The value of data collection within a palliative care program.

Published

Journal Article (Review)

Collecting reliable and valid data is an increasing expectation within palliative care. Data remain the crux for demonstrating value and quality of care, which are the critical steps to program sustainability. Parallel goals of conducting research and performing quality assessment and improvement can also ensure program growth, financial health, and viability in an increasingly competitive environment. Mounting expectations by patients, hospitals, and payers and inevitable pay-for-performance paradigms have transitioned data collection procedures from novel projects to expected standard operation within usual palliative care delivery. We present types of data to collect, published guides for data collection, and how data can inform quality, value, and research within a palliative care organization. Our experiences with the Quality Data Collection Tool (QDACT) in the Carolinas Palliative Care Consortium to collect data on quality have led to valuable lessons learned in creating a data collection system. Suggested steps in forming data-sharing collaborations and building data collection procedures are shared.

Full Text

Duke Authors

Cited Authors

  • Kamal, AH; Currow, DC; Ritchie, C; Bull, J; Wheeler, JL; Abernethy, AP

Published Date

  • August 2011

Published In

Volume / Issue

  • 13 / 4

Start / End Page

  • 308 - 315

PubMed ID

  • 21556703

Pubmed Central ID

  • 21556703

Electronic International Standard Serial Number (EISSN)

  • 1534-6269

Digital Object Identifier (DOI)

  • 10.1007/s11912-011-0178-8

Language

  • eng

Conference Location

  • United States