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Who is managing the bowels? A survey of clinical practice patterns in spina bifida clinics.

Publication ,  Journal Article
Kelly, MS; Stout, J; Wiener, JS
Published in: J Pediatr Rehabil Med
2021

PURPOSE: Neurogenic bowel dysfunction (NBD) affects 80% of individuals with spina bifida. Performing and disseminating research on NBD to reach the appropriate audience is difficult given the variability among medical specialties managing NBD. This study aimed to identify which medical specialties and types of providers are currently managing NBD in the United States. METHODS: A survey was developed and sent to 75 spina bifida clinics. Surveys queried which specialty was primarily responsible for medical and surgical management of NBD and any others that assist in NBD care. The license and certification level of the providers were collected. Descriptive statistics were performed to describe the results. RESULTS: Response rate was 68%. Urology was the leading specialty primarily responsible for NBD management (39%) followed by rehabilitation medicine and developmental pediatrics (22% and 20%, respectively). Physicians were the primary providers of care followed by nurse practitioners (54% vs 31%). Urology performs 65% of NBD surgeries. CONCLUSION: Multiple specialties and providers are involved in NBD management with variation among clinics. Development of improved NBD care should include a spectrum of specialties and providers. Dissemination of research should be aimed at multiple specialty groups.

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Published In

J Pediatr Rehabil Med

DOI

EISSN

1875-8894

Publication Date

2021

Volume

14

Issue

4

Start / End Page

675 / 679

Location

Netherlands

Related Subject Headings

  • United States
  • Surveys and Questionnaires
  • Spinal Dysraphism
  • Practice Patterns, Physicians'
  • Physicians
  • Neurogenic Bowel
  • Humans
  • Child
  • 3213 Paediatrics
  • 1114 Paediatrics and Reproductive Medicine
 

Citation

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ICMJE
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Kelly, M. S., Stout, J., & Wiener, J. S. (2021). Who is managing the bowels? A survey of clinical practice patterns in spina bifida clinics. J Pediatr Rehabil Med, 14(4), 675–679. https://doi.org/10.3233/PRM-201512
Kelly, Maryellen S., Jennifer Stout, and John S. Wiener. “Who is managing the bowels? A survey of clinical practice patterns in spina bifida clinics.J Pediatr Rehabil Med 14, no. 4 (2021): 675–79. https://doi.org/10.3233/PRM-201512.
Kelly MS, Stout J, Wiener JS. Who is managing the bowels? A survey of clinical practice patterns in spina bifida clinics. J Pediatr Rehabil Med. 2021;14(4):675–9.
Kelly, Maryellen S., et al. “Who is managing the bowels? A survey of clinical practice patterns in spina bifida clinics.J Pediatr Rehabil Med, vol. 14, no. 4, 2021, pp. 675–79. Pubmed, doi:10.3233/PRM-201512.
Kelly MS, Stout J, Wiener JS. Who is managing the bowels? A survey of clinical practice patterns in spina bifida clinics. J Pediatr Rehabil Med. 2021;14(4):675–679.

Published In

J Pediatr Rehabil Med

DOI

EISSN

1875-8894

Publication Date

2021

Volume

14

Issue

4

Start / End Page

675 / 679

Location

Netherlands

Related Subject Headings

  • United States
  • Surveys and Questionnaires
  • Spinal Dysraphism
  • Practice Patterns, Physicians'
  • Physicians
  • Neurogenic Bowel
  • Humans
  • Child
  • 3213 Paediatrics
  • 1114 Paediatrics and Reproductive Medicine