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Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals.

Publication ,  Journal Article
Shah, NR; Treadwell, MJ; Vichinsky, E
Published in: J Pediatr Hematol Oncol
October 1, 2022

Transition from pediatric to adult care for adolescents and young adults (AYA) with sickle cell disease (SCD) comes at a time when a range of biopsychosocial issues occur simultaneously. A new survey sought information from physicians who treat AYA with SCD about their practices in how they transition pediatric patients to adult care. An online survey to physicians who treat SCD was conducted using SurveyMonkey between November 2019 and January 2020. Of 209 physicians who were contacted, 58 completed the survey; 62.1% treated primarily pediatric patients and 37.9% treated adults. Patient education on transition was regarded as "important" or "very important" by 94.2% of the physicians. Patients' knowledge about their disease and their ability to navigate the health care system were identified as 2 primary barriers to transition (mean 1.30 and 1.67 on a 3-point scale, respectively). Most physicians employ established models to facilitate the transition, including Got Transition (41.3%) and a biopsychosocial model (34.8%), with 34.8% using a mix of models and 23.9% not using an established model. Fewer than half (34.8%) rated their program as "very successful" or "successful." Transition protocols from pediatric to adult care should be re-examined to facilitate successful transition for AYA with SCD.

Duke Scholars

Published In

J Pediatr Hematol Oncol

DOI

EISSN

1536-3678

Publication Date

October 1, 2022

Volume

44

Issue

7

Start / End Page

e999 / e1005

Location

United States

Related Subject Headings

  • Young Adult
  • Transition to Adult Care
  • Surveys and Questionnaires
  • Physicians
  • Oncology & Carcinogenesis
  • Humans
  • Health Personnel
  • Anemia, Sickle Cell
  • Adolescent
  • 3201 Cardiovascular medicine and haematology
 

Citation

APA
Chicago
ICMJE
MLA
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Shah, N. R., Treadwell, M. J., & Vichinsky, E. (2022). Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals. J Pediatr Hematol Oncol, 44(7), e999–e1005. https://doi.org/10.1097/MPH.0000000000002490
Shah, Nirmish R., Marsha J. Treadwell, and Elliott Vichinsky. “Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals.J Pediatr Hematol Oncol 44, no. 7 (October 1, 2022): e999–1005. https://doi.org/10.1097/MPH.0000000000002490.
Shah NR, Treadwell MJ, Vichinsky E. Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals. J Pediatr Hematol Oncol. 2022 Oct 1;44(7):e999–1005.
Shah, Nirmish R., et al. “Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals.J Pediatr Hematol Oncol, vol. 44, no. 7, Oct. 2022, pp. e999–1005. Pubmed, doi:10.1097/MPH.0000000000002490.
Shah NR, Treadwell MJ, Vichinsky E. Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals. J Pediatr Hematol Oncol. 2022 Oct 1;44(7):e999–e1005.

Published In

J Pediatr Hematol Oncol

DOI

EISSN

1536-3678

Publication Date

October 1, 2022

Volume

44

Issue

7

Start / End Page

e999 / e1005

Location

United States

Related Subject Headings

  • Young Adult
  • Transition to Adult Care
  • Surveys and Questionnaires
  • Physicians
  • Oncology & Carcinogenesis
  • Humans
  • Health Personnel
  • Anemia, Sickle Cell
  • Adolescent
  • 3201 Cardiovascular medicine and haematology