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The Sarcoidosis Health Questionnaire: a new measure of health-related quality of life.

Publication ,  Journal Article
Cox, CE; Donohue, JF; Brown, CD; Kataria, YP; Judson, MA
Published in: Am J Respir Crit Care Med
August 1, 2003

The Sarcoidosis Health Questionnaire (SHQ) is a health-related quality-of-life (HRQL) instrument we designed in a two-part study to allow patients to describe their satisfaction with life as it is affected by sarcoidosis. In the Development Study, we created the SHQ from a 151-item pool generated from interviews with 107 patients, a search of the relevant literature, and discussion with sarcoidosis experts. Using clinical impact methodology and the questionnaire responses of a separate group of 149 patients, we reduced the total number of items to 29. The final SHQ has three domains: Daily Functioning, Physical Functioning, and Emotional Functioning. In the Validation Study, performed with a different group of 111 patients, we found that the SHQ had good internal consistency reliability, as well as evidence of content, criterion, and construct validity based on its comparison with other measures of HRQL (Medical Outcomes Study 36-Item short form and the St. George's Respiratory Questionnaire) and of mental health (the Center for Epidemiologic Study-Depression Scale), as well as with clinical variables including spirometry. The SHQ alone was sensitive to differences in HRQL based on the number of involved organ systems. In conclusion, we have developed a self-completed HRQL questionnaire for U.S. patients with sarcoidosis.

Duke Scholars

Published In

Am J Respir Crit Care Med

DOI

ISSN

1073-449X

Publication Date

August 1, 2003

Volume

168

Issue

3

Start / End Page

323 / 329

Location

United States

Related Subject Headings

  • Severity of Illness Index
  • Sarcoidosis
  • Respiratory System
  • Respiratory Function Tests
  • Reproducibility of Results
  • Quality of Life
  • Middle Aged
  • Male
  • Humans
  • Health Surveys
 

Citation

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MLA
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Cox, C. E., Donohue, J. F., Brown, C. D., Kataria, Y. P., & Judson, M. A. (2003). The Sarcoidosis Health Questionnaire: a new measure of health-related quality of life. Am J Respir Crit Care Med, 168(3), 323–329. https://doi.org/10.1164/rccm.200211-1343OC
Cox, Christopher E., James F. Donohue, Cynthia D. Brown, Yash P. Kataria, and Marc A. Judson. “The Sarcoidosis Health Questionnaire: a new measure of health-related quality of life.Am J Respir Crit Care Med 168, no. 3 (August 1, 2003): 323–29. https://doi.org/10.1164/rccm.200211-1343OC.
Cox CE, Donohue JF, Brown CD, Kataria YP, Judson MA. The Sarcoidosis Health Questionnaire: a new measure of health-related quality of life. Am J Respir Crit Care Med. 2003 Aug 1;168(3):323–9.
Cox, Christopher E., et al. “The Sarcoidosis Health Questionnaire: a new measure of health-related quality of life.Am J Respir Crit Care Med, vol. 168, no. 3, Aug. 2003, pp. 323–29. Pubmed, doi:10.1164/rccm.200211-1343OC.
Cox CE, Donohue JF, Brown CD, Kataria YP, Judson MA. The Sarcoidosis Health Questionnaire: a new measure of health-related quality of life. Am J Respir Crit Care Med. 2003 Aug 1;168(3):323–329.

Published In

Am J Respir Crit Care Med

DOI

ISSN

1073-449X

Publication Date

August 1, 2003

Volume

168

Issue

3

Start / End Page

323 / 329

Location

United States

Related Subject Headings

  • Severity of Illness Index
  • Sarcoidosis
  • Respiratory System
  • Respiratory Function Tests
  • Reproducibility of Results
  • Quality of Life
  • Middle Aged
  • Male
  • Humans
  • Health Surveys