Patient perspectives on the treatment burden of injectable medication for hereditary angioedema.

Journal Article (Journal Article)

Hereditary angioedema (HAE) is a rare, chronic disease characterized by debilitating swelling episodes in various parts of the body. Patients experience significant burdens related to the symptoms and management of HAE, which can affect their daily lives and reduce their overall quality of life. Prophylactic treatment options have expanded in the past decade to the benefit of patients; however, these therapies require scheduled injections, which can be painful, burdensome, and time consuming. We conducted an online survey of patients with HAE in the USA to better understand their experiences with available prophylactic medications and the associated treatment burdens. Our survey results suggest that most patients are satisfied with their current therapies but desire novel medications with a simpler route of administration and that, although most patients experience significant treatment-related burdens, they learn to cope with these challenges over time.

Full Text

Duke Authors

Cited Authors

  • Radojicic, C; Riedl, MA; Craig, TJ; Best, JM; Rosselli, J; Hahn, R; Banerji, A

Published Date

  • May 1, 2021

Published In

Volume / Issue

  • 42 / 3

Start / End Page

  • S4 - S10

PubMed ID

  • 33980327

Electronic International Standard Serial Number (EISSN)

  • 1539-6304

Digital Object Identifier (DOI)

  • 10.2500/aap.2021.42.210025


  • eng

Conference Location

  • United States