Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease.


Journal Article

We implemented the Duke Sickle Cell Disease (SCD) Transition Program for adolescents with SCD and investigated the knowledge about SCD; concerns and emotions about transitioning; and the initial impact of the Transition Program. Thirty-three adolescents participated in the initial study. Gaps in knowledge included ethnicities affected by SCD and inheritance of SCD. Adolescents were primarily concerned about transferring to a new medical team. There was a mix of both positive and negative emotions that varied over time. Overall, we have identified educational gaps and concerns and emotions about transitioning, which we will address through the Duke SCD Transition Program.

Full Text

Duke Authors

Cited Authors

  • Smith, GM; Lewis, VR; Whitworth, E; Gold, DT; Thornburg, CD

Published Date

  • July 2011

Published In

Volume / Issue

  • 33 / 5

Start / End Page

  • 379 - 382

PubMed ID

  • 21602723

Pubmed Central ID

  • 21602723

Electronic International Standard Serial Number (EISSN)

  • 1536-3678

Digital Object Identifier (DOI)

  • 10.1097/MPH.0b013e318211bb2e


  • eng

Conference Location

  • United States