Informed consent in genomics and genetic research.
Publication
, Journal Article
McGuire, AL; Beskow, LM
Published in: Annual review of genomics and human genetics
January 2010
There are several features of genetic and genomic research that challenge established norms of informed consent. In this paper, we discuss these challenges, explore specific elements of informed consent for genetic and genomic research conducted in the United States, and consider alternative consent models that have been proposed. All of these models attempt to balance the obligation to respect and protect research participants with the larger social interest in advancing beneficial research as quickly as possible.
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Published In
Annual review of genomics and human genetics
DOI
EISSN
1545-293X
ISSN
1527-8204
Publication Date
January 2010
Volume
11
Start / End Page
361 / 381
Related Subject Headings
- United States
- Specimen Handling
- Informed Consent
- Humans
- Genetics & Heredity
- Genetic Research
- 3105 Genetics
- 1801 Law
- 0604 Genetics
- 0603 Evolutionary Biology
Citation
APA
Chicago
ICMJE
MLA
NLM
McGuire, A. L., & Beskow, L. M. (2010). Informed consent in genomics and genetic research. Annual Review of Genomics and Human Genetics, 11, 361–381. https://doi.org/10.1146/annurev-genom-082509-141711
McGuire, Amy L., and Laura M. Beskow. “Informed consent in genomics and genetic research.” Annual Review of Genomics and Human Genetics 11 (January 2010): 361–81. https://doi.org/10.1146/annurev-genom-082509-141711.
McGuire AL, Beskow LM. Informed consent in genomics and genetic research. Annual review of genomics and human genetics. 2010 Jan;11:361–81.
McGuire, Amy L., and Laura M. Beskow. “Informed consent in genomics and genetic research.” Annual Review of Genomics and Human Genetics, vol. 11, Jan. 2010, pp. 361–81. Epmc, doi:10.1146/annurev-genom-082509-141711.
McGuire AL, Beskow LM. Informed consent in genomics and genetic research. Annual review of genomics and human genetics. 2010 Jan;11:361–381.
Published In
Annual review of genomics and human genetics
DOI
EISSN
1545-293X
ISSN
1527-8204
Publication Date
January 2010
Volume
11
Start / End Page
361 / 381
Related Subject Headings
- United States
- Specimen Handling
- Informed Consent
- Humans
- Genetics & Heredity
- Genetic Research
- 3105 Genetics
- 1801 Law
- 0604 Genetics
- 0603 Evolutionary Biology