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Change in the Psychological Adjustment of Children with Cystic Fibrosis or Sickle Cell Disease and Their Mothers

Publication ,  Journal Article
Thompson, RJ; Gustafson, KE; Gil, KM; Kinney, TR; Spock, A
Published in: Journal of Clinical Psychology in Medical Settings
January 1, 1999

Objectives: This study has three interrelated objectives: (1) to track the adjustment of children and adolescents with sickle cell disease (SCD) or cystic fibrosis (CF) and their mothers through a third assessment point 2 years after the initial assessment; (2) to determine whether the adaptational processes of the transactional stress and coping model associated with adjustment at the initial assessment continue to be associated with adjustment 2 years later; and (3) to determine whether the pattern of association of adaptational processes with adjustments differs by illness subgroup. Methods: The study samples included 59 children with CF and 50 children with SCD and their mothers. Measures were obtained on maternal adjustment and appraisals of daily and illness stress, coping methods, and family functioning. Child measures included child-reported and mother-reported child adjustment and child perceptions of self-worth and health locus of control and pain coping methods. Results: Consistency in adjustment classification was only 31-32% for child self-report, 66% for mother-reported child behavior problems, and 56-77% for mother self-reported adjustment for the CF and SCD groups, respectively. Support was provided for the association of adaptational processes with maternal adjustment and with the adjustment of children with SCD but not for children with CF. Conclusion: The stability of adjustment has implications for prevention and treatment intervention and subsequent research steps. Intervention efforts should be focused on the relatively small subgroups of children with chronic illnesses and their mothers with consistently poor adjustment.

Duke Scholars

Published In

Journal of Clinical Psychology in Medical Settings

DOI

ISSN

1068-9583

Publication Date

January 1, 1999

Volume

6

Issue

4

Start / End Page

373 / 392

Related Subject Headings

  • Clinical Psychology
  • 5203 Clinical and health psychology
  • 5201 Applied and developmental psychology
  • 1701 Psychology
 

Citation

APA
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ICMJE
MLA
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Thompson, R. J., Gustafson, K. E., Gil, K. M., Kinney, T. R., & Spock, A. (1999). Change in the Psychological Adjustment of Children with Cystic Fibrosis or Sickle Cell Disease and Their Mothers. Journal of Clinical Psychology in Medical Settings, 6(4), 373–392. https://doi.org/10.1023/a:1026219831205
Thompson, R. J., K. E. Gustafson, K. M. Gil, T. R. Kinney, and A. Spock. “Change in the Psychological Adjustment of Children with Cystic Fibrosis or Sickle Cell Disease and Their Mothers.” Journal of Clinical Psychology in Medical Settings 6, no. 4 (January 1, 1999): 373–92. https://doi.org/10.1023/a:1026219831205.
Thompson RJ, Gustafson KE, Gil KM, Kinney TR, Spock A. Change in the Psychological Adjustment of Children with Cystic Fibrosis or Sickle Cell Disease and Their Mothers. Journal of Clinical Psychology in Medical Settings. 1999 Jan 1;6(4):373–92.
Thompson, R. J., et al. “Change in the Psychological Adjustment of Children with Cystic Fibrosis or Sickle Cell Disease and Their Mothers.” Journal of Clinical Psychology in Medical Settings, vol. 6, no. 4, Jan. 1999, pp. 373–92. Scopus, doi:10.1023/a:1026219831205.
Thompson RJ, Gustafson KE, Gil KM, Kinney TR, Spock A. Change in the Psychological Adjustment of Children with Cystic Fibrosis or Sickle Cell Disease and Their Mothers. Journal of Clinical Psychology in Medical Settings. 1999 Jan 1;6(4):373–392.
Journal cover image

Published In

Journal of Clinical Psychology in Medical Settings

DOI

ISSN

1068-9583

Publication Date

January 1, 1999

Volume

6

Issue

4

Start / End Page

373 / 392

Related Subject Headings

  • Clinical Psychology
  • 5203 Clinical and health psychology
  • 5201 Applied and developmental psychology
  • 1701 Psychology