Great expectations: a position description for parents as caregivers: Part II.

Published

Journal Article (Review)

Parents caring for a child with a chronic condition must attend to a myriad of day-to-day management responsibilities and activities. Part I of this two-part series (in the previous issue of Pediatric Nursing) reviewed both the adult and pediatric family caregiving literature within the context of four major categories of responsibilities: (a) managing the illness, which includes hands-on care, monitoring and interpreting signs and symptoms, as well as problem-solving and decision-making processes; (b) identifying, accessing, and coordinating resources, which involves assessing and negotiating community resources including health care providers; (c) maintaining the family unit, including balancing illness and family demands while at the same time attempting to meet the health and developmental needs of each family member; and (d) maintaining self, including physical, emotional, and spiritual health.. Part II presents a multifaceted list of parent caregiving management responsibilities and associated activities, and discusses nursing implications. The list was developed to facilitate "caregiving" dialogue between health care providers and families of children with chronic conditions. It is hoped that through such partnerships creative ways of educating, preparing, and supporting caregivers will be generated.

Full Text

Duke Authors

Cited Authors

  • Sullivan-Bolyai, S; Knafl, KA; Sadler, L; Gilliss, CL

Published Date

  • January 2004

Published In

Volume / Issue

  • 30 / 1

Start / End Page

  • 52 - 56

PubMed ID

  • 15022853

Pubmed Central ID

  • 15022853

International Standard Serial Number (ISSN)

  • 0097-9805

Language

  • eng