Former palliative caregivers who identify that additional spiritual support would have been helpful in a population survey.

Published

Journal Article

BACKGROUND: Palliative care encompasses physical, psychosocial and spiritual care for patients and caregivers. No population data are available on bereaved people who subsequently report that additional spiritual support would have been helpful. METHODS: In a population survey, a respondent-defined question was asked regarding 'additional spiritual support' that would have been helpful if someone 'close to them had died' an expected death in the previous five years. Data (socio-demographic [respondent]); clinical [deceased]) directly standardized to the whole population were analysed. RESULTS: There were 14,902 participants in this study (71.6% participation rate), of whom 31% (4665) experienced such a death and 1084 (23.2%) provided active hands-on (day-to-day or intermittent) care. Fifty-one of the 1084 (4.7%) active caregivers identified that additional spiritual support would have been helpful. The predictors in a regression analysis were: other domains where additional support would have been helpful (OR 1.69; 95% CI 1.46-1.94; p<0.001); and being female (OR 3.23; 95% CI 1.23 to 8.33; p=0.017). 'Additional spiritual support being helpful' was strongly associated with higher rates where additional support in other domains would also have been helpful in: all bereaved people (2.7 vs 0.6; p<0.0001); and in active caregivers (3.7 vs 0.8; p<0.0001). CONCLUSION: People who identify that additional spiritual support would have been helpful have specific demographic characteristics. There is also a strong association with the likelihood of identifying that a number of other additional supports would have been helpful. Clinically, the need for additional spiritual support should open a conversation about other areas where the need for further support may be identified.

Full Text

Cited Authors

  • Hegarty, MM; Abernethy, AP; Olver, I; Currow, DC

Published Date

  • April 2011

Published In

Volume / Issue

  • 25 / 3

Start / End Page

  • 266 - 277

PubMed ID

  • 21228089

Pubmed Central ID

  • 21228089

Electronic International Standard Serial Number (EISSN)

  • 1477-030X

International Standard Serial Number (ISSN)

  • 0269-2163

Digital Object Identifier (DOI)

  • 10.1177/0269216310389225

Language

  • eng