Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care.

Journal Article (Journal Article;Review)

Optimum management of Duchenne muscular dystrophy (DMD) requires a multidisciplinary approach that focuses on anticipatory and preventive measures as well as active interventions to address the primary and secondary aspects of the disorder. Implementing comprehensive management strategies can favourably alter the natural history of the disease and improve function, quality of life, and longevity. Standardised care can also facilitate planning for multicentre trials and help with the identification of areas in which care can be improved. Here, we present a comprehensive set of DMD care recommendations for management of rehabilitation, orthopaedic, respiratory, cardiovascular, gastroenterology/nutrition, and pain issues, as well as general surgical and emergency-room precautions. Together with part 1 of this Review, which focuses on diagnosis, pharmacological treatment, and psychosocial care, these recommendations allow diagnosis and management to occur in a coordinated multidisciplinary fashion.

Full Text

Duke Authors

Cited Authors

  • Bushby, K; Finkel, R; Birnkrant, DJ; Case, LE; Clemens, PR; Cripe, L; Kaul, A; Kinnett, K; McDonald, C; Pandya, S; Poysky, J; Shapiro, F; Tomezsko, J; Constantin, C; DMD Care Considerations Working Group,

Published Date

  • February 2010

Published In

Volume / Issue

  • 9 / 2

Start / End Page

  • 177 - 189

PubMed ID

  • 19945914

Electronic International Standard Serial Number (EISSN)

  • 1474-4465

Digital Object Identifier (DOI)

  • 10.1016/S1474-4422(09)70272-8


  • eng

Conference Location

  • England