Health-related quality of life in sickle cell disease: past, present, and future.
Journal Article (Journal Article;Review)
Health-related quality of life (HRQL) is defined as the patient's appraisal of how his/her well being and level of functioning, compared to the perceived ideal, are affected by individual health. The study of HRQL in children and adults with sickle cell disease (SCD) has begun to flourish. Given the devastating complications of the disease and other co-morbid factors patients experience that influence HRQL, it is increasingly important to understand HRQL. The focus of this critical review was to examine past and current research in HRQL in SCD where a validated instrument was used. In addition, future directions for HRQL in SCD are explored.
Full Text
Duke Authors
Cited Authors
- Panepinto, JA; Bonner, M
Published Date
- August 2012
Published In
Volume / Issue
- 59 / 2
Start / End Page
- 377 - 385
PubMed ID
- 22522407
Pubmed Central ID
- 22522407
Electronic International Standard Serial Number (EISSN)
- 1545-5017
Digital Object Identifier (DOI)
- 10.1002/pbc.24176
Language
- eng
Conference Location
- United States