Expenditures in caring for patients with dementia who live at home.

Journal Article (Journal Article)

OBJECTIVES: Given the national interest in progressive dementia, we estimated expenditures incurred in caring for dementia patients who live at home. METHODS: Primary caregivers of 264 patients from a university-based memory disorders clinic were interviewed at baseline and asked to keep service use diaries for 6 months; 141 caregivers who returned the diaries are the focus of this report. We examined both formal and informal services (distinguished by whether money was exchanged) and associated expenditures. RESULTS: Neither caregivers returning diaries nor their patients differed at baseline from those not returning diaries and their patients. Expenditures incurred over 6 months were extensive for both formal ($6986) and informal ($786) services. Out-of-pocket expenditures were high (e.g., in-home companion or sitter, adult day care, visiting nurse). Multivariable analyses indicated that patients with more severe symptoms of dementia and families with higher incomes reported significantly higher expenditures. CONCLUSIONS: The expense of caring for patients with progressive dementia living at home may be higher than previously estimated and frequently involves expenses paid directly by patients and their families.

Full Text

Duke Authors

Cited Authors

  • Weinberger, M; Gold, DT; Divine, GW; Cowper, PA; Hodgson, LG; Schreiner, PJ; George, LK

Published Date

  • March 1, 1993

Published In

Volume / Issue

  • 83 / 3

Start / End Page

  • 338 - 341

PubMed ID

  • 8438969

Pubmed Central ID

  • PMC1694663

International Standard Serial Number (ISSN)

  • 0090-0036

Digital Object Identifier (DOI)

  • 10.2105/ajph.83.3.338


  • eng

Conference Location

  • United States