailey, DE; Somers, TJ; Knisely, MR
Published in: Res Nurs Health
April 2021

Systemic sclerosis is a rare and incurable autoimmune disease in which patients are challenged with self-managing their disease. Systematic evaluation of the essential self-management intervention components and self-management outcomes is necessary to assess the state of the science of self-management for patients with systemic sclerosis. As such, the purpose of this systematic review was to identify and describe self-management interventions and their impact on self-management outcomes in adults with systemic sclerosis. Studies were included if they contained a self-management intervention, incorporated at least one self-management outcome identified as a common data element by the National Institute of Nursing Research (i.e., patient activation, self-efficacy, self-regulation, global health), and were conducted in adults with systemic sclerosis. Using the Preferred Reporting Items for Systematic Reviews and Meta-Analysis guidelines, PubMed, Cumulative Index of Nursing and Allied Health Literature, and Embase were searched from the inception of each database to March 2020, yielding a total of 215 studies. Of these reports, 16 met the inclusion criteria for this review. There was notable variability in the types of self-management interventions and their effects on key self-management outcomes. Self-management interventions focused on improving physical function through rehabilitation programs were the most common interventions (n = 7). The poor methodological quality of the studies included in this systematic review, however, limited the synthesis of and recommendations for self-management interventions in adults with systemic sclerosis. Future research in systemic sclerosis should include key self-management outcomes in larger, more rigorously designed studies to allow for comparisons across studies and to advance the science of self-management.

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Published In

Res Nurs Health

DOI

EISSN

1098-240X

Publication Date

April 2021

Volume

44

Issue

2

Start / End Page

376 / 392

Location

United States

Related Subject Headings

  • Self-Management
  • Scleroderma, Systemic
  • Nursing
  • Humans
  • 4205 Nursing
  • 4204 Midwifery
  • 1117 Public Health and Health Services
  • 1110 Nursing
 

Citation

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Wojeck, R. K., Bailey, D. E., Somers, T. J., & Knisely, M. R. (2021). Self-management interventions in systemic sclerosis: A systematic review. Res Nurs Health, 44(2), 376–392. https://doi.org/10.1002/nur.22118
Wojeck, Robyn K., Donald E. Bailey, Tamara J. Somers, and Mitchell R. Knisely. “Self-management interventions in systemic sclerosis: A systematic review.Res Nurs Health 44, no. 2 (April 2021): 376–92. https://doi.org/10.1002/nur.22118.
Wojeck RK, Bailey DE, Somers TJ, Knisely MR. Self-management interventions in systemic sclerosis: A systematic review. Res Nurs Health. 2021 Apr;44(2):376–92.
Wojeck, Robyn K., et al. “Self-management interventions in systemic sclerosis: A systematic review.Res Nurs Health, vol. 44, no. 2, Apr. 2021, pp. 376–92. Pubmed, doi:10.1002/nur.22118.
Wojeck RK, Bailey DE, Somers TJ, Knisely MR. Self-management interventions in systemic sclerosis: A systematic review. Res Nurs Health. 2021 Apr;44(2):376–392.
Journal cover image

Published In

Res Nurs Health

DOI

EISSN

1098-240X

Publication Date

April 2021

Volume

44

Issue

2

Start / End Page

376 / 392

Location

United States

Related Subject Headings

  • Self-Management
  • Scleroderma, Systemic
  • Nursing
  • Humans
  • 4205 Nursing
  • 4204 Midwifery
  • 1117 Public Health and Health Services
  • 1110 Nursing