Informed consent in genomics and genetic research.


Journal Article (Review)

There are several features of genetic and genomic research that challenge established norms of informed consent. In this paper, we discuss these challenges, explore specific elements of informed consent for genetic and genomic research conducted in the United States, and consider alternative consent models that have been proposed. All of these models attempt to balance the obligation to respect and protect research participants with the larger social interest in advancing beneficial research as quickly as possible.

Full Text

Cited Authors

  • McGuire, AL; Beskow, LM

Published Date

  • January 2010

Published In

Volume / Issue

  • 11 /

Start / End Page

  • 361 - 381

PubMed ID

  • 20477535

Pubmed Central ID

  • 20477535

Electronic International Standard Serial Number (EISSN)

  • 1545-293X

International Standard Serial Number (ISSN)

  • 1527-8204

Digital Object Identifier (DOI)

  • 10.1146/annurev-genom-082509-141711


  • eng