Modifiable barriers to enrollment in American ALS research studies.


Journal Article

Enrollment in ALS research studies is surprisingly low. Here we report on two online patient surveys that help identify some of the reasons. These include failure to invite patients to enroll, especially patients who have already participated in prior studies. Also included are patient concerns about the cost of participation, and confusion about several aspects of studies being offered. Along with prior work, these data suggest specific steps that can be taken to improve enrollment.

Full Text

Duke Authors

Cited Authors

  • Bedlack, RS; Wicks, P; Heywood, J; Kasarskis, E

Published Date

  • December 2010

Published In

Volume / Issue

  • 11 / 6

Start / End Page

  • 502 - 507

PubMed ID

  • 20446890

Pubmed Central ID

  • 20446890

Electronic International Standard Serial Number (EISSN)

  • 1471-180X

Digital Object Identifier (DOI)

  • 10.3109/17482968.2010.484494


  • eng

Conference Location

  • England