Adjustment of caregivers of pediatric patients with brain tumors: a cross-sectional analysis.

Journal Article (Journal Article)

OBJECTIVE: The purpose of the study was to compare the psychological adjustment of caregivers of children with brain tumors who are on-treatment with caregivers of children who are off-treatment. METHODS: Data were collected from 90 participants: 47 (52.2%) caregivers of children undergoing active treatment (on-treatment) and 43 (47.8%) caregivers of children off-treatment on measures of global psychological distress and illness and caregiving related distress. RESULTS: Results revealed that the two groups differed significantly in their reported symptoms of general psychological distress, with the off-treatment caregivers reporting significantly lower levels of general distress. However, off-treatment caregivers continued to experience elevated levels of uncertainty and caregiving burden related to their child's illness. CONCLUSIONS: There is significant evidence suggesting that the burden of caring for a child with a brain tumor is ongoing, continuing well into the off-treatment period. These results also suggest that the psychosocial functioning of these caregivers is best assessed using measures designed specifically to evaluate illness-related psychosocial functioning (e.g. the Parent Experience of Child Illness, Impact on Family Scale).

Full Text

Duke Authors

Cited Authors

  • Hutchinson, KC; Willard, VW; Hardy, KK; Bonner, MJ

Published Date

  • May 2009

Published In

Volume / Issue

  • 18 / 5

Start / End Page

  • 515 - 523

PubMed ID

  • 18756585

Electronic International Standard Serial Number (EISSN)

  • 1099-1611

Digital Object Identifier (DOI)

  • 10.1002/pon.1421


  • eng

Conference Location

  • England